r/BinocularVision

hey i hope everyone is doing good

(age 29)

my case is a little bit struggling i had pain around my eyes for about 9 years from now i dont have headache but just pain in my eye muscles, the pain start from the second that i open my eyes in the morning and it doesnt go away and i have photophobia. i am a hyperope i have +2 in my right eye (non dominant eye) and +1.25 in my left eye with a moderate astigmatisme, i did all the scans on my eyes my brain everything is normal (thank god) eye pressure is normal , no keratoconus, no uveitis, nothing, ii ve been living with this pain so long we never knew what was the cause , last year a doctor saw me and she did the pen push up thing and she found out that my right eye deviate away and i cant hold convergence (convergence insufficiency) any more and i had an exophoria of 12 for near objects. i did vision therapy with an orthoptist we did 10 sessions + exercices at home and at the end the convergence was good at its maximum yet the pain didnt go away no improvement and the exophoria become 8. this year and for the first time a doctor used a cycloplegic test and we fount out that i have a +4.75 in my right and +4 in my left so i thought this is the cause of all of my pain i was accommodating too much this may be the cause so when i tried the new prescription only +4 and +3.5 not full correction, it was really hard to adapt it was so strong even after one month the distance look blurry and pain was still there but like 95% of my photophobia went away. i saw the orthoptist lately and she evaluated my exophoria and she found out that it increased to 18 because plus lenses causes the eye to drift outward and if i kept adding more plus to get to my full correction my exophoria will increase and it may make my convergence harder one day.

when i cover one eye and i see with only one all the pain and photophobia disappear.

the exophoria is only at near, for far things i dont have it.

now i dont know what to do should i go with the full correction and wait until the vision becomes clear and see if the pain will disappear and what about my deviation will it increase

and thank youu all if you have anything to advice me with

TLDR: Are there any online or physical eye exercises I can do to help give my eyes some relief?

I was diagnosed with BVD 2 years ago. Went through 8 months of prisms at my first specialist and then the rest of the time at a different specialist. The second one caught my astigmatism and horizontal misalignment (I also have a vertical misalignment).

The prisms seemed to not help me all the way so I was advised to start Vision therapy. I did 5 months of it with maybe a 10% improvement. I decided to stop because we weren't getting anywhere with my treatment and it was starting to become too expensive.

My eyes seemed fine for awhile, but in the last month they started to feel sore/achey and I'm having difficulty driving again. It's like there's too much going on while driving so my eyes are constantly "moving" even if I keep them relatively straight.

I'd love to go to a different vision therapist but I just can't afford it while I'm getting treatment for some other chronic issues. So, are there any online or physical eye exercises I can do to help give my eyes some relief? The eye strain triggers bad jaw pain which then triggers migraines....and this has become a daily occurrence 😭

do i have to go see my GP? where do i start? i googled BVD in our language but theres no results. i’m so stressed out and scared. i’m autistic and don’t have any support besides my therapist so i can only ask here.

I recently got a test done concluding that I need prism glasses due to lack of binocular vision. Not much on each eye, but enough to make a difference in regard to headaches and blurry vision after reading or watching tv for too long.

I received alternative treatment after the same conclusion a year ago, which I was told was supposed to help me for life, so that I wouldn’t need glasses before my vision actually struggled. I am not cross-eyes or suffer from double vision. I am young of age, which should make a difference.

I am not ready to wear glasses yet (since my vision don’t need it, but my muscles does) and I would like to avoid glasses for a couple of years.

What can I do? Are there lenses with prism? Or other alternatives treatments? Botox? Laser?

I go to Vision Specialists of Michigan. I'm trying to find other places to get lenses/glasses made that can mostly hold up to their quality, I only have microprism (0.50) in one eye ( and some other minor stuff in my prescription, incl progressives )

So what are other places that can make a script like this? I'm going back to them the end of this year and if my script changes ( or even if it doesn't ) I don't know if I'm gonna be able to afford getting glasses directly from them. So what are the options here?

Hello! I recently found out I had bvd, alternating double vision. I'd been dealing with extreme tmj to the point my teeth feel like they are going to break. I have been to 2 optometrists and 2 ophalmologists, each and every one with different diagnosis, leaving me confused and heartbroken. I've been in so much pain. Three out of four found my bvd however none seems to know how to deal with it. They just gave me different myopia glasses, my original were -4, then -3, then -2.25, then -3.50, but only the last one found out I also have astigmatism! Only the last guy gave me some fresnel prisms for my left eye and then I got worse. I have no idea what to do, I keep ending in the ER and screaming from pain in my face and jaw. One of the doctors I saw was certified COVD, but still he didn't give me prisms! Could he just be ignorant?

I feel like I need to go to another country. Does anyone know anyone in London that can help me? I live in Greece and I'm seriously tired.

Helping my wife through her difficult health journey, see post history if curious. As we’ve chased down causes, diagnoses, and symptoms and ruled things in and out, we’re down to a handful of confirmed diagnoses, one of which is BVD. Last year she received prism lenses and did 3 months of weekly vision therapy. Both helped, then didn’t, then tons of other problems and symptoms reared up and focus switched away from BVD.

Recently things have settled down to a handful of diagnosed disorders with maybe one or two suspected still up in the air. We’re trying to chase down some of the more difficult to pinpoint symptoms to try and make sure we’re on the right treatment track.

So, curious to hear if anyone with BVD experiences severe daily fatigue, general malaise/not feeling well/feeling “poisoned,” and if anyone experiences the sensation of pressure in the head, face, bridge of nose, and/or ears? Not a squeezing pressure but an inward out pressure like those areas are being inflated like a balloon. These symptoms have been the hardest on her, as well as the hardest to attribute a cause to due to lack of comparative information and disorder overlap. Were these confirmed to be from BVD? What made them get better? What made them resolve? What was your experience like?

She recently got an updated prescription for her prisms and we’re talking about getting gung ho again about weekly in office vision therapy and daily vision work at home.

Any info is greatly appreciated, thank you!

hi everyone,

I heard that BVD could cause chronic dizziness as I have been dealing with it for some time now. i went to see a doctor for an eye test, they did a vision test slit lamp and fundus examination. Doctor said I have a slight nystagmu but everything else is good.

I was wondering if getting a BV tested require sth more specific than that or would any good doctor be able to spot it they suspected sth?

would really appreciate the guidance.

hello! basically the subject.

for the last two years i've been getting botox to treat my chronic migraines, which are probably in no small part caused by my BVD. i've had prism glasses for a few months now, and i've started to suspect that the botox may not be helping my BVD symptoms.

fwiw, i have asked my eye doc and neurologist what they thought, but neither could say for sure. i would be appreciative if anyone who's had botox could share their experiences. thanks!

edit: i've seen that botox can be used to treat strabismus, but this is not the type of BVD that i have.

I’ve been to every sort of doctor and all that’s left is a BVD specialist. It’s going to cost a lot of money. I question could this even be it if Klonopin makes all my symptoms go away?

Symptoms:

Extreme eye strain that worsens with close to tasks

Nausea, headache and dizziness if it gets really bad from too much close to work throughout the day

Light sensitivity

Fatigue

That’s it.

If I take the med, I’m 100% back to normal. Of course I ask not supposed to take them daily so I only get relief once or twice a week.

does anyone get scared in the car but only when you're driving? i have the worst fear of driving ever and i avoid it like the plague but when someone else drives me i'm totally fine. so im just scared of driving. is this the norm or are ppl with bvd scared of being in the car in general?

i really hope that this is a bvd thing because i genuinely cannot get over my fear of driving. exposure therapy doesn't help, nor do meds. and i really want to drive but i'm just so scared

Hey everyone,
Hoping to get some thoughts from people who’ve been down this road or dealt with BVD / Vestibulo-Ocular Reflex issues.
For the past few months I’ve been dealing with some really weird visual and spatial symptoms that are super hard to explain. Recently, tests showed I have a 37% inner ear (vestibular) asymmetry (looks like a post-viral thing after an EBV flare-up). But honestly, a huge chunk of what I’m feeling every day seems to come straight from my vision.
I actually ended up doing a few online screening tests for Binocular Vision Dysfunction (BVD) / eye alignment, and the results flagged that I might actually have an issue with how my eyes are working together.
Here’s what’s been going on daily:
Visual lag: My vision just feels slightly delayed or "laggy", especially when walking around, being outdoors in open space, or looking at busy environments. It’s like my brain is half a second behind what my eyes are looking at.
Feeling "off" while driving: Driving gives me this uncomfortable, floaty/detached feeling. Not full-on room-spinning vertigo, like head pressure and spatial depth feels weird.
Typos when typing: I’ve been making a ton of stupid mistakes when texting on my phone. Missing keys, hitting the wrong letters, like my thumb-eye coordination is slightly misaligned.
Red, heavy eyes & head pressure: My eyes get red, exhausted, and strained really fast. I also get frequent head pressure/headaches after looking around or being in bright places.
The weird part: When I’m sitting completely still playing fast-paced competitive PC games, my reflexes and vision are totally fine. But the second I stand up and interact with the real 3D world, the weird visual lag and spacey feeling come right back.

I recently got my diagnosis and new glasses script. I usually order my glasses from Zenni, but they only offer single vision lenses with prism. I was able to order my computer glasses (for under $60 with coupons!), but still need progressives for everday wear.

Do any of the online retailers offer progressives with prism? Or do you recommend any brick-and-mortar retailers who have particularly good prices? Money is really tight ATM.

Hi folks. After two+ years of debilitating migraines and other symptoms I got a BVD diagnoses from a neuro vision rehab center. I started wearing my new prism glasses about a week ago and my neuro symptoms have improved already! However, I am experiencing extreme neck,shoulder and back pain. The muscles, especially on my left, are so knotted and locked up I can’t turn my head.

Has this happened to anyone else? I’m assuming it’s part of the adjustment period and my body is re-aligning after years of overcompensating for my eyes. But I’m a little freaked by how much pain I’m in.

Hey everyone, I’m wondering if anyone here has had a similar experience and ended up being diagnosed with BVD.
I’ve been dealing with a strange feeling of being dizzy/lightheaded and almost like I’m drunk. It isn’t all day every day but when I am experiencing it I feel a little “off” or like my brain isn’t processing what I’m seeing correctly.
One thing I’ve really noticed is that it gets noticeably worse in grocery stores, busy places, and visually stimulating environments. Lots of aisles, lights, people, movement, etc. seem to make it much worse. I can feel relatively normal in some environments and then suddenly feel really dizzy in a busy store. Today I felt good all day and stayed away from screens and my phone and then the dizziness came randomly in the evening for no apparent reason that I can think of. I’ve been battling this for the last 3 months and have tried everything to combat it.
I recently saw a neurologist who thinks I’m dealing with migraines and started me on Topamax (topiramate). I do get headaches sometimes, and I know headaches can also be associated with BVD, but I’m not completely convinced migraines explain the dizziness and the way it gets triggered by certain visual environments (grocery stores).
I also have a history of multiple recent concussions (healed), so I’m wondering if that could have contributed to a binocular vision/eye coordination problem.
I just recently started reading about BVD and some of the symptoms sound surprisingly familiar.
For anyone diagnosed with BVD — does this sound familiar?
And how did you actually get evaluated for BVD? Was there a specific type of optometrist or specialist you went to? I’m planning to see my optometrist this week but I’m not sure if they can test me for this?
I’d really appreciate hearing from anyone who has had a similar experience or just any insight. I’m trying to figure out what direction to pursue next.