My mom passed peacefully last night. Seven years after her diagnosis. I’m so happy she is finally done with this horrible desease. But I miss her so much. We made it to the finish mom. Jesus called her home.
I am 6 months out from posterior THR. Things have not been super smooth, but not terribly bad. My family said I walk funny now, and I’m working with PT to fix that.
Question: I can feel something pressing outward on my side hip muscles when I move my leg in certain ways. It kind of freaks me out - I worry it’s trying to pop out of place. But maybe it is just scar tissue; I don’t know.
Is this normal? I don’t know if everyone can feel this or do I need to tell my doctor. I’d love to hear from everyone. Thanks!
I turned 60 last November. I can’t find reasons to keep going. I need perspective from those that have already been through this part of life.
I was very active until 58, running was my passion, and then my hip gave out. I had it replaced in January. I am getting better slowly.
I am the primary care giver for both of my parents in their late 80s. My mom has advanced dementia, and we put her in hospice two months ago. My dad is so sad. And my mom is dying so slowly. Dementia is its own hell.
My husband is bipolar, and he was laid off in February. That has triggered episode after episode. He has to be the priority because I don’t want him end up in the hospital. That’s expensive and takes months to recover from. And we have not had any income all this time.
And now, my only child needs another endometriosis surgery. Her third abdominal surgery. She is keeping her chin up, but I know she is scared.
I booked and paid for an Alaskan cruise for this week that I can’t go on because of all of this. A bucket list item for me.
I am so depressed. What is the point of all of this?
Edit: Thank you to everyone posting here. I had a big cry today, called the hotline and made an appt with a therapist. The problems aren’t gone, but I have a path to follow.
When people say ‘I was walking just a few days’, that typically means they could walk carefully around their house with a walker. They don’t mean walking down the street or through the grocery store. (Maybe someone did that, but most people did not).
A few days after surgery:
Getting up from a chair is still painful.
Rolling over in bed is still painful.
All kinds of stuff still really hurts, even if you can slowly walk around your house.
Have patience. You will heal at your own speed.
Be kind to your body and let it do its thing.
Do your physical therapy.
Two weeks ago my mom had another UTI flair up and it sent her into stage 7. Before she was capable of standing so we could change her underpants and clothes, and being able to talk. Now, just a few days later, she can’t even hold her arms up, barely speaks, sleeps about 20 hours a day and so on. It happened so fast.
We signed up for hospice, which is helpful. But we also needed all new processes for handling a bed bound person who won’t even roll over or move her arms and legs at night.
We are leaning how to change her in bed with diapers. Ask her gowns are too long now, we use pajama shirts only.
She got three bed sores in the first few days. E had no idea.
Our knowledge is not keeping up with how fast this is going.
If anyone has tips on this stage, I would appreciate it.
I am in the US. Has anyone had hospice care for their LO with dementia? Mom has been in the hospital four times in six weeks. We are about to ask for hospice and want to know what to expect.
I’m a five months out and have been doing better and better, then I woke up a week ago with pain in the surgical area. I have rested and rested but it gets a little worse every day. Today it is so bad that I am limping.
Wondering how to know if this might be an infection.
Any thoughts from those who have experience infection?
My mom (advanced dementia) has been fighting off a UTI for months. She had been in and out of the hospital multiple times. She is looking sick again today. Without being morbid, if anyone has been through this, how do you know when to stop fighting it, or when do you know it is going to be what takes her out. I want to make good decisions about her care.
I am trying to log into Social Security to get my mom’s tax documents for last year. I have tried both Login.gov and IDMe, and since she hasn’t logged in for a while, they are requiring that we verify her identity.
Part of that verification requires receiving a text or phone call at the phone number in her public records.
We don’t have her old phone number (we got rid of it years ago), so we can’t get past the verification.
I’m putting this out there to hopefully save someone else the frustration we are facing.