u/AggravatingBug9922

▲ 10 r/Alzheimers+1 crossposts

Introducing In-home care when the usual approaches won’t work?

Looking for advice from people who have successfully introduced in-home care when the person with dementia is very resistant to the idea.
My mom still sees herself as independent and absolutely does not want someone coming into the house to “help” her. I think she pictures a caregiver hovering over her, patronizing her, or treating her like a child — which she would hate.
My dad is her primary caregiver, but he still works, and she’s already angry that he leaves her to go to work. We really need to bring someone in both so she isn’t alone and so my dad can get some breathing room.
I’ve heard the suggestion to frame the caregiver as someone who is there to “help my dad,” but I don't think that will work for since the whole point is that my dad needs to be able to leave while the caregiver is there.
I also don’t think we can use the “she’s a friend who needs a job” or “she’s a student who needs some hours” approach. My mom would see right through that, especially because we’ve already talked to her about bringing in some in-home help.
One idea my dad had was to tell her that this is a Medicare benefit available to both of them, and if they don’t use it, they lose it. Basically, take the focus off of her needing care and make it sound like a benefit they’re simply entitled to use. (I know that isn't literally how Medicare in-home care works — we're just trying to find framing she'll accept.)
Has anyone dealt with a similar situation? What actually worked to get your parent/spouse to accept someone coming into the home?
I’m especially interested in approaches that preserve their sense of independence and dignity rather than trying to convince them that they need help.

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u/AggravatingBug9922 — 4 days ago
▲ 12 r/Alzheimers+1 crossposts

Dementia crisis/5150 — how do families handle this?

My mom has dementia (stage5/6?) and has now had three serious behavioral crises that resulted in calling 911. This time she was placed on a 5150 hold and taken to the nearest available hospital/facility.

The experience has been awful. She is frightened and confused, has been restrained, wasn’t receiving her regular medications, and staff didn’t even know she is hard of hearing. She’s complained of leg pain and has had trouble getting basic help, including getting to the bathroom.

My dad is 82 and her primary caregiver. Needless to say, he is heartbroken and feels helpless. Seeing my dad break down in tears has absolutely destroyed me.

He’s now desperate to get her home because he feels like being there is making her worse. I completely understand, but I’m terrified about what happens when she comes home — because nothing has actually changed and we still don’t have a plan for the next crisis.

Her neurologist has mentioned UCLA’s geriatric psychiatry unit, but when we call 911, EMS takes her to the nearest available facility. My dad can’t safely transport her during a crisis.

For those who have been through this: What did you do? How did you create a crisis plan that didn’t just lead back to 911 and a general psych unit? Were you able to arrange transport to a hospital equipped for dementia/geriatric psychiatry? What kind of help did you put in place at home?
I’m especially interested in experiences in Los Angeles/California.

After what happened this time, I’m afraid my dad will be too scared to call 911 during the next crisis — and we desperately need a better plan before that happens. Thank you!

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u/AggravatingBug9922 — 8 days ago