Autonomic/neurological issues after LDN?
I want to share my experience after trying LDN and ask anyone else has had similar experiences.
For context, the last couple years I’ve dealt with joint pain after meals that now seems to be non-Crohn’s inflammatory enteropathic Arthritis . Also gastroparesis and memory issues/brain fog, when they thought I had Crohn’s they put me on a lot of steroids, and that started flaring up stomach issues that now appear to be candida. My brain fog became much worse to the point of mental confusion and severe cognitive issues where I wouldn’t be able to understand people or form speech for 5 to 6 hours after meals.
In January, I finally started statin, and it helped immensely, but every time I stopped it, the issues would come back, so I am chronically still on this antifungal. Later in January, I also started LDN after several weeks. It actually helped my inflammatory joint pain a lot, but I was getting increasingly wired and restless, long story short I had to stop it, and almost developed a reverse tolerance to where even microdoses of it would trigger the crazy restlessness - especially after meals.
Now, even after stopping LDN I still have terrible restlessness, especially after meals. I developed really bad tachycardia and was diagnosed with pots and long Covid. I am now noticing that my restlessness symptoms are only on my right side – my right leg and my right arm, and my right head/eye. Accompanied by a right sided migraine. It feels like hyperexcitability and I feel like I’m going crazy and my eye is twitching and not knowing where to focus on whenever I discontinued ldn ( I tried it several times), I started getting these vision issues where my eye just could not focus, and I wouldn’t be able to focus my vision on anything no matter how much I tried. To be completely transparent a year ago I tried Kratom for my pain management and when discontinuing it I had the same vision issues with not being able to focus my vision.
With these restlessness symptoms now, it’s gotten so bad that sometimes it feels like epileptic, almost where I get facial twitching and tremors and involuntary jerking. And I find it very weird that this restlessness and tachycardia only started once I tried LDN, and hasn’t subsided, and now I have this right sided restlessness for the last three years I had orthostatic intolerance and orthostatic, hypertension, but never tachycardia.
I’m getting worked out with an eeg soon, and MRA , but I wanted to ask if anyone else has experienced these weird symptoms like this