Alguien de habla hispana?
Buenas estaria interesado en hablar con alguien de español, españa, latinoamerica, Argentina, etc para ayudarnos en esto
Buenas estaria interesado en hablar con alguien de español, españa, latinoamerica, Argentina, etc para ayudarnos en esto
Hello everyone,
I thought I’d give you an update about my diagnositc workups and vascular diagnoses (pelvic congestion, reflux and more). I am trying to explain how I got there and how relevant the findings could be for HFS and CPPS. This will be a long post, but the length was necessary to understand the full picture and clear questions that might arise without it.
First I am going to give a quick rundown of my symptoms and the duration:
After many years of Hard Flaccid Syndrome (HFS ranging from mild at best to severe at worst) and chronic pelvic pain, I finally underwent extensive vascular imaging that revealed objective abnormalities which may be clinically relevant.
My main symptoms include:
My symptoms began abruptly at age 18.
I woke up one morning with severe localized pain in the penile shaft. Within 10 hours, I developed what is now commonly described as Hard Flaccid Syndrome. It’s really hard to say whether or not I injured my penis in some way the day before. I did do repeated masturbation the day before, but I went to bed fine and had no pain during the evening or at night. I only woke up with it, so the two situations might be unrelated and I always did doubt that I injured my penis somehow, as I was always rather cautios.
Over the following days and weeks, I experienced:
The acute penile pain gradually resolved over several months, and the major sensory loss eventually improved. However, the pelvic pain, perineal spasms, Hard Flaccid symptoms, and associated dysfunction persisted.
Before this event, I had years before occasionally experienced:
These symptoms were relatively infrequent and were not a significant problem at the time.
I underwent many MRIs over the years, including a pelvic MRI in 2022.
In late 2025, I underwent more specialized vascular imaging after a referral that specifically mentioned suspected pelvic congestion syndrome (“Pelvic Congestion” was explicitly stated in the referral indication). This included:
Because pelvic venous disease was already part of the clinical suspicion, these studies were explicitly performed with attention to pelvic venous congestion and venous outflow abnormalities.
I later sent all imaging studies to an interventional radiologist with experience in pelvic venous disorders.
After reviewing the CT scans and MR angiograms, he stated that the most notable finding was a dilated pelvic vein, consistent with a possible pelvic venous congestion disorder.
Importantly, the radiology team that performed the CT scans and MR angiograms also had access to my earlier pelvic MRI from 2022 and used it as a direct comparison study.
On re-evaluation, they noted that the same pelvic vein appeared significantly more dilated in 2022 compared to the current imaging, while on the more recent scans it appeared reduced in size and less prominent. They described it as having decreased over time, whereas in 2022 it had been clearly more enlarged.
Importantly, this same finding was already visible on the 2022 pelvic MRI but had been overlooked in the original radiology report.
This suggests that pelvic venous abnormalities may fluctuate over time, may partially regress, and may also be missed unless specifically assessed in context.
I was then referred to an interventional angiologist with experience in pelvic venous disorders predominantly in women.
Interestingly, he primarily had clinical experience in female patients with pelvic congestion syndrome. He explained that he also uses female pelvic venous hemodynamics as a reference framework when interpreting male pelvic venous flow patterns.
Standard ultrasound in the supine position showed little. However, because I explained that my symptoms are much worse while standing, he repeated the examination dynamically while standing.
During standing and Valsalva, he observed:
He noted that similar hemodynamic patterns are well known in female pelvic congestion syndrome, where reflux can extend toward the pelvic venous plexus and external genital region (labial venous drainage) during standing and straining.
In my case, he stated that a comparable reflux pattern could be followed into the penile structures.
Based on these findings, he recommended a super-selective pelvic venography/phlebography.
A super-selective venography/phlebography with a vein catheter through my right groin vein with contrast was performed a few weeks ago.
The venography confirmed:
A possible compression of the left common iliac vein (approximately 70%) was identified on duplex ultrasound and considered suspicious for May-Thurner syndrome. However, the invasive venography did not demonstrate a clearly hemodynamically significant compression, so May-Thurner remains a possible but unconfirmed contributing factor. An IVUS wasn’t done to further investigate it.
No convincing evidence of Nutcracker syndrome was found:
One of the most striking aspects of the procedure was that selective catheterization and contrast injection was purposfully done in a way to try to irritate and reproduce my symptoms. Some of my characteristic symptoms were reproduced.
These included:
In particular, selective catheterization of the varicose pudendal veins extending to the pelvic floor reproduced symptoms in the exact anatomical region where I frequently experience spontaneous perineal spasms in daily life.
The sensations were not identical to my complete Hard Flaccid state and didn’t really trigger it (though I already was severely flared through the stress of the procedure), but they were interestingly similar and occurred in the same anatomical location.
An Embolisation could be a potential treatment option, which would get done in phases, so each phase require another entrance trough my groin vein with a catheter. I have not had my follow up appointment with him yet to speak about the details and potential treatment avenues to follow.
I was also evaluated by a gynecologist/pain specialist with a neuropelveology background.
He diagnosed me right away with May Turner syndrome, Nut Cracker Syndrome and Dunbar syndrome. However me and a few other patients have doubts about the validity of these diagnosis as they were done rather quickly and based more on static images than the normal tests required.
However, he proposed that vascular abnormalities such as pelvic venous congestion could secondarily irritate the pudendal nerve and potentially autonomic pelvic nerves, resulting in a secondary pudendal neuropathy.
He also discussed that anatomical or biomechanical factors such as pelvic posture (including scoliosis and hyperlordosis) may influence venous compression dynamics in the pelvic/iliac region, although this remains a theoretical contribution rather than a definitive cause.
In addition, therapeutic and diagnostic options were discussed, including:
He was very honest and said that a complete remission of symptoms was unlikely, though he was confident that he could improve my quality of life with these symptoms.
My current evidence-based interpretation is:
My goal moving forward will be to get more clearance on the compression diagnoses. I will have another appointment with a european specialist in may turner syndrome and hope that his expertise can shed light on which route I should follow when it comes to embolisation, stents and/or laproscopy.
I am not claiming that this is the universal cause of Hard Flaccid Syndrome, nor that these findings definitively explain all of my symptoms.
However, this is the first time in many years that objective structural abnormalities have been identified and closely correlated with symptom reproduction during invasive testing.
I am sharing this in case others with Hard Flaccid Syndrome, chronic pelvic pain, penile numbness, perineal spasms, or unexplained genital symptoms may have an overlooked vascular component that has not yet been investigated.
I finally found a doctor willing to prescribe a contrast CT scan of the abdomen and pelvis with delayed venous phase imaging.
THE REPORT
"Minimal compression of the left common iliac vein between the right common iliac artery and the L4 vertebral body prior to its confluence into the inferior vena cava, with non-significant caliber reduction"
Signs of pelvic floor congestion with presence of some periprostatic venous plexuses
Presence of multiple phleboliths at pelvic level, bilateral location."
More and more guys with HF are starting to find venous abnormalities once they get proper vascular imaging done. This suggests that a lot of people may never have had the right thing investigated in the first place.
The scans that seem most useful so far are iodine contrast CT venography (abdomen + pelvis) with delayed venous phase and evaluation by a vascular/interventional radiologist. (for anyone trying to replicate this; “Delayed venous phase” is not optional, it needs to be included.)
At the very least, knowing whether your pelvic veins are normal or not can completely change how you approach your case.
This is a throwaway account I made for Reddit, as I only use Discord nowadays. So probably updates will not follow.
Después de eyacular en la masturbacion veo como se forman estas “costillas” o anillos casi completos en el cuerpo cavernoso a medida que baja la ereccion … alguien sabe qué es esto ? Alguien que lo haya padecido y consiguió corregirlo ?
Voy a empezar a tomar ibuprofeno para la inflamación y ponerme trombocid forte ( crema con heparina ) para ver si desaparece .
También noto como dos hilos duros a cada lado de mi vena dorsal no sé si es normal porque nunca me había fijado
También noto vena dorsal y lateral derecha más hinchadas y algunas alrededor como si fueran varices
Is there is anyone who can help me to find pt in india? Suffering from hfs
​
This has been happening for years, if i get in a body position (i do this standing up) where i lean or tilt my torso to the front my lower back gets tired & tight real quick. I don't know exactly why, never had and injury there and i know for a fact that my core is strong and stable (skateboarding for years did that), also got strong quads/legs.
It doesn't happen when i squat or crouch that's why it is weird to me, only when i lean to the front (standing up)
I believe if i could sort this thing out, my symptoms would improve a lot idkk
Any thoughts?
I don't know if anyone else has a similar symptom, but ever since I got this condition 4 years ago, I've had issues breathing through my left nostril and getting those proper deep diaphragmatic breaths where you can feel your pelvis and upper thighs/perineum
This has progressively gotten worse over the years, to the point that now the entire left side of my face, throat, and neck feels completely inflamed if I try to relax, making breathing and eating difficult, and this inflammation worsens in response to arousal, stress, anger, etc.
For a little information, my original injury was caused by the combo of edging, weed, and porn abuse, whereupon ejaculation, I felt a sharp, knife-like pain and felt a popping sensation/sound. Left testicle, and the left side of my head both felt a really sharp pain, and I went flaccid immediately.. ED + HFS and related symptoms have all progressively gotten worse, this breathing one being one of the worst for me.
I've seen 15-20 doctors already, did every test they recommended, and the only thing they found was varicoceles, which I got treated. Have a hydrocele still in the left testicle, but at least the dull dragging pains I had have gone away since I did the surgery.
I remember reading something about this in an academic paper online a few years back, where patients with HFS or Varicocele (I cannot remember exactly) had lost the ability to breathe through one of their nostrils. I haven't been able to find it again, unfortunately. It seems to me like this symptom is somehow related to the nervous system, but I'm really not sure.
If anyone has a similar symptom, I would like to hear about it and how it could relate to this issue, and how to manage this... Thanks, and Godspeed to you all.
Idk why but my biggest suspicion of hf is from my ex gf. She always complained of having yeast infection etc. my initial symptoms as follows:
Yellowish semen -> UTI -> Constipation -> HF (tight right psoas, tight right ql, tightness mainly on the right side of my body)
I also have fizzy urine like Coke/sprite, not foamy but fizzy. It’s like very fizzy, when I pee the whole water part of my toilet bowl is fizzed up and even after I flush, there is still some fizz left.
During that period I was drinking and smoking a lot because I was in college, my immune system probably pretty weak. But my test result for std/ penile ultrasound came back normal but it’s in a public hospital so I am not sure the std is a full panel in depth testing.
Does anyone have similar experience?
This is life ruining, let’s be honest. This is the worst thing I’ve ever experienced. I wonder how you all cope.
So I’ve had HF for a little over a month now. Had my depression phase for a few days since it started but I’m fully committed(obsessive even) to heal myself back to what I was, possibly even stronger than before. For context, I believe I have a mild case of hard flaccid, compared to the many people of this sub. It also helps that I’m 23 and physically active. I can still get erections(like 75-80% strength)with enough mental or physical stimulation, no pain at all but do get the rare twitch in my perineum. Other than that, it’s mostly urination issues. And since there is no damage in my penis, testicles or anywhere in my body, I’m 99% certain it’s not something crazy like Pudendal Neuralgia or Penile Fibrosis. Essentially, it’s most likely a hypertonic pelvic floor.
Getting to the point, I went to a physical therapist who specializes in sexual dysfunction caused by Hypertonic PF, more especially HF. They have seen many men in their office with this condition and has successfully cured them(she showed me visuals too, so she’s not bullshiting). They were nice and asked me a ton of questions before doing her exam of me. My posture, my muscle strength and any imbalance, and of course an external and internal exam of my pelvic floor with other things. I’ll break down her findings and her words here:
My posture: She said it was perfect. No pelvic tilt, no hunchback etc. I walked in a perfect line with no sway or anything.
Range of motion: She asked me to twist my body around to see if there was any muscle tightnesses that was compressing my pelvic floor(i.e lower back or hamstrings). She found zero. Good so far.
Muscle Imbalances: This is where she had finally found something(s). She tested to see if there was weakness in my body, similar to the range of motion test prior. For the most part, everything was strong and functional. But to my shock, she found that I had very weak glutes, specifically a weak glute medius. These are the muscles that support the hip flexors and the pelvic floor. I am a marathon runner who does HIIT treadmill cardio 6x times a week for the last 5 years. She believes that the excessive running caused my glute med to weaken over time. She also found that I had a tight core and found several tight spots in my abdomen. I also do alot of core strengthening workouts, so she believes thats what’s caused the core tightness. These two things being out of synchronicity caused my PF to become compressed, even when I didn’t and couldn’t feel it, but it was happening. Orgasming practically broke the camels back.
External examination: Like most people in this sub, we got HF from too much orgasming without break. While I do it 2, maybe three times a day, it was adding up with my other factors. Doing a her outer exam, she felt tension in my IC and BS muscle via multiple trigger points.
Internal examination: Just like the other exam, she went up my poop shoot and confirmed the same thing. She felt tension in my IC and BS muscle and found tension in the muscle near my bladder, causing the urinary issues via trigger points.
We eventually finished the exam and spent the last 20 minutes breaking down everything while also teaching me to self massage externally. She also told me to starting strength training on my glute med with resistance bands and doing core stretching to release the tension in my abdomen, also strengthening it doing planks and the like, nothing curling my abs. The weirdest thing about this was the last thing she said, and that was to masturbate before I go see her again. Just once to clarify, but still. I’m not gonna lie, I’m kinda scared to do it, just because I don’t want to do anything that might aggravate it, but she also told me that the penis is a muscle. And like any muscle, if you don’t use it, you will lose it. I’ve got a week, so I’ll definitely ponder on it.
Anyways, the point of this post is not to flex or just say shit. I’m not saying PT is the end all cure all, especially since a minor amount of cases here are caused by freak accidents or nerve damage that even PT might not help with, but I’d highly recommend giving it a shot anyway. It could be the thing you need to get over the hump and be free from this curse. If anyone wants to ask me anything or just wants to vent, I’d be more than happy to just talk.
For the past 4–5 months, I have been dealing with a very disturbing and persistent problem affecting only the right side of my penis, which has severely impacted my mental well-being. The entire right side feels completely numb, dead, and desensitized, with almost no sensation at all, while the left side feels relatively normal. I experience constant abnormal nerve-like symptoms on the right side, including burning sensations, needle-like sharp pain, tingling, and strange uncomfortable feelings, especially around the tip/glans area. Another major symptom is that whenever my bladder becomes very full and I really need to urinate, the right side of my penis develops a strong pressure, heaviness, fullness, and mild pain with a very uncomfortable and uneasy feeling, while the left side does not experience this at all. I also do not feel anything during masturbation on the right side, as if that side is completely “dead” and unresponsive, with no pleasure or sensation whatsoever. The issue is strictly one-sided, which makes me suspect a possible nerve-related problem such as irritation, compression, or damage affecting only the right side. Urination itself is mostly normal, but these sensations and numbness persist constantly. This condition has been ongoing for months and has severely affected my mental health, making me feel like I am losing my sanity and living in constant despair, agony, and psychological suffering, and it has even led to suicidal thoughts at times. If anyone has experienced something similar or has any idea what this could be, I would really appreciate any help or guidance because I genuinely feel hopeless.
I knew all along that all I need to do to be 90% cured like so many have been before is meditate, drink bone broth, avoid seed oils, focus on the vibrations of my body, ramrod my ass with a therawand until a pelvic floor therapist can fit their entire hand up to their elbow up it, raise my operating thetan level, and smoke weed to connect with Jah. But I won't do it because I'm lazy and don't want to be helped and it's all my fault. I actually enjoy being a victim and I'm ruining everyone's vibrations because I'm demonic and I'm trying to stop people who are far more in tune with their bodies and are actually dedicated to self improvement from healing.
Flaccid penis turtled..Chat GPT says the guarding is too severe, and it is locked? Im confused what to do
*Stretching pelvic floor
My flaccid penis is very soft , sometimes it feels like there is no tissue inside. It changes to some weird shaoe sometimes on top of hourglassing. Loss of sensation, Ed. When Iam lying on my back for sometime. It engorges and sometimes look healthy. I do get retraction and turtlling too intermittently. Had this for 2 years. I didn't do anything for a long time as I was scared of Pyeronies.
I havent started any pelvic stretch or supplements yet. Tge thing is I don't have any other symptoms of pelvic floor dysfunction. I have premature ejaculation for a long time and urine dribbles. Testosterone is normal.
I did try low dose cialis for 3 months when it started but experienced some side effects, so discontinued. I am planning to start supplementing
When I read the sub , people with the same symtoms of mine have never posted about any recovery.
Any glimpse of hope for me.
unstable, weak erection. One has to clinch to thrust the penis during sex... Even though penis is not fully hard either. The root base on the left side of my penis feels alot more weaker but the right hand side of my penis the right side root feels stronger and firmer. Unstable, soft penis, having an erection while laying on my back my penis falls to the left hand side and pulses up in motion at 65% to 70 percent of hardness, without being fully erect no matter how hard I focus. I'd had this problem for a long time. I have thin stools lately which are short in length. I get gas sometimes which I confuse for taking a number two. When my penis is flaccid its smooth and rubbery, weak urine stream with a messy finish. Anybody got any ideas if this could be considered hard flaccid? i have no pain, just a spongey, penis when erect, my penis looks inflammed with an erection at times or partly erect at times. Yes, I have history with porn for the longest...but lately, I've slowed it down with porn, but I still view porn without masterbating. Is this considered hard flaccid? And does any body have the same symptoms. Thanks guys. Like to hear you input.
i know there’s probably not a lot of people on this reddit that are cured cause most of them just stop posting when they get cured or coming to the reddit . but i wanna know how many people i can find that have been cured from hf and maybe find some people who never used cialis or viagra and still got cured. i personally have not been using bloodflow stuff just nerve blend and vitamins but i do have normalish erections just unusually watery semen and a right lifted testicle and sometimes i’ll enter a state of long flaccid and kinda rarely hard flaccid now unless im super cold or something and for those people who have been cured if theres any advice
Symptoms began 2.5 years ago. HF and superficial veins bulging with purple spider veins in between. Veins get worse with gravity - standing or sitting for more than 15 seconds make them bulge out and pool with blood, only relieved by laying on my back or walking outside in the cold. Tried pelvic floor physical therapy. It helped a tiny bit, but the HF always came back 10 minutes later. Alpha blockers and muscle relaxers didn't do anything either.
After 2 years of arguing with a urologist that didn't give a shit, I finally messaged my primary care doctor and demanded a CT or MRI of the pelvis. They gave me the CT with contrast and set me up with consultation with an interventional radiologist an hour later.
He said he's pretty sure it's May-Thurner Syndrome. He wasn't too confident about anything, but that's because this is so rare in men; there just isn't enough data to say anything with certainty. He said he's done this procedure on a couple dozen men, and all of them have had at least some improvements in their symptoms.
The only treatment is a stent in the vein, which scares me. Anyone had this procedure? How did it go and what were the results?
Guérison Ligament Suspenseur Pénis
Bonjour à tous,
Je fais ce post très court, pour une seule chose : aider ceux qui pensent pouvoir guérir, à aller au bout du processus de guérison et vraiment s'en remettre
Je me suis déchiré presque complètement le ligament suspenseur et une partie des ligaments fundiformes le 01/11/25 à 14h précise, à cause d'une mauvaise utilisation d'un vacuum
Cela fait donc plus de 6 mois
Je n'ai pas réussit à m'astreindre à un repos total de la zone pendant plus d'une semaine consécutive depuis; rechutes permanentes et situation qui empire jour après jour (perte de sensation, quasi impuissance physique, impossibilité de me masturber...)
J'ai bientôt 26 ans et je peux vous dire que je ne rêve que d'une chose : MOURIR
Ou remonter le temps, mais je dois bien me résoudre; l'être humain n'en est pour le moment pas capable
Donc que faire ?
Mettre un terme à ma vie insignifiante ?
Pas tout de suite !
Plutôt créer ce post !
Après m'être gavé de vidéos de motivation, qui m'ont pas mal fait chialer, j'ai décidé que la seule et unique façon de redonner du sens à ma vie (et peut être à la vôtre) était de faire quelque chose, d'agir, peu importe que les probabilités soient contre moi (et contre vous)
"Tu ne peux pas marcher, rampes, tu ne peux pas ramper, alors penses; penses différemment !"
Ceci fait,
Je m'engage devant vous, et je vous engagent avec moi (je ne vous laisse pas le choix), à faire tout ce qui est en votre pouvoir pour améliorer la situation, et pourquoi pas GUERIR ! Soyons fous !
Nous sommes le 06/05/26, il est 06h10 (chez moi)
JE M'ENGAGE A PUTAIN DE GUERIR !!!!
Parole d'homme
Vous serez tenus au courant chaque semaine, par un post détaillé, de mes avancées et des choses que je tenterai
Je vais vous dire une chose, même moi je n'y crois pas à l'heure où j'écris ce post; mon pénis tire la gueule ce matin, comme presque tous les jours depuis la blessure, je ne ressens presque plus rien, je suis frustré à en mourir, j'ai envie de m'arracher les tripes de remords et d'en finir avec cette vie de merde qui est la mienne depuis 6 mois...
Mais..
J'ai décidé que j'allais améliorer ma situation, jusqu'à guérir complètement, quellles qu''en soient les chances, OUI !!
QUELLES QU'EN SOIENT LES CHANCES !!
Je relirai ce post et vous relirai ce post avec une douce nostalgie quand vous serez de nouveau "capable sexuellement" ET PLEINEMENT GUERIS, car oui on va le faire messieurs
JE ME DONNE. 1 AN. => 06/05/27
Jour pour jour, pas un de plus, pour revenir guérit et plus fort que jamais !
C'est ma promesse, et je veux que vous fassiez la même !
"A cœur vaillant rien d'impossible putain !"
On se revoit dans une semaine les gars, pour mon premier post de ce long voyage de guérison
Bisous