u/Any_University_5305

A lot of people describe pain - does anyone not get pain so much as a sense of fullness, warmth, tingling, pressure and inflammation? For me, sexual contact can trigger delayed onset of that hot "inflamed" sensation I'm used to getting if something was swelling (though no visible swelling), but there's no pain per se. Although there is stiffness and sensetivity. It starts in the genitals and spreads out across the pelvis over the course of the day, then normally takes a couple of days to settle.

My gut when this happens is to assume complete rest. But is that less helpful? Is it better to keep moving?

Ongoing unknown injury. Initially nearly a year ago, recent possible re-injury (or chronic pain issue?).

This has been a real struggle and I'm grateful for any insight or advice from people here.

Around ten months ago I sustained an injury following an oral session. No clear moment, no pop, just some mild discomfort due to positioning. The next day I felt sore in a way that I felt was just sexual frustration, as we were interrupted and I didn't ejaculate. So I masturbated, and upon ejaculation the soreness became an intense pulsating pain at the lower right of my shaft near the base. The pain increased to such a degree that I did not feel like I could move from my bed most days. I was still able to get an erection, but it seemed to do a hula hoop on its way up and veer leftward. It also seemed to droop more leftward when flaccid (although I only recently realised this may have been "hard flaccid").

I tried my best to be seen by someone and to get a scan, but was constantly dismissed as "minor" because I did not describe a pop and I could still get hard to some degree. I paid to see someone privately and they said "micro trauma" causing soft tissue damage and possible Pyronies. They said wait it out, be careful with activity.

Flash forward to recently and I have been living relatively normally with baseline discomfort (shaft aches or nervy pressure/tingling that come and go, stiffness when moving flaccid penis upward) that I had pretty much accepted as part of my life. No intercourse (various personal reasons), but able to engage in gentle sexual activity anywhere from every couple of days to once every 7-10 days. Working as normal, walking around, semi-heavy lifting etc.

I saw the specialist again for a checkup and he said "it'll continue to settle, just takes time". Referred me for mri for peace of mind, and it was changed to ultrasound instead. Showed evidence of scar tissue where the pain site was and at the sides of the shaft. Specialist said this confirmed their diagnosis.

It has not been abnormal to have "some" discomfort during sexual activity and I've carried on assuming any pulling sensations or instability to be part of the Pyronies plaque, obviously backing off with anything too intense - but it's generally been pretty gentle and I never had "sharp" pain. But last week I felt more discomfort than normal, specifically at the base from an awkward position causing slight downward pressure (really - slight). Felt a little uncomfortable, but it settled down. Later in the evening at work I randomly had a relatively sharp twinge or "pang". Just once, and then I just felt a little "off" down there for the rest of the evening. I decided to take it easy and rest at home, assuming there was some kind of inflammation or nervous system response set off. Around this time I was also having trouble with my feet, so I was doing stretches for that. Around 4 days in I'm stretching my calves/hamstrings to help my feet and think nothing of it. Later in the evening I have a very stiff feeling in my pelvis/groin that makes it awkward to move. Next day I feel like the entire area is inflamed, sensetive, and stiff, with some tingling/pressure/dull aching at the penis base. Assuming I must have accidentally upset something with the stretches, I back off and rest. 3 days in and felt minor improvement, just general achiness and a feeling of awkward stiffness while moving around the house.

This morning I woke up abruptly because I unconsciously stretched my legs in my sleep. I woke up in pain because I felt it pull on my pelvis - for the first time felt a deep ache and stiffness as if it was on the shaft, but deep down where it goes into the pelvis. This was felt fanning out into the groin, and also a little down into the testicles. I've been in bed since. Its settled but I feel sore.

I've not been taken seriously by the NHS, and I don't have a call with the specialist for another 2 months due to waiting list. My current working theory based on my own research is that I possibly strained (or worse) the suspensory ligament several months ago through several instances of "micro trauma" and awkward positioning. My guess is that while I backed off enough to allow the tissue in the shaft to heal, I did not leave enough time for the ligament to heal. So I assume it has continued to be in a chronic state of "not quite healed" all this time, and recently "put its foot down" so to speak. By stretching I guess I've either strained it further or worse.

Without anything else to go on, my "hope" is that if I give it 1-2 weeks rest, hopefully I'll feel "normal" enough to be mobile in the day to day. If I refrain from sexual activity for at least 6-8 weeks maybe I'll be able to resume gently.

Grateful for any insight, or if there's any possibility that this is instead chronic pain rather than re-injury. Another observation that I can't get out of my head: I have had tingling into the toe coinciding with the penis being flared up consistently. Atm it's more apparent. Some tingling going down my right calf and into the left side of my right foot with a slight numbness. Maybe it's just normal nerve aggravated, but maybe also some more significant compression is involved? I don't know if my issue with foot pain (both feet) recently is related.

This has been a real struggle and I'm grateful for any insight or advice from people here.

Around ten months ago I sustained an injury following an oral session. No clear moment, no pop, just some mild discomfort due to positioning. The next day I felt sore in a way that I felt was just sexual frustration, as we were interrupted and I didn't ejaculate. So I masturbated, and upon ejaculation the soreness became an intense pulsating pain at the lower right of my shaft near the base. The pain increased to such a degree that I did not feel like I could move from my bed most days. I was still able to get an erection, but it seemed to do a hula hoop on its way up and veer leftward. It also seemed to droop more leftward when flaccid (although I only recently realised this may have been "hard flaccid").

I tried my best to be seen by someone and to get a scan, but was constantly dismissed as "minor" because I did not describe a pop and I could still get hard to some degree. I paid to see someone privately and they said "micro trauma" causing soft tissue damage and possible Pyronies. They said wait it out, be careful with activity. Flash forward to recently and I have been living relatively normally with baseline discomfort (shaft aches or nervy pressure/tingling that come and go, stiffness when moving flaccid penis upward) that I had pretty much accepted as part of my life. No intercourse (various personal reasons), but able to have oral anywhere from every couple of days to once every 7-10 days. Working as normal, walking around, semi-heavy lifting etc.

I saw the specialist again for a checkup and he said "it'll continue to settle, just takes time". Referred me for mri for peace of mind, and it was changed to ultrasound instead. Showed evidence of scar tissue where the pain site was and at the sides of the shaft. Specialist said this confirmed their diagnosis.

It has not been abnormal to have "some" discomfort during sexual activity and I've carried on assuming any pulling sensations or instability to be part of the Pyronies plaque, obviously backing off with anything too intense - but it's generally been pretty gentle and I never had "sharp" pain. But last week I felt more discomfort than normal, specifically at the base from an awkward position causing slight downward pressure (really - slight). Felt a little uncomfortable, but it settled down. Later in the evening at work I randomly had a relatively sharp twinge or "pang". Just once, and then I just felt a little "off" down there for the rest of the evening. I decided to take it easy and rest at home, assuming there was some kind of inflammation or nervous system response set off. Around this time I was also having trouble with my feet, so I was doing stretches for that. Around 4 days in I'm stretching my calves/hamstrings to help my feet and think nothing of it. Later in the evening I have a very stiff feeling in my pelvis/groin that makes it awkward to move. Next day I feel like the entire area is inflamed, sensetive, and stiff, with some tingling/pressure/dull aching at the penis base. Assuming I must have accidentally upset something with the stretches, I back off and rest. 3 days in and felt minor improvement, just general achiness and a feeling of awkward stiffness while moving around the house.

This morning I woke up abruptly because I unconsciously stretched my legs in my sleep. I woke up in pain because I felt it pull on my pelvis - for the first time felt a deep ache and stiffness as if it was on the shaft, but deep down where it goes into the pelvis. This was felt fanning out into the groin, and also a little down into the testicles. I've been in bed since. Its settled but I feel sore.

When I woke up I looked and saw that my penis was actually FLACCID for the first time I can remember since initial injury. I hadn't considered that I had hard flaccid, jsut that it looked different, but I'm assuming that's what I'm experiencing now I've been reminded what flaccid actually looks like (I'm guessing it goes properly flaccid in the night).

I've not been taken seriously by the NHS, and I don't have a call with the specialist for another 2 months due to waiting list. My current working theory based on my own research is that I possibly strained (or worse) the suspensory ligament several months ago through several instances of "micro trauma" and awkward positioning. My guess is that while I backed off enough to allow the tissue in the shaft to heal, I did not leave enough time for the ligament to heal. So I assume it has continued to be in a chronic state of "not quite healed" all this time, and recently "put its foot down" so to speak. By stretching I guess I've either strained it further or worse.

Without anything else to go on, my "hope" is that if I give it 1-2 weeks rest, hopefully I'll feel "normal" enough to be mobile in the day to day. If I refrain from sexual activity for at least 6-8 weeks maybe I'll be able to have a reasonable sexual lifestyle despite change in erection angle and less self stability.

Grateful for any insight. Another observation tjat I can't get out of my head: I have had tingling into the toe coinciding with the penis being flared up consistently. Atm it's more apparent. Some tingling going down my right calf and into the left side of my right foot with a slight numbness. Maybe a related nerve is just aggravated, but maybe also nerve compression is involved? I don't know if my issue with foot pain (both feet) recently is related.