I’m getting a feeding tube soon, but in the meantime, what do you guys eat to minimize pain but still get in nutrition/calories? I’ve started making cream of wheat and I really like it. Any other suggestions??
I’ve wanted a tongue piercing for years now, but the only thing holding me back is the fact that I often get surgeries and procedures that require anesthesia. I assume you can’t keep the jewelry in if you are being intubated? I’m just traumatized bc during my last surgery they took out all my earrings and I lost a conch, that was over a year old, and 3 other piercings from they closing up😩.
How long does it need to heal for before you can take it out for hours at a time? I also have eds so I heal slowly.
I’m curious about others experiences with wheelchair use in the EDS community.
I’m an ambulatory wheelchair user myself, and my main reason is severe dysautonomia, especially blood pooling. I can only stand or walk for a few seconds, and can only be sitting with my legs down for a very limited amount of time. I do have pain and weakness, but those aren’t the primary drivers for me.
For those of you who use a wheelchair, full time or part time, what are the main reasons you need it? Is dysautonomia/blood pooling a big factor for you too, or is it more related to pain, joint instability, fatigue, or something else?