u/Agreeable-Pizza-783

Got my biopsy back and confirmed my cHL is back. I’m not really upset, I’m more angry because I was just rebuilding my life again but I really can’t do anything about it now. Anyway,

My background: 28F now, had stage 2A cHL in 2024 and did ABVD for 4 cycles. Radiation to the chest 14 rounds. I found a lump on my neck this April 2026, had a PET scan in May 2026, neck biopsy last week.

Doctor said I will do chemo again and then stem cell transplant.
I already got my port taken out. Do I have to get a new port in? Curious what you guys’ experience is with chemo? How many rounds did you do it for and which drugs did you get? + any side effects? Did you lose your hair again?
Also wanna know more about the stem cell transplant process because I’m intimidated with it being inpatient. Were you able to work?? I WFH now so is it doable?

Any insight is helpful, thanks!

I got my aritzia order yesterday and i was missing one item - the gramercy shrug. I contacted them and they said they would investigate. I got an email last night and said the weight of the package remained consistent throughout the delivery so they cannot refund me. Im so mad because of course it remained consistent, the shrug was never in the package in the first place!
I’m a tier 1 customer and I always get invited first to the sales. Their stuff is not cheap and I’m so disappointed. Anyone have advice or can help with getting my money back?

I'm back to the drawing board. Just saw my doctor to review my May PET scan results and he thinks I may have relapsed.
In Dec 2023, I was diagnosed with stage 2a cHL (right neck mass and mediastinum mass). I did ABVD for 8 cycles (Feb-May 2024) and chest radiation for 14 sessions (July 2024).
This time, my PET showed a lymph node on my left neck lit up (11mm) and the sac by my heart lit up (also 11mm), the pericardium. It says they're both Deauville 5. My doctor wants to biopsy the lymph node on my neck first to be sure, if it's positive then I will go through chemo again and get a bone marrow transplant. I'm also gonna get an echocardiogram to see what's going on with the sac by my heart.
I'm really nervous but at the same time I feel numb to it now. I really thought I wouldn't have to be a cancer patient again. I do want to hear if anyone has similar experiences with the pericardium area lighting up, and any bone marrow transplant stories - I am most scared for this because I heard you have to be in the hospital for like a month with nonstop chemo? And what the process was like / what chemo you got / how often. Please share your stories, thank you!

Hi all. I was diagnosed with cHL stage 2a (nodular sclerosis) in Jan 2024 and I did ABVD for 4 cycles (ended May 2024) and radiation to the chest for 14 sessions in July 2024. I had a lump ~4cm on my left collarbone and a bigger mass on my mediastinum/chest (forgot how big). All of my scans came back clear so far and I achieved remission/NED in April 2024 after 2 cycles.
Now, I am feeling a small lump on my right collarbone and the biggest it has been is ~1.5-2cm. It has been going down in size as the days go on but it is feeling rubbery. I have a PET scan next week and I am really nervous. I also started itching a bit in the pelvic area but it is very mild, no B symptoms. I am convinced my cancer is back and I am very anxious about it.

Has anyone relapsed with a similar story? Or have a similar story but it didn't turn out to be a relapse? lol
I'm trying to prepare myself for second line treatment and ASCT. I can make peace with the chemo but its the stem cell transplant I am nervous about since I've been reading it will be inpatient. Any advice helps!

I had cHL nodular sclerosis type stage 2A, diagnosed in Jan 2024. I did ABVD Feb 2024- May 2024, 8 cycles and then radiation to my chest for 10 sessions in July 2024. I was in remission in April 2024 even before i finished my treatment.
My initial symptoms were itching in legs, arms, and pelvic area. I also had a 4cm mass above my right collarbone and my first PET found that i had a huge mass in my chest. ABVD got rid of the collarbone mass and i still have ~1cm of leftover mass in my chest w no activity after radiation.
My last PET was in Dec 2025 and the scan found activity in my left neck, got a biopsy (Jan 2026) but they were reactive nodes.
Flashforward to now, 2 weeks ago i felt a lump above my left collarbone about 2cm. I was traveling and i went to Coachella lol so i thought it was just swelling from that. I had mild sinus issues then but now i don’t have any sickness but the lump is still there. I am feeling good, no B symptoms. I keep feeling it and sometimes i think the size has gone down but sometimes i feel like it hasnt. I have been having anxiety ever since of this possible relapse. I am getting a PET scan on May 18th and i am really nervous :(
Does anyone have similar experiences?? I’m really hoping its not a relapse bc i am just now starting to fall in love with life again :(