Frustrated
Hello everyone, I was diagnosed with MS at the end of March this year after experiencing optic neuritis last June. I am currently unmedicated. Because I also have lupus, my white blood cell count is chronically low, so my neurologist was concerned with starting me on a DMT. I was reassured by the nurses that my neurologist and rheumatologist have been in contact to come up with a plan for me.
However I have been left in the dark about specific details until my appointment with my rheumatologist this week. He said the low WBC count is a common symptom of lupus and believes I should start the DMT anyways. He said decreasing my lupus medications wouldn’t likely change the low WBC count issue.
After the appointment I reached out to the nurse at the neurologist clinic for another update. She said the neurologist had sent an email to my rheumatologist in April with no response, and asked me to forward the email again to my rheumatologist.
What’s ridiculous is both doctors work for the same hospital yet somehow I’m acting as a liaison between them?! I’m just really frustrated with being kept in the dark and it feels like the doctors are in a deadlock for no reason. I’ve been so stressed about the MS getting worse and it’s affecting my studies and I genuinely think I might fail this semester. Just needed to rant.