u/Alice-Dave

Oh Hey, it’s me again. The girl who has lost her life to chronic intractable migraine.

So I’m in the process of trying to get approved for Vyepti. I’ve failed all the other CGRPs and gepants- mainly because I’m a delicate fucking flower and can’t handle the side effects (I’m just sensitive to meds, what can I say). Qulipta and Nurtec gave me terrible reflux and the constipation was ungodly. The injectables sent me into fight or flight mode anxiety wise and increased my appetite such that at one point I gained 10lbs in one month (I could never get full). Oh, and did I mention the constipation?

I’m starting monthly lidocaine infusions which I’ve heard can be helpful but my neurologist is thinking we should try Vyepti too. And to be honest, I’m terrified. I can’t afford to gain more weight and I really don’t want to go bald (side effects I’ve heard of). Has anyone who is SENSITIVE to medications had a positive experience? I just need some hope right now.

Oh Hey! It’s the girl with whose chronic migraine is ruining her life to the point of barely surviving and who has failed all the CGRPs and who can’t get Vyepti covered by insurance. Botox is my friend but it only lasts about 8 weeks until she starts wearing off. I’ve started the process of occipital nerve ablations (left side down now working on the MBBs to get the right side approved by insurance).

I start monthly lidocaine infusions this coming week. Has anyone had good results? Please tell me you have. I need hope. Today I officially ran out of PTO and I’m taking unpaid leave which I can’t afford to do. So I really need so hope.