[Discussion] Designing assistive technology for ALS — would love to hear your experience with digital access
Hi everyone!
My name is Yusuf, and I'm a co-founder of ExG Labs, an early-stage assistive technology venture started by two undergraduate students at Texas A&M University. We are not affiliated with a formal academic research program. We are at the very beginning — two students trying to make sure we are solving a real problem before we build anything.
What we are working on: a wrist-worn wearable that detects subtle muscle signals from the forearm and translates them into device commands like scroll, click, or select, for phones, laptops, and smart home systems. The goal is to give individuals with motor impairments a more reliable and intuitive way to control technology without relying on exhausting or expensive solutions like eye gaze or sip-and-puff.
We want honest input from the ALS community specifically because the progression of the condition makes the design problem harder and more urgent simultaneously. We do not want to assume what that experience looks like.
A few questions:
- What digital tasks feel most out of reach right now, and what would it mean to get those back?
- Have you tried existing assistive technology? What worked, what failed, and what made you abandon something?
- For those in earlier stages who still have some forearm or wrist movement: has anything helped you use that residual function to interact with devices?
- What would make you trust a new device enough to incorporate it into your daily life?
We are not here to pitch anything. If you are willing to share your experience in the comments, or would prefer to talk directly, you can reach us at info@exglabs.com or yusiali@tamu.edu.
Thank you for your time! Your honesty is more valuable to us than any research paper.
Yusuf Ali, ExG Labs