Christian or religious moms. I need prayers, PLEASE. Carrier of a genetic disorder.
PRAYERS NEEDED! Long but please please read. I need support
I recently found out I was pregnant again, a total shock by the way! I am currently 4w5d and while I’m over the moon I’m also terrified. I carry a mutation for a “milder” form of muscular dystrophy that effects ONLY males that can range anywhere from being unaffected your entire life needing nothing at all to needing a wheelchair eventually at some point in adulthood anywhere from early adulthood to well later into life or even never and just needing other mobility devices. This disease ONLY affects males so any male I have has a 50% chance of having the deletion. I currently have two amazing, perfect sons who are thus far, by the grace of God completely unaffected and thanks to God science is finally finding medications that work at stopping progression for those who do start to get weakness ( one of the big drugs going for approval soon stopped progression all together for the entire 4 years so far the trial has been on going which is HUGE and fingers crossed that continues on into a full cure though no progression would basically be the same thing!!) obviously having 2 sons with the deletion I have met and talked to SO many men living with the same disease and every single one I’ve met has either a marriage, their own children, cool/great careers, travel, etc. whether they are a wheelchair user now as an adult or not.
I have been longing so badly for another child and longing for a daughter/sister for my boys. I have been trying to talk to my husband about ivf which can help avoid any further children being affected. My husband has been on the fence and really leaning towards not wanting a third (his feelings are fair) but, we are very fortunate in all aspects and can afford it easily. I however, absolutely LONG for another. To a point that it’s painful.
I told my husband yesterday about the baby because I needed a few days to sit with it alone. Now let me preface by saying he is an AMAZING Man, a loving husband, the best father, and a great provider. It sounded like he was leaning towards me terminating immediately due to the carrier status I have. He said this very gently but, that was the sounds of it. I understand not wanting to pass this on to another child knowingly (we didn’t know this at all until my youngest was born and we did random newborn screening) and I understand that BUT, there is still a 75% chance this baby wouldn’t have it at all and I just can’t. I want them so badly and I love this baby SO much already. If they are a female, they have a 50% chance of being a carrier (would never be effected since it only effects males) or a 50% chance of not being a carrier at all. If it’s a male they have a 50/50 shot of either having the deletion too or not at all. To me, that’s a huge chance they won’t. He is on the side that we had two boys and they did both end up with the deletion and while I completely understand that, I don’t think I’d ever been able to forgive myself and not think of the “what if it was a girl? What if it was a male that did not have the deletion?” For the rest of my life. I want to do an early gender test and then, if it is a male do the NIPT that will specifically be able to search for this deletion then go from there. My husband thinks the longer I go, the harder it will be and he’s right but, I also feel like that’s a pass straight to hell. I’m so terrified. This also feels like God heard my prayers and cries and yearning and gave this child to me and who am I to immediately “get rid of” them? That feels monstrous.
please, please pray for this child to be unaffected or a female. Please. I need so many prayers. I am so scared and hurting when I should be joyous.