u/Big_Mama_80

Is it possible? I'm internally shaking constantly, my lower legs feel like ants are crawling on them, I have restless legs, and I can barely sleep. If I fall asleep, I'm jolted awake in panic. I feel like it's all I can do to keep it together from breaking down.

I've been like this for 2 days now. I stopped taking them. When will these feelings go away? Can these pills make you go crazy? 🫤

Please tell me that someone, anyone, even knows what I'm talking about here. Ever since May, I've been afflicted with attacks of rotational vertigo, violent vomiting, unable to move, walk, etc. They usually last about 2-4 hours, with 2 mini attacks of about 30 minutes in the 2 days leading up to them.

First the doctor said Ménière's. Then I had a 13 day long attack. The high pitched tinnitus was screaming in my head the entire time. I had a 4 hour episode of rotational vertigo with severe vomiting, followed by days of horrible bobbing, rocking, and swaying and like I was walking on a trampoline.

Then I was awoken in the middle of the night with my body literally buzzing from the inside out. It scared the crap out of me. I somehow managed to fall back asleep, only to open my eyes to severe rotational vertigo again. This time the vertigo lasted 18 hours.

I was sweating, I was crying, I couldn't move. I managed to take vertirosan which did stop the perfuse vomiting as long as I didn't move one muscle. If I moved, I immediately projectile vomited.

I am so ashamed to admit this, but I couldn't even get up for the toilet. I had to have my husband pack towels around me to go pee. My husband wanted to take me to the hospital, but I refused to go until it was over with because I wasn't going covered in vomit and urine.

I went to the hospital and now a neurologist says it's vestibular migraine. I do get hearing loss in my ear during the attacks, but it always returns 1-2 weeks later.

After the attacks, I feel so nervous and jittery. I have like a game buzzer feeling going off in me, I'm shaking inside, and whenever I close my eyes, I either feel like I'm falling or someone is throwing me up in the air.

It takes me days to recover and to be able to walk straight again. These attacks are freaking me out to the point that I'm starting to feel like I have no quality of life left and I have severe PTSD.

I'm not talking about being dizzy and having a headache. I'm talking about my whole body being held hostage by whatever this is.

Does anyone else relate? Does anyone else have such severe attacks?

I have severe hormonal imbalance. My progesterone is almost zero, estrogen is high. I have endometrial hyperplasia and I'm booked for a d&c and endometrial ablation.

The vertigo, vomiting, tinnitus, etc. attacks all started right before I had profuse menstrual bleeding due to the imbalance. That was 14 weeks ago. I had to be rushed to the hospital because the bleeding was that bad.

Now I haven't had a period since then, which was in May. I had another 2 vertigo vomiting attacks since then and they each follow what would be my cycle if it existed.

This recent one happened 7 days ago when I had watery pink spotting (indicating that estrogen soared), and it's still going on. I had 2 mini episodes of vertigo on two different days and the 3rd day the big attack happened, with rotational vertigo that lasted 1-2 hours and violent vomiting for 4 hours.

The reasons why I don't think it's Ménière's: I've had a lifetime of hormonal imbalance since I was 12 years old. I've had a lifetime of headaches and migraines. Since I was a teen, I've had episodes of derealization and Alice in Wonderland Syndrome. I never knew what it was though...I spent years thinking that I had a secret brain tumor that no one knew about!

Last year, I had a few months of ocular migraines. Now this year when I'm in the worst hormonal shape of my life, severe hormonal imbalance and perimenopause, these attacks have started.

After each attack, I have days and days of feeling like I'm standing on a boat, rocking, bobbing, swaying on the sea. I have a sense of internal falling over and over again, like an elevator plummeting to the bottom floor. When I walk, it's like I'm bouncing on a trampoline. I feel lightheaded and "unreal". If I go out anywhere, I have to hold onto things or I'll just fall over to one side. I feel constantly nauseous and I have this strange buzzing feeling like a cell phone on vibration in the core of my body.

This time around, I had severe photophobia and phonophobia. I made my husband go buy me a pair of sunglasses to wear in the house because my eyes hurt so bad with any light. They were dry, gritty, and burning.

And this time around, I did have a typical "migraine" headache after the vertigo and vomiting. My head also felt like a heavy cloud and my neck was sore and killing me.

The doctor is stuck on thinking this is Ménière's though, because I do have tinnitus in my ears during and after the attacks (extremely high pitched) and low frequency hearing loss in my left ear after the attacks. Here's the catch though, I have severe ETD in that ear and I have a tube placed in it. The hearing always returns too, after 1-2 weeks when the worst of the screaming inflammation dies down.

Couldn't this hearing loss simply be vestibular migraine related with the complication of the ETD? I feel like it's my eustachian tube swelling shut and causing the hearing loss, not Ménière's.

The doctor now wants to do strange Ménière's treatments on me like injecting lidocaine into my tube in my ear. If you don't know about that, it induces severe nausea and violent vertigo for at least 6 hours after the procedure to the point that you must stay in the hospital to have them "help" you through it.

I don't want this. I want vestibular migraine treatment. Am I wrong for insisting on this? I want to hear from others who truly have vestibular migraines. What would you do?

The doctor now thinks it's Ménière's Disease, even though he originally diagnosed me with Ménière's Syndrome, complicated by severe ETD. He also said that he saw evidence of a past vestibular neuritis episode.

I have my doubts, though. There's so many things for me that don't really add up to Ménière's. The big attack that kicked things off started 13 weeks ago after an intense virus that lasted quite a few weeks. The big attack was very very big indeed. Violent vertigo, violent vomiting, sweating, shaking, crying, etc.

The hearing shut off in my ETD ear, but returned completely within 2 weeks. I have a long history with headaches, migraines, derealization, and Alice in Wonderland Syndrome since I was a child.

In total, I've had 3 bigger attacks. It's always the same. It lasts 3 days, with 2 mini attacks on each day, and then the 3rd day the bigger attack. Mini attacks last about 20-30 minutes and it's dizziness where I have to sit down, but not vomit. Then the big attack lasts about 2 hours where I have vertigo and vomit.

The first big attack was 13 weeks ago.

5 weeks later, the 2nd attack.

8 weeks later (now), the 3rd attack.

The issue is that inbetween these attacks, I have this crazy sense of being unsteady on my feet. I'm bobbing, rocking, and swaying like standing on a boat on the waves. Internally, I have a sense of falling over and over again, even though I'm just sitting or laying there. And the strangest of all, internally I have a buzzing feeling as if someone is setting off the vibration function of a cell phone in my stomach.

Another interesting thing that I noticed is when I go into a cold swimming pool, and I just lean myself against a floatie and allow myself to bob on the water, then all of my symptoms (bobbing, swaying, falling, buzzing, etc.) completely disappear.

The 3rd attack that I just had, my entire family and myself was sick again with Adenovirus which is part of the herpes family. It felt eerily similar to the virus that I had 13 weeks ago.

I'm starting to think that originally I had Adenovirus, developed vestibular neuritis (the violent sweating and vomiting episode), and that flared up my vestibular migraines. The migraines went from being manageable occurrences to Ménière's like episodes. Then I got reinfected with Adeno and it made things worse again.

I read online about it, and there's evidence of herpeviruses like Adenovirus being responsible for vestibular nightmares.

The doctor gave me cortisone through my tunnel in my ETD ear, which he also placed. Now he's scheduled me for a Lidocaine injection in 3 weeks time. He says that if it's Ménière's, we should start treatment early because the early treatment makes for the most success to fend off serious hearing loss and constant episodes of vertigo.

I'm so unsure and scared, though. I know the Lidocaine can cause nausea and vertigo in itself and I'm so done with that. I don't know if it's the right choice if I'm unsure if it's truly Ménière's?

I know Lidocaine is temporary and one of the first lines of defense for Ménière's, but I feel like my symptoms fit more to vestibular neuritis. That's why I thought that I would ask here. Is the bobbing, swaying, falling, buzzing, etc. normal with Ménière's too? Anyone feel better in cold water bobbing around on floaties? Anyone have experience with Lidocaine? Any advice at all?

Thanks!

When I first entered the exam room and explained my situation, he would be the 3rd doctor to take a deep breath and tell me that he unfortunately has to tell me that he's 99% sure that I have Ménière's Disease.

I pressed the other 2 doctors to perform examinations and not just throw a blind diagnosis at me and some pills that I would vomit up anyway. Fortunately, the third time is the charm, because this doctor took me more seriously and decided to run a battery of tests.

First, he examined my ear. I told him beforehand that I have chronic Eustachian Tube Dysfunction in my left ear, and he sort of waved his hand and laughed. After he looked in it, he had a sort of puzzled look on his face. I thought he saw something seriously wrong with my ear, but he said, "Well, you certainly were telling the truth! Your eardrum is severely retracted. The negative pressure is pulling it in and trapping all this fluid behind it."

Then he insisted that I run all the standard tests like hearing, caloric, etc. When I returned to hear the results, the doctor said that I might be one of the first adults that he's recommending this treatment to for this condition, but he strongly urges me to have a tympanostomy tube put in my left ear.

None of my test results indicated any type of Ménière's Disease, only Eustachian Tube Dysfunction. He believes that my ETD is so severe that it's causing Ménière's Syndrome and that the tube should resolve that. He said that it's a very rare cause of Ménière's Syndrome, but not completely unheard of. I thought that I would share it with you all, in case it might help someone else find some answers.

I'm having the procedure done on Monday morning, and I'm actually strangely excited. I'll be over the moon if this actually solves my issues.

Going through all of this, even though it's just been a few months, has humbled me. Dealing with vestibular issues has to be one of the most scariest things in existence. It's not fun at all. If it's true, and I only have Ménière's Syndrome, I can't even pretend to imagine how difficult it is for all of you to cope every day.

When the doctor said he was 99% sure it was Ménière's Disease, my heart sank. I wondered how I would be strong enough to get through this. I have nothing but respect for all of you and what you go through! I wish you all nothing but the best, and I thank everyone for giving me support through this.

I'll update you and let you know if the tube helped! 🫶

I'm a 46 year old female diagnosed with PCOS, estrogen dominance, luteal phase defect, morbid obesity, and histamine intolerance.

Two months ago, right before my period was due, I had my first Meniere's like episode. I had 2-3 mini attacks within a few days, which were vertigo and almost vomiting that lasted 20-30 minutes. Then I had the big attack where the whole world was spinning, the tinnitus was roaring, I was sweating, and vomiting for 2 hours straight.

I went to my ENT, and he said it sounded like Meniere's because my hearing in my left ear had greatly reduced. I went back after 2 weeks and retested the hearing, and it was nearly normal again.

Then I started my period a few days later and got rushed to the hospital because I wouldn't stop bleeding. I was told that I have endometrial hyperplasia due to the hormonal imbalance of too much estrogen and too little progesterone. I'm scheduled for a dilation and currettage and an endometrial ablation.

All was going well until once again, in the week leading up to my period, I once again had the same Meniere's like episodes happen. 2 mini attacks (20-30 minutes), followed by a large one (2 hours with vomiting). Before the mini attacks, I was awakened in the middle of the night by rice crispy crackling sounds in my ear. I was so tired, though, that I ignored it and fell back asleep.

This time, my hearing was blocked a little for a few days after the big attack, but then popped right back. Now I didn't really make the connection that hormones could cause something like this, until I googled it and it said that yes indeed, hormonal imbalances are a well known cause of secondary hydrops and the fact that these attacks occurred at the same time, right before the period during the luteal phase, it is a good indication of secondary hydrops since estrogen is extremely high at this time.

Has anyone heard of this? I do have an appointment scheduled to see a specialist in the hospital in 2 weeks' time, but I just wanted to see if anyone else had this experience? Thanks!

I'm going to be 46 soon, and the last half a year or so, my periods started jumping around. I skipped one, then one came 2 weeks late, etc. I've always had heavy periods, but now they're out of control.

I went to the ER yesterday because I was on my second day of bleeding through a super tampon every 2 hours. They said that they couldn't see anything wrong with me, except that my uterine lining was a bit thicker than it should be. They sent me home and told me to make an appointment for endometrial ablation.

The third day is now coming to a close, and I'm still bleeding through a super tampon every 3 hours. So, it slowed down the tiniest bit, but I'm becoming concerned. I've had clots about the size of my palm, but I told the ER doctor that, and he didn't seem so impressed.

Has anyone else had this experience? How long can I go on bleeding like this without something serious happening? Would endometrial ablation help in this circumstance?

About 6 weeks ago, I acquired progressive bifocals. I've always worn glasses with no problems, but now that I'm in my mid 40's my vision has changed, and bifocals were recommended.

Since then, I've had 3 mini attacks and 1 very severe attack. I didn't really think that the attacks could be the result of the bifocals until I read online that bifocals can overwhelm the vestibular system in sensitive individuals, triggering them.

I am the type who is overwhelmed easily by visual triggers: I get motion sick by some video games, I get dizzy in busy environments, strobe lights make me ill, etc.

I'm thinking that I might have to return my bifocals and opt for my old normal glasses. I was wondering if anyone else had a similar situation or knows anything about this? Thanks for any advice! 🥰

Please tell me that someone else is suffering like I am. First of all, I can't sleep properly. I have mad anxiety at night, and I can only sleep in 3 hour increments before I'm up again. I feel all jacked up, wired but tired.

I'll stay awake the majority of the night in a completely depressed state, analyzing my entire life. This is every night, and it's starting to truly weigh me down.

During the day, I'm utterly exhausted. Doing just the bare minimum, like getting myself ready for the day, seems like too much.

I'm hungry all the time. Even if I just had something to eat, I'm thinking about what I'm going to have next. I'm constantly reaching for the wrong foods. I can have a whole fridge full of fruits and veg, but I'll tip the house upside down looking for a leftover bar of chocolate from one of the kids.

It's not even funny. It's like I can't say no to something sugary. My brain will be like, "You can't have that. It's not good for you." Yet, I'll be reaching for the junk food and saying, "I'll worry about that tomorrow." Always tomorrow.

The tips about filling up on protein as it will help you not feel hungry, well, it doesn't work at all for me. I will eat it, yet I still feel like I'm starving, and nothing will satisfy that itch unless it's full of carbs and/or sugar.

Is there anyone else out there like this? What worked for you to get rid of the cravings, hunger, and depression?