u/AngilinaB

Over the years I've often had a mild temporary wheeze in dusty environments or with hayfever. It always self resolved

A couple of years ago I had covid pretty bad and ended up needing two courses of prednisolone and regular salbutamol inhaler. They diagnosed asthma (my feeling was that it was more a post viral wheeze) and I was started on a steroid inhaler. After about 8 or 9 months I stopped needing anything. Last summer my son was unwell so I wasn't outdoors much, but did need salbutamol maybe 2 or 3 times over the whole summer.

This summer has been something else. The last 3 weeks I have been increasingly SOB and wheezy. Was using salbutamol maybe once or twice a day, gradually increasing until yesterday when I've been using two puffs with a spacer every two hours to control symptoms. Managed 4 hours sleep overnight before waking needing it again. Been trying to get in with my GP to get back on steroid inhaler, but struggling to get appointment that works with childcare issues (my son is disabled and I'm quite limited - I realise now I should have taken action before it got so debilitating!).

I'm very new to all this as a patient, so I guess what I'm wondering is are seasonal flare ups like this usual, and is it likely to settle without oral steroids? I'm due at work in a couple of hours and wondering how on earth I'll manage - I do however work in a minor injuries unit attached to an Emergency Department (hard to make sensible decisions about myself though!) so will be safe. I hate to let my team down.

As much as I want to watch it day of release, I am putting it off until the 22nd, so I can travel to watch with my best friend who is also a fan since day 1. We are going to drink Kylie rose and I am probably going to cry a lot 😁

What is everyone else planning?

Hello, wondering if anyone has been down a similar path.

My son (10, diagnoses combined ADHD, OCD and PDA aurism) started IR methylphenidate this time last year. We stuck it out a week and it did nothing good - anxiety, aggression and dysregulation, but he had also just come out of school with burnout so who knows what caused what.

He then started Guanfacine, which helped impulsivity but left him dizzy and causes bladder issues that made his anxiety and OCD worse. Started sertraline in October which massively improved his anxiety and OCD to the point where a few months ago, we decided to try Equasym. 10mg was great, helped impulsivity and he was able to focus on things like tidying his room and activities he enjoys. Upped it to 20mg and that caused aggression as it wore off. Went back to 10mg, no drop off effect but gradually lost the effect on focus etc.

Today we started 15mg Tuzulby which is a new medication in Europe I believe, again a methylphenidate SR. He has been so overstimulated, flying off the handle, aggressive. Now it's worn off he's much calmer.

He wants to try again tomorrow "in case today was just a hard day" 😔 I'm starting to feel like I'm experimenting on my child. He got such relief when he first started the Equasym, I feel so bad for him that the 10mg doesn't help anymore.

Will the agitation settle, in people's experience? If it doesn't, how have people found Vyvanse? He seems so young for such a long acting drug.