r/Topamax

всем привет!

девушка, 21 год, страдаю мигренью

таблетки по типу суматриптана помогают раз через раз, эксенза раньше хорошо помогала, сейчас нет, пила полгода антидепрессанты, набрала 20кг, и лучше не стало. делала различные уколы, витамины, массаж, все бесполезно

недавно невролог назначала капоризу, тоже помогала, потом нет, из последнего назначали нуртек, пила одну таблетку, помог

я парю, не Сказать чтоб прям много ~ 200 затяжек в день, хотя может и много:), связывала свои боли с вейпингом, бросила парить 22 июля, боли продолжились, но фоново, суматриптан помогал, но в этот же период выпила первую таблетку нуртека

вчера снова начала парить, так как вау эффекта не заметила

друзья, у кого был похожий опыт, поделитесь мыслями 🙏

сижу в раздумьях, бросать или не бросать, да, знаю что вредит здоровью, но пока не особо хочу бросать и все таки не заметила прямой связи вейпинга и мигрени

как у вас? делитесь, буду рада почитать

I have chronic migraine and cluster headaches and have previously tried Botox, calcium channel blockers, prednisolone, candesartan and triptans without any effect. My next step is Topiramate, which I have now taken for two weeks at 25 mg. During the first couple of days I felt very dizzy and a bit nauseous, but it was still manageable. A few days later the nausea eased, but instead I started to feel anxiety creeping in. From day six I began having a constant sensation of being on the verge of a panic attack almost all the time. I also experienced periods of feeling detached from reality or having a dreamlike feeling.

Now after two weeks the plan is to increase to 50 mg per day. The slight dizziness I had in the beginning has become much stronger and it now feels like I am drunk when I walk. At certain times I do not even dare to drive. I work as a nurse and I probably have a bit of an occupational habit of reading about medications and side effects more than I should. I am not sure if I am making the symptoms worse by worrying about them. I am especially anxious about the memory issues because my job requires me to stay sharp, and maybe that is why the anxiety gets worse.

My doctor knows about my experiences and has given me the choice to either stop the medication or continue. My main question is whether anyone has had dizziness that eventually goes away, because that is the side effect that bothers me the most right now.

I would really appreciate if anyone wants to share their experiences with this medication🩷

I have been taking Topiramate 25mg at night for a week and I have been feeling quite dizzy and nauseas as well as some pins and needles in the legs and face and so far, no reduction in Migraines. Is it Normal to feel nauseous and dizzy and will these side effects fade soon or should I stop taking this medicine

Wanted to rant in here. I feel like I was not warned about the side effects of this medication at all before being put on it for my medication-resistant depression/signs of bipolar-2 but not diagnosed.

I was on 50mg of topiramate+an anti depressant and anti anxiety before those suddenly stopped working and then my doctor way upped my topiramate to 250mg, stopped my other meds, and put me on buspirone.

Well since then I've felt like I have no memory, felt like an idiot who cant speak/make sentences and had no idea why. It doesnt help that during this time i started a new job and thought that I just became an idiot. I didnt realize topiramate can cause cognitive changes. I was also having some twitches on my hands on the 50mg, but now my pinky is almost always numb and sometimes my entire right hand and up my arm goes numb since increasing the dose. Again had no idea this could be a side effect and didnt know what was happening until recently. Doesn't help that I moved with my job so I've had to find a new doctor and couldn't get an appointment for the past 6 months, and when I just got one she could do med changes so I still cant get on a new med.

But worst of all I didnt know it could cause severe weight loss. I thought I had cancer when all the sudden I was dropping 2-5lbs a week since it didnt start until a couple months until after I upped the dose. I had to go to urgent care at a point to get blood work done. Given I needed to lose the weight, but the doctor to prescribed it knew I have a history of eating disorders, restrictive/ana, not binge!! And when i started the medication I was in a healthy place mentally with my body image. Its been very triggering not having an appetite, and I've read once you go off the medication, which I want to do because of the cognitive issues and numbness in my hands, that it can can a big temporary increase in hunger/weight before stabilizing which I know will be very triggering. I've lost over 40lbs in 6 months since the increase dosage, so if I gain that back after getting off it I know its going to trigger an ED spiral.

So basically I'm pissed lol. Also I really want to wear off it myself because I have no timeline for when I will meet with a psych to get off it because the doctor i met with couldnt discuss the meds with me for whatever reason? Also I feel like 250mg is just a really high dosage. Anyways rant over thank you if anyone reads this to the end lol.

Back in 2012, I was under a lot of stress and migraines came to visit fairly often. One of my piano students was a neurologist, though not a migraine specialist. I went to see him anyway, because I knew him, and he prescribed Topamax. It was still fairly new, and know side effects were the dislike of soda, foods, and loss of weight. I dug the weight loss, but got the stupids in midst of Anatomy and Physiology. 6 hours a day to power through that course.

My husband and I were to be married in 2013. I started to feel depressed at the beginning of that year, but put it down to family trauma. I saw a therapist who put me on an SSRI, and did she did not touch the Topamax because it was helping with my migraines.

By the time my wedding rolled around, it was the only thing I could see. Beyond that, there was nothing to live for. Even with an amazing job, loving husband and family, I hit a downward spiral. In 2014, I felt suicidal ideation. I was anxious. When I made an attempt, my family put me in the hospital mental ward.

It was a very good move, and saved my life. I was then transferred to an inpatient long-term program that added a bunch of meds that I am still on - Gabapentin, Trazadone, and the dreaded Clonipin. Then Pristique, lately. I have PRNs of Fioricet and Zofran, and my neurologist put me on Quilipta, which I think is helping, because I am pretty sure the Topamax is part of my homeostasis by now.

Getting to the point. I had a respiratory problem which triggered my acute asthma, and have been isolated in my rented room for almost two months. In thosr months I have been meditating for anxiety, and had revelation after revelation. One of them was to look up Topamax.

When I found that it can cause depression and suicidal ideation, I got so angry. Twelve years of my life… and that medication was never questioned. I never thought! So even if it causes me pain, I am GETTING OFF OF THIS DRUG.

And then, I hope, the dominos will fall, and I will be able to see life in the way I used to.

Thank you for reading this warning.

​

I'm a migraine suferrer and recently had a second bout of what we are thinking is a vestibular migraine. The dizziness still has not gone away.

This all started after a virus (possibly COVID) fall of 25. I began passing out or losing vision, and the dizziness and migraine would last days to weeks.

All tests are clear, including blood tests. MRA is being ordered.

Obviously I now have sky high anxiety and am exhausted trying to get through the day. It's become a cycle where the anxiety increases my dizziness. You all know the drill.

Rizatriptan with meloxicam has been a huge help in the migraines, and somewhat helpful for dizziness.

Doctor wants me to go on topomax, but I'm very concerned about the side effects. I love alone and am a teacher. I'm worried about the "losing words" and read that some folks get vleven more dizzy. I'm responsible for so many students each day, and the environment is already triggering to my current symptoms, but I don't know what else to take. My doctor is aware of my profession.

Any success stories or tips?

Also, I'm still not out of this dizziness episode, and wanted to start taking it once it stopped, so I can get a clear understanding if it's actually helping.

Hi everyone, I’ve been on 50mg of topamax for about 31 days, I have had HORRIBLE side effects, thoughts of SH so I messaged my doctor because I physically couldn’t handle it anymore (on topamax for migraines) my neurologist said because of my symptoms I’m able to just cold turkey and stop taking it. I’ve been reading everywhere that it’s not safe to do that, has anyone else abruptly stopped and was fine? It’s making me nervous, I’ve never had seizures or anything before

I’ve had intense symptoms such as anxiety, panic attacks, insomnia, last night I had thoughts of self harm so I messaged my neurologist as I believe it’s from the topamax and she told me to abruptly stop. I’m only on 50mg and have been on it for a little over a month, I’ve read that you’re supposed to taper off, has anyone just stopped? Had any side effects? I’m nervous to just stop

Hi I just started topamax and I’ve slowly feeling more and more crazy.
I’ve always gotten really strong side effects from meditations.
My first side effect was my face tingling or feeling like pins and needles I messaged my Neurologist and they said that it was normal.
The tingling has gotten more intense and I’ve now started feeling manic. I don’t know what to do.
I’m not sure how to express my feelings to my neurologist.
So any advice would be appreciated.

Is it possible? I'm internally shaking constantly, my lower legs feel like ants are crawling on them, I have restless legs, and I can barely sleep. If I fall asleep, I'm jolted awake in panic. I feel like it's all I can do to keep it together from breaking down.

I've been like this for 2 days now. I stopped taking them. When will these feelings go away? Can these pills make you go crazy? 🫤

Has anyone else experienced verbal outbursts that seemingly come out of nowhere while taking Topamax? I have noticed it has caused irritability and meanness for me for no reason and it is the only common denominator. I hate who I have become and don’t want to be like this. I feel completely hopeless.

Hi everyone!
I’m sorry this might be a little tmi! But I (20 F) just recently started topamax for my migraines. My neurologist started me on 25 mg but I’m slowly increasing to 100 mg. Right now I’m only at 50mg (25mg twice daily).
I’ve read all the horror story’s of this drug and, luckily, I haven’t experienced any bad side effects yet. Expect that my, typically pretty regular, period is now 10 days late. I’m not on any birth control and there’s zero chance of pregnancy so this is very odd for me.
I was just wondering if any one else experienced this and if anything helped? Both my doctor and neurologist are really hard to get an appointment with and this feels too minor to make an appointment over. I kinda just wanna know that I’m not alone in this side effect.

Hi, has anyone used just topiramate for weight loss? Did you have results? How long did it take to see weight loss results?
I was on poor man’s contrave for like 2.5 months with only losing 2 pounds. I’m hoping my dr will let me try topiramate, also any bad side effects anyone had?

Hi Reddit, how are you all doing? I’m here to ask for some advice about something I feel like I can’t handle on my own.

About 6 months ago, I started a relationship. I have BPD, which sometimes makes me react very intensely to things like my boyfriend taking a long time to reply to my messages or canceling plans.

Recently, something like that happened. My boyfriend told me he wouldn’t be able to come over because he was feeling really sick with the flu. I had a very intense episode, started self-harming, and threatened to kill myself. He was already exhausted from having to deal with situations like this multiple times, so he told me that we needed to take some time apart until I could at least get professional help.

We weren’t apart for more than two days, but I still kept my promise and went to see a psychiatrist. They prescribed me an antipsychotic (aripiprazole 10 mg) and a mood stabilizer (topiramate 100 mg). However, I’m still unsure whether I should start taking them because I’ve read that they can make you very sleepy, slow, unfocused, or even feel “stupid.” I’m scared of that affecting my relationship because now that things are good between us again, I don’t want my boyfriend to feel like he’s dating a zombie.

At the same time, I’m really scared of having another episode like the one I had and eventually losing him for good. I know he doesn’t deserve to go through these situations, and I don’t want to keep reacting this way either.

I talked to my psychiatrist about my concerns, and they lowered the aripiprazole dose to 5 mg. Even so, I’m still worried, especially about the topiramate, because I’ve heard it can cause quite a bit of tiredness and cognitive difficulties.

On the other hand, I’ve also read that some side effects can improve or even disappear once your body gets used to the medication, so I don’t know how much I should actually worry about them beforehand.

Has anyone here taken either of these medications and could share their experience? Do the sedation and cognitive side effects actually improve over time? What would you recommend doing in a situation like this?

Obviously, I’ll continue discussing this with my psychiatrist, but I’d also really like to hear from people who have been through something similar.

Thank you so much 🫂

doc just prescribed this with my lamictal for bipolar 2 rapid cycling. i rapid cycle between mania and depression. has this helped anyone??

I was put on Topamax for migraines. I have always had anxiety and have pretty much come to terms with this is just how I am and have to live with it. I started Topamax on Sunday. Within the last 48 hours I have felt this blanket calm come over me. I’m not spiraling anymore, I’m not worrying about things unnecessarily, the racing thoughts and “static” in my brain are gone, my insomnia is gone. Even the food noise has gone away. Is this a normal reaction to this medication? I’m only on 25M I didn’t even expect such a low dose to change much for my migraines.

I just recently for the past month upped my topomax to 75mg daily for migraine prevention after being on 50mg for 2 months and I usually take it at night along with my Slynd birth control. I’ve been on slynd for a year and a half but this month I’m having spotting mid cycle which I never have and I’m wondering if anyone else has experienced this with this dosing. I’ve read in the group and online that it sounds like only higher doses of topomax can affect birth control. I’m just hoping this isn’t affecting my birth control I decided to start taking the topomax in the morning and keep taking the birth control at night and see if that makes any difference. Maybe my body didn’t like all that medication absorption at once. I will double check with the pharmacist when I go in next week to pickup a refill but was curious if anyone’s experienced similar or heard different.