u/AnteaterCritical9168

Hey y’all!

Apparently Oral Baclofen Solution is on back order with the manufacturer. It took my normal pharmacy telling me “tomorrow” for a week, and then telling me on Friday that the soonest they’d have it is Monday— before I started calling around to other pharmacies in my area. No one has it.

I feel kind of panicky because my kid only has two doses left in her current bottle, and even though she’s on a decently small dose, I worry about withdrawal.

But, fortuitously, I think, we’re leaving state tomorrow. I text the friend we’re visiting and ask if she can pick up an RX for me tomorrow before getting us from the airport. She says yes.

So I call the pharmacy close to her— they tell me it’s on back order with the manufacturer! Why none of the pharmacies in my community told me this when I called is beyond me. But now I’m panicking again.

Has anyone switched to (or switched their kid to) the oral granules from the oral suspension?. Does anyone happen to know if it is currently having supply issues?

Or I could get tablets and crush them/dissolve them in solution. Any one made this switch solution to tabs crushed? Any issues?

Trying to decide what to ask the on call provider for and minimize the amount of work they need to do while on call!

(And also, mostly worried about my kid withdrawing from abruptly discontinuing. She’s in a small dose and we’re about to start tapering off anyway, but it’s nerve wracking.)

TLDR: is it possible to catch it early enough that it doesn’t become a full on infestation? Also, any tried and true repellents to use in luggage when traveling?

Apparently can’t edit the title. Just noticed the typo.

Last Tuesday (10 days ago) morning I noticed a small rash (I thought) just outside my underwear line in my left groin. I’m pretty rash/allergy prone, so I didn’t think anything of it. That night, however, I realized I had a line of bites up my right leg (6-8”apart) and then a patch of 3-4 closely packed in my right groin, a very clear straight line of 4 bites across my underwear line, and then realized that “rash” at my left groin was also a cluster of 4 bites.

That strait line of bites sent me over the edge. I immediately assumed I had BB. I’ve traveled by plane twice since February, staying in Air BnBs and hotels and using rental cars. I’m also a clinician who works in the hospital and clinic with a wide range of people. So I felt a simultaneous sense of “there’s no way in hell I have BB” with logically knowing it’s very possible.

Searched the bed that night. Found no bugs or eggs but maybe 1 or 2 blood/feces spots. Began aggressively bagging up everything that could be bagged up. I had DE on hand so I dusted under the bed, on the metal head board and frame, and night stands.

It took me several days to get everything bagged up (doing this while solo parenting and full time shift working, plus in awe of the sheer amount of textiles and stuffed animals we have) while simultaneously running laundry continuously. I’ve been switching out my bedding and laundering on high every 2-3 days.

It took about 8-9 days for Cimexa and Crossfire to get here. (In Alaska) I also got supplies to do the Jules Noise method, but then I think I decided against that. Bought a steamer and treated the luggage we traveled with (maybe too little too late since we’d been back from the most recent trip 7 days, and 2 months after the prior) and then dusted it with DE.

I got one more series of bites, around my ankles, 4 days after the initial bites. My kid seems to be a non-reactor.

It’s now been 7 days since I’ve gotten any bites. I’ve never seen anything alive, haven’t found any exoskeletons, eggs or nymphs. I found maybe one new blood spot after the new bites. I found one dead body (no head) of a juvenile. I couldn’t get a good pic of it and was hard get good visual on just looking at it, but I looked at it on the microscope and it (creeped me the F out) but looked consistent w/BB

I got the crossfire and Cimexa. Sprayed Crossfire on the metal bed frame and headboard, mattress focusing on seems and zippers of encasement (had a dust mite encasement on it already), baseboards, wall behind the bed, curtains, around all outlets, window frames, closet framing, couch and furniture seems/folds and all door frames. I’m planning to do the Cimexa dusting today. And continue the laundry/re-bagging clean laundry.

This has not actually been “easy”, I now feel bugs crawling on me constantly, and am paranoid about every single speck of dirt or lint. But it has been easier than most stories I’ve read and has certainly been easier than the few run ins I had with fleas when I lived in NC. (Still have PTSD about those.) But is it possible I actually caught it early enough to have gotten in front of it and this is the worst of it??

I have now triggered a new anxiety and will be treating luggage and its contents very differently both when I leave my house with it, and when I come home. Devising plans for a homemade bed bug oven for luggage and will probably leave luggage in the garage until I can steam it. Unfortunately have to bring laundry inside but will bag it in the garage.

Thinking about having tea-tree soaked cotton balls in my luggage, but anything else to consider as a repellent? What do people do with luggage in hotels or air bnbs when there is no luggage rack and you have multiple pieces of luggage??