u/Agreeable-Pizza-783

Hi all. I was diagnosed with cHL stage 2a (nodular sclerosis) in Jan 2024 and I did ABVD for 4 cycles (ended May 2024) and radiation to the chest for 14 sessions in July 2024. I had a lump ~4cm on my left collarbone and a bigger mass on my mediastinum/chest (forgot how big). All of my scans came back clear so far and I achieved remission/NED in April 2024 after 2 cycles.
Now, I am feeling a small lump on my right collarbone and the biggest it has been is ~1.5-2cm. It has been going down in size as the days go on but it is feeling rubbery. I have a PET scan next week and I am really nervous. I also started itching a bit in the pelvic area but it is very mild, no B symptoms. I am convinced my cancer is back and I am very anxious about it.

Has anyone relapsed with a similar story? Or have a similar story but it didn't turn out to be a relapse? lol
I'm trying to prepare myself for second line treatment and ASCT. I can make peace with the chemo but its the stem cell transplant I am nervous about since I've been reading it will be inpatient. Any advice helps!

I had cHL nodular sclerosis type stage 2A, diagnosed in Jan 2024. I did ABVD Feb 2024- May 2024, 8 cycles and then radiation to my chest for 10 sessions in July 2024. I was in remission in April 2024 even before i finished my treatment.
My initial symptoms were itching in legs, arms, and pelvic area. I also had a 4cm mass above my right collarbone and my first PET found that i had a huge mass in my chest. ABVD got rid of the collarbone mass and i still have ~1cm of leftover mass in my chest w no activity after radiation.
My last PET was in Dec 2025 and the scan found activity in my left neck, got a biopsy (Jan 2026) but they were reactive nodes.
Flashforward to now, 2 weeks ago i felt a lump above my left collarbone about 2cm. I was traveling and i went to Coachella lol so i thought it was just swelling from that. I had mild sinus issues then but now i don’t have any sickness but the lump is still there. I am feeling good, no B symptoms. I keep feeling it and sometimes i think the size has gone down but sometimes i feel like it hasnt. I have been having anxiety ever since of this possible relapse. I am getting a PET scan on May 18th and i am really nervous :(
Does anyone have similar experiences?? I’m really hoping its not a relapse bc i am just now starting to fall in love with life again :(