u/Brief_Possession_449

▲ 13 r/ADHDUK

Awful experience with ADHD 360

Hi everyone.

I wanted to share the nightmare I've been having with ADHD 360 and I'm wondering if anyone else has experienced a similar thing.

I was referred to ADHD 360 through the NHS RTC. I received my diagnosis in December last year.

Because my dad has a heart condition which I don't currently have but have a chance to inherit at some point in my life, they wanted me to go for an ECG at my doctors surgery before they would prescribe any medication.

I did this and sent a copy to them. ADHD 360 then contacted me to say there were several problems showing on the ECG so wouldn't prescribe any medication unless I saw a cardiologist.

I then phoned my doctors surgery who passed my ECG results to a cardiologist who came back saying the scan showed no problems at all. They messaged me to confirm this so I had proof for ADHD 360 and also referred to an echo I had a while back as well confirming all was well with this as well.

ADHD 360 still wouldn't accept this and said I had to see a cardiologist in person, meaning an NHS referral was needed. I spoke to the doctors again who couldn't understand why I was being made to jump through so many hoops but they submitted a referral to cardiology for me.

Cardiology have now responded declining the referral because my ECG and past echo showed no problems and because I also don't have any current problems/symptoms relating to my heart. They also went into more detail about my ECG results on this letter and mentioned the only possible cause for concern was a slightly different reading due to the leads being placed too high.

I passed this decline letter onto ADHD 360 who have now come back to me and basically said tough luck.

So 6 months on from my referral and there is no way for me to even begin trying medication. I have had so much hope of getting started on meds and trying to improve my life and now I just feel absolutely devastated.

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u/Brief_Possession_449 — 3 days ago

I need to get a handle on this

Hi everyone.

I've been lurking here for quite some time and finally plucked up the courage to make a post.

I am 99.9% certain I have vaginismus but do not have a diagnosis.

I have been unable to have sex for over 10 years now.

I could when I was younger and then it became more and more painful until it became impossible without causing awful pain and being a real struggle to even have anything enter me.

I saw doctors a few times but they made me feel stupid and as if I was imagining things and it made me feel even worse and that I couldn't continue trying to get help.

My question to everyone here is, do you think a diagnosis is essential to try and start attempting to get through this and to help make things better? Or do you think I can go straight to dilators and kegel exercises? I have been looking at dilators online but there seems to be such a variation of bundles of sizes (so I've no idea what I'd even need) and such a difference in prices too...does price make a difference?

Any advise on helping me to start navigating this battle would be greatly appreciated.

Thanks everyone for listening and for your time 😊

reddit.com
u/Brief_Possession_449 — 14 days ago