u/ButterflyEmergency30

I have mild exotropia, which probably aggravates my vestibular migraines and vertigo. Just got glasses with a slight prism correction. To get used to them, do I wear them full time or several hours a day, an hour or so at the time?

I know not to wear my old glasses. New ones are lined bifocals (as progressives make my vertigo worse) but it’s been a few years since I wore lined bifocals. They also have a tint to help prevent migraines, FL41. So I’m getting used to three different things at once.

I didn’t think to ask the optometrist. Lady at the optical shop said put them on and wear them all the time. Google says an hour 3 times a day at first.

Any guidance is much appreciated. I take daily meds for migraines and vertigo.

I’m desperate. I have vestibular migraines and Menieres and take propanolol and Ubrelvy. (Plus Menieres meds that work pretty well) I have gone weeks without attacks; the meds manage the migraines well, at least when they’re due to bright sunlight or too much screen time.

At first I was fine after my knee replacement, for 6-7 weeks. (Except for bad back pain that I had a couple of steroid shots for, plus daily hydrocodone and Tylenol that I quit couple weeks ago.) Then week 7, bad vertigo attack with hours of vomiting and diarrhea. Incapacitated 2 days. Another a week later. Then shorter, less severe attacks last Saturday and Sunday. Now another today (Wednesday).

They seem more like VM than Menieres, with pain around my eyes (not sinuses) and light sensitivity.

What the heck? My docs don’t know much. I’ve read some pain meds can lead to rebound/med-induced headaches or vertigo. But I’m at a loss.

Anyone else have anything similar? My ENT has no clue. Neurologist has offered a trial of Quilipta, which I will definitely try. The vertigo leaves me pretty much nonfunctional half the time. Raising a grandchild. Luckily he’s old enough to drive. But this is bad, and I wonder if it’s somehow related to the knee surgery or pain meds.

I’m desperate. I have all of the above conditions and take proper meds and have gone months without attacks. At first I was fine after LTKR, for 6-7 weeks. (Except for bad back pain that I had a couple of steroid shots for, plus daily hydrocodone and Tylenol.) Then week 7, bad vertigo attack with hours of vomiting and diarrhea. Incapacitated 2 days. Another a week later. Then shorter, less severe attacks last Saturday and Sunday. Now another today (Wednesday).

What the heck? My docs don’t know much. Symptoms seem more like vestibular migraines than Menieres. I’ve read some pain meds can lead to rebound/med-induced headaches or vertigo. But I’m at a loss.

Anyone else have anything similar? Mine aren’t painful migraines, just vertigo and pain around my eyes; sensitive to light.

My ENT has no clue. Waiting to hear back from neurologist. This leaves me pretty much nonfunctional half the time. Raising a grandchild. Luckily he’s old enough to drive. But this is bad, and I wonder if it’s somehow related to the LTKR or meds.

The PTA insisted I had to do horizontal leg presses for my knee to get strong, and that they would not compress my spine. I told them I haven’t done them for years because of osteoporosis, stenosis, and an old herniated disk, but I did as they said, which was stupid.

Subsequently ached and iced and pain-patched and did back exercises and Tylenol. (Bad back pain in two months since TKR resulted in epidural steroid which had helped a lot) My PT knows my history and in fact has helped a lot with my back, but the PTA was so insistent about the darn leg presses (which I’m sure my regular PT prescribed) that I wonder how they’ll be when I go in next week and tell them absolutely no more of those.

Even Google agrees horizontal leg presses compress the spine and are bad for my conditions. There are ways of mitigating the impact, but I’m not inclined to tempt fate.

I think my PT will be ok with it, but I dread alienating them and being “that patient.”

I’ve had migraines since childhood. I’m much older now, and have Menieres (severe vertigo) and vestibular migraines. Eyestrain, especially time on screens, triggers attacks and I’m on multiple meds for migraines and vertigo. They help, but I notice reading and visual stimuli trigger dizziness. I find myself closing one eye or having to close both. It’s getting really bad. I don’t think I’ve ever been so discouraged.

Awhile back my ophthalmologist mentioned my binocular vision isn’t aligned. I thought one eye was dominant, but he says they alternate, but made no suggestions. I used to wear progressive bifocals, but the transition triggers vertigo. So I just use distance lenses. I can’t seem to find reading glasses that help me see better, though they used to help.

Where do I start? I’m reading about prism lenses, meds, and exercises. I’ve had vestibular rehab with a PT, but it was more about being less dizzy than aligning the eyes, and wasn’t helpful. I can’t find any Neuro optometrists. I see Neuro ophthalmologists nearby, but is that what I need? Maybe a referral from my neurologist (who treats migraines but not Menieres)

FWIW, I do have nystagmus with the Menieres. My eyes often feel as if they’re jumping around just when I’m reading.

All info is appreciated. I just found this sub.

I’m at 6 weeks and just over 100. I can make it go a little further in the shower and also with the technique in the video someone shared of moving my chair closer to the wall. But when I push it, my skin feels incredibly tight and burns, as if it’s going to split wide open (or maybe that’s the muscles, whatever, below the skin, I’m not sure). This seems to happen even when I’ve elevated and iced and am not very swollen. Putting lotion on my skin seems to help (but NOT on the incision, as the NP says not to put anything there).

Is everyone this darn tight? Progress is so slow, yet I’m regaining strength in quads etc, and leg movement is otherwise pretty good.

My back makes it worse, as I can count on unpredictable stabbing back pains during knee exercises; I’m getting a steroid shot for that in a couple days.

I really want to get the ROM, and avoid the MUA at 3 months..I just want to be done with all those procedures.

Even when I increase ROM, I have to work to maintain it; the knee seems to keep creeping back to 90. Is this normal, along with that burning tightness?

I’ve had Menieres a long time. Also have vestibular migraines and a chronic mastoid bone infection from an old shunt that I take antibiotics for. My meds manage everything surprisingly well. Bad attacks maybe 3 times a year these days.

Had a total knee replacement 5 weeks ago and it’s been rough. Worried about attacks, but none so far.

BUT: lots of stress, overdoing physically this week, and since this morning I’m having a low-pitched roaring when I tilt my head down. This is new and different from the usual constant tinnitus. Got a long nap, took Mucinex, etc, because I’m afraid this signals an attack coming. Again, my attacks now are rare but extremely bad.

It’s not the old familiar sound of fluid in the ear, but similar. More a loud roar, like an underground river, especially with downward head movement.

Any thoughts or ideas are appreciated. I’ve gotten more useful info here than from multiple doctors.

LTKR, 3 weeks and 2 days ago. Bad low back pain ever since, mostly on right side but occasionally migrates to left. Very tight muscles, I think. Sharp, stabbing pain when I move, especially leaning forward, changing from sitting, standing or lying. Worse when I’m still awhile. Helps to move around, but of course I then feel worse if I’m on my feet too long.

Pain is easily an 8, even with hydrocodone 7.5 and Tylenol 825 mg. Can’t take NSAIDS due to kidneys. I suspect muscle relaxers would help, but can’t take them with hydrocodone.

My knee pain is nothing compared to this. I’ve done natural childbirth, am ex-military, fairly tough. Pain doesn’t make me cry, but this does.

I’ve called the Nurseline but I don’t know what to ask for. Back doctor’s NP ordered PT for back to start Wednesday. I have a back brace from Amazon, and a lumbar pillow with heat and massage. I’ve tried ice. Different things help temporarily but it comes right back.

I have lax ligaments, so the muscles tend to bear the brunt of any strain or instability. Just looking for ideas or what to tell the on-call nurse, short of: “okay, I’m calling the ambulance when we hang up!”