How do they know when to stop the Diamox? Do I have to get another spinal tap?
Hi everyone,
I was hospitalized due to severe headaches and blurred vision. My opening pressure was 35. I had severe swelling of my optic nerves in both eyes. Doctor determined my IIH was due to my recent weight gain and losing the weight will decrease my pressure. The goal is for me to get off the Diarrhea-from-hell meds they gave me, acetazolamide. I've been on this for 6 months at a 1000mg per day dosage and after losing around 40 of my 80lbs, I'm really looking forward to getting off these meds, or at the very least right now, decreasing it back to its original 250mg twice a day.
What is the protocol for that? Do they really have to measure my pressure again with a lumbar puncture? Is it simply just looking at my optic nerves? or is it based on body percent fat loss that determines if we have decreased dosages or can start weaning off.
Any help on what I should be asking my doctor for is appreciated.