u/BigBlueFeatherButt

Just diagnosed with TOC after my thumb and index finger went numb for two weeks. Doing various tests and such at the moment to determine type and treatment pathway. Now various things I thought were just quirks of my body make more sense...

- my right hand gets deathly cold

- hands and arms go numb while sleeping. Right arm goes numb, roll over, left arm goes numb, roll over, repeat. This has always been my norm. Usually it's half of my hand, some nights my whole arm goes dead. One time I fell asleep with my arm up on the pillow. It went dead so when I rolled over I slapped myself in the face

- blood draws and IVs are challenging. It is challenging to find a vein and they collapse easily. It has been getting increasingly difficult lately. I've had blood draws and a CT scan with contrast cancelled because of too many failed attempts

- my neck is always tight. And I have a constant dull pain under my right collarbone. It's always there and has always been there

- my right pinky finger always cramps

- sometimes when I reach out to pick something up, a certain movement pattern makes my thumb tingle

It's funny when you realise things that have always been your norm are not actually normal. I have mentioned numb arms when sleeping to others, and they say "of course! Happens to me too. That's normal"

What they don't say is it happens to them maybe once a month. Not multiple times a night. A dull pain under my collarbone is nothing compared to the pain I have from crohns disease so it's easy to get used to it

I have lived in three houses within 1 year (chaos).

Rental 1: no heating. Drying laundry took so long they would smell a little musty. I put vinegar in the machine as a rinse aid. All was well

Rental 2: had ducted heating. The laundry always smelled terrible. Didn't matter if dried quick inside over the duct, or outside in the sun. Summer the clothes stank. Winter the clothes stank. Vinegar did not work. Toilet and sinks also got dirty super quickly. Tried deep cleaning the washing machine several times with several products. Nothing helped.

Home 1: clothes smell great! Even if dried inside. Even if they take a while to dry. Toilet is spotless.

I'm starting to think there was actually something wrong with rental 2's water. It was a 1990s build. No visible mould in the house. But literally the first wash in the new house the clothes smelled great. Is it possible there was mould in the pipes? All three houses are within 5 kilometers of each other and have the same water source

Old cracked grout in my shower was filled with clear silicon. And our "pool fence" is made of assorted discarded building materials such as pieces of old picket fencing, and house windows still in their wooden frames

Currently studying for a pilot's licence. We are instructed at the end of flight to stop the engine via idle cut off. This uses up any residual mixture in the engine which runs until the engine starves. I know this is good practice because the magnetos are powered separately so propellor movement could inadvertently restart the engine, but folks also say its bad for the residual mixture to sit still in the engine between flights and can cause backfires on start up

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If residual mixture in the engine is bad, why don't we idle cut off cars and starve the engine after each drive? Why don't modern cars backfire? Is it bad for residual mix to sit in a car engine between drives?

This is a serious question. I'll go through periods where I'm exhausted and only sometimes sh*t myself, or periods where I'm catatonic and constantly sh*t myself. I swing in and out of these seemingly at random

Dr. Gastro says option A is remission but it really doesn't seem like it. There is no definitive factor that leads to a good spell. Stelara seemed to increase the length of a good spell but never stopped the bad. And it seems to be doing less and less for me over time

I thought remission was having energy, no crazy painful cramps and no accidents

Are my expectations unrealistic? What does remission look like for you?