u/Brilliant-Magician10

Hi Everyone, hope you are all surviving well and working on your road to recovery. I want to encourage everyone to stay positive and on track with their recovery. I have had my ups and downs in my own recovery and wanted to share an interesting experience.

So I have been dealing with this issue for 7 months now and I have started to slowly buy into the idea that this issue maybe not 100% related to pelvic floor muscles. I know we hear it all the time that we need to take a holistic approach and to look beyond the pelvic floor. Im sure we hear other treatment options like meditation and mindfulness and some alternative treatment methods like foam rolling and massage. I have always brushed these aside as methods that people prescribe because they are generally good for your overall health when they don't know how to fix your specific issue. Well the truth is slowly sinking in that cpps maybe not caused by a specific issue. for example, i have seen 2 PTs for this, both recommended me a cookie cutter set of routine exercises that I could have researched on youtube and done them at home. why do i need to pay 150 bucks for someone to tell me to do glute bridges? When I asked them what specifically is wrong with me, they both gave generic responses like you have a tight core or you have tight hamstrings. well.. i guess i could have figured out that myself. Most PTs are just doing their jobs for a paycheck and follow a standard procedure for how to treat patients with pelvic issues. So the only solution for us is to cover the entire body and hope that by fixing every major muscle group we can solve 90% of the problem.

Well as I was in the middle of my monthly deep tissue massage my masseuse started working on my calves. I knew i had tight calfs but never thought too much about it and never realized why i needed to care. As she was digging in, i felt the pain of the tightness in my calves and instantly felt pain in my pelvic floor because ironically the painfulness of her diggin her forearm into my tight calves caused me to tense up my entire body. When i tensed up my entire body, the tension was felt prominently in the perineam. This made me think that a normal person without cpps would not feel this. They would feel a pain in their calves and that would be it. Why am i feeling pain in my pelvic floor when the pain is in my calves?

I am starting to truly believe CPPS is an entire body issue. It just so happens that we feel it in the pelvic floor because that is probably where the muscle tightness impacts us the most in daily function like sitting, peeing, pooping and sex. It probably doesn't help that there are alot of nerves in that area as well.

I have ordered a foam roller and massage ball and plan on daily rolling out my upper back neck, calves, quads and glutes daily. I hope you all take this bit of experience and try this logic in your own road to recovery. thanks all see you at the finish line. I am optimistic this issue is not permenent.

Hi All, I don't know whether to be relieved or concerned. I am leaning more towards relief. I wanted to share a interesting experience related to my CPPS issue.

I have posted about my story in the past and feel free to look into my post history but i feel like my situation is a bit different from most. My symptoms are all the usual pelvic floor/CPPS and prostatitis related. But i noticed i had an additional symptom related to nervous system. I experienced 2 cases of vasovagal syncope after masturbation's. So needless to say masterbation is a trigger and issue for me. I can't tell if my issue is CPPS causing nervous system or nervous system causing CPPS but at this point who cares and probably not important.

Now to the interesting finding. This morning as i was masterbating I felt the usual nervous system symptoms that I usually feel. Initially it was very intense and would cause vasovagal syncope but over the months (i am 7 month into this now) it has reduced sensation but i can still feel it. Its a feeling of stomache churning, slight nausea, cold sensation in feet, warm sensation in face and a pulling my my right arm. Usually i can just ignore it and masterbate through this and ejaculate despite ejaculation requiring alot of effort and then afterwards I would feel my nervous system flare up with anxiety and burning genital area. So this morning i felt the sensation but suddenly lost all libido and erection. It just died and dissappeared. I initially felt concerned, but then i felt pissed. I thought what could possibly be wrong with me after 7 months, so i kept stimulating a flaccid penis. i though if im going to damage something i dont care, rather live with permenent ED than this. Maybe 5 minutes passed and suddenly i felt the nervous system sensation go away and a slight bit of arousal , then suddenly full erection very firm and finally orgasm slightly muted but still pleasurable.

i guess i am slightly relieved and slightly concerned. Is this solid evidence that my ED is nervous system related and the possible cure is to just masterbate as much as possible and fight through it to train the brain that there is no danger?

Hello all. I have been posting for a while in this forum and have tried to stay positive and offer insight to others as well as ask questions for myself. My journey has been non linear with ups and downs. I thought I was making some progress with this issue and will breakdown my recovery timeline below.

1st month - ED entire month, urinary urgency, frequency, dull aching pain in perineum that gets worse with sitting, burning urination, urinary hesitatancy. All I can do was stretch and pray. Was also on antibiotics but just as precaution.

2nd month - ejaculated for the 1st time. Then ED resumed afterwards. able to ejaculate once a week. symptoms felt better but still painful.

3rd month - able to ejaculate once per day and then ED. Symptoms improved alot , some days i felt normal. The pain mostly went away and what is now left is nervous system issues, random coldness in feet, racing thoughts, heart beat faster, feeling lightheaded, and anxiety.

4th month - This was the best month, able to ejaculate normally 3x per day, pain almost went away completely, occasionally symptoms come back if if i edge too much or clench too hard. But in general pain dissappeared but nervous system issues persisted.

5th month- major flare up, randomly masterbating while laying down, probably clenched too hard or something idk, instant nervous system response, all the symptoms came back but at 50% intensity. I felt like i was back at square 1.

6th month- the flare up slowly subsided and I am back to ejaculating 2-3x day, its not pain i feel any more but nervous system discomfort. its almost like the cpps pain disappeared and replaced by nervous system dysfunction. What is frustrating to me is that I still experience ED but i feel like its more nervous system related. I don't feel like its pelvic tightness anymore. its almost like the libido is gone and no amount of stimulation will make it work. When it does work, i can tell that I have to clench very hard to orgasm and if I don't orgasm very quickly the nervous system will flare up and my erection will die.

Has anyone fixed this nervous system issue and if your erection/orgasms return to normal?