r/BinocularVision

31F recently diagnosed but I’ve had forehead wrinkles since I was 23 years old which I’m 99% sure is due to tension from undiagnosed BVD.

Will prism glasses fix this? Any recommendations to lessen them? Any massages to help the 31 years of tension? UGH

So I am on my 2nd pair of glasses that I have been consistently wearing for half a year now, but I noticed about half way through my Florida trip (where there is a lot of heat and humidity), the glasses started feeling off, like things were less clear and my eyes felt weird.

They may have been sat on by someone but they do not look visibly damaged. I am set to go to an appointment next week where I have my eye exam.

I am worried they will try to give me another pair of glasses costing me another 1,000 or more dollars.

And how long is this pattern going to repeat for?

What do you guys suggest I do? It worries me but perhaps it was some minor frame misalignment and not necessarily a new prescription, I don't know.

I am in Canada.

Hi everyone,
I’m hoping to hear from people who’ve experienced something similar.

I sustained two motor vehicle accident-related concussions (March and July 2024) and have been dealing with persistent post-concussion syndrome for a little over two years.

My ongoing symptoms have included headaches/migraines, neck pain, cognitive fatigue, light and noise sensitivity, dizziness, and visual fatigue.

Earlier assessments also documented convergence insufficiency, impaired saccades, and even nystagmus during testing. I was referred for a neuro-optometric assessment and possible vision therapy months ago, but that never ended up happening because the auto insurance company denied the assessment.

My current ongoing physio regularly includes vestibular and vision exercises.

Until this week, I had never experienced persistent double vision.

This past Saturday I had some mild nausea and a sensation of being “on a boat,” but it mostly settled, I was fine on Sunday and Monday morning.

Then on Monday afternoon , I spent about an hour actively trading stocks using multiple monitors and multiple charts. It involved constant scanning, rapid eye movements, and sustained concentration.
I felt completely normal before I started.

After about an hour, my left eye began feeling like it was “lagging.” Shortly afterward I developed binocular double vision (it disappears completely if I cover either eye), severe dizziness, nausea, and eventually vomiting.

The double vision persisted into the next day, so I went to the ER.

The ER physician observed abnormal eye movements and nystagmus during the examination.
I told them this was already documented by multiple professionals including physio and OT and IE assessments. It wasn’t an entirely new phenomenon.

They performed bloodwork, ECG, and a CT angiogram of my head and neck to rule out stroke and other emergencies. Fortunately the imaging was negative for stroke, but they couldn’t determine the exact cause and referred me to both ophthalmology and neurology.

Right now the double vision is still present whenever both eyes are open. Covering either eye eliminates it.

I’m not looking for anyone to diagnose me over Reddit. I’m simply wondering:

Has anyone else developed new binocular double vision years after their concussion, rather than immediately after the injury?

Did anyone have symptoms that were triggered by visually demanding tasks like multiple monitors, gaming, coding, or trading?

If you had something similar, what was the eventual diagnosis? (decompensated convergence insufficiency, cranial nerve palsy, vestibular issue, something else?)

Did it improve over time?

If vision therapy, prism lenses, or neuro-optometry helped, what kind of timeline did you experience?

I’m honestly pretty discouraged because this feels like a major setback after two years of rehabilitation, but I’m hoping to hear from people who’ve been through something similar.

Thanks in advance.

i just got my first pair of glasses Friday. they felt great Friday Saturday and Sunday, starting Monday Tuesday and today i feel like i have to put in focus on text to keep it from burring and going back to a double image.

IDK if this it part of the adjustment period or if i need to go back and have my RX adjusted?
seeking any advice or insight i can get.

Anyone think they had BVD but ended up being dry eye disease? I went and got tested for BVD this past week, couldn’t figure out a prism that cleared my blurry vision. Dr thinks dry eye disease is causing my problems or I have that problem and also need prism glasses.

Gave me prescription drops and to come back in 4 weeks to see how things are. Wish this could be figured out already my wallet is running dry 😭

I have mild exotropia, which probably aggravates my vestibular migraines and vertigo. Just got glasses with a slight prism correction. To get used to them, do I wear them full time or several hours a day, an hour or so at the time?

I know not to wear my old glasses. New ones are lined bifocals (as progressives make my vertigo worse) but it’s been a few years since I wore lined bifocals. They also have a tint to help prevent migraines, FL41. So I’m getting used to three different things at once.

I didn’t think to ask the optometrist. Lady at the optical shop said put them on and wear them all the time. Google says an hour 3 times a day at first.

Any guidance is much appreciated. I take daily meds for migraines and vertigo.

I’ve had 20/20 vision my whole life with my yearly eye doctor visit only revealing that I have a mild astigmatism and that my near vision may someday deteriorate to the point of needing reading glasses, but otherwise I don’t wear glasses or any other vision correctors. That said this past year I’ve felt like my vision is sort of… off? It’s so hard to explain. It feels like I’m seeing double but I’m not actually seeing double if that makes sense. I can focus on an object and see fines details. I can read fine print without issue. And yet it constantly feels as if the edges are transparent in one eye, like the image from each eye isn’t lining up properly, even though it objectively is. I realize that sounds insane but I can’t think of how else to describe it. Almost like my brain is struggling to keep the image from each eye overlapped, like it’s just barely able to accomplish it?

I realize going on Reddit for things like this can lead to a spiral of health anxiety but I’m genuinely curious if this is something people with binoculars vision disorders experience or if maybe I just somehow got hyper aware and fixated on vision and it’s always been like this. Has anyone felt similar to this before?

To those who tried a prescription and had all the symptoms go away... but then they all came back, what did you find out was the solution for you?

I have done 24 weeks of vision therapy, tried four different prescrptions, but only was fully cured of my symptoms temporarily on my first prescription.

I'm planning to see an opthalmologist soon and currently making a list of symptoms that I may have experience without knowing what it is. I have myopia with astigmatism on both of my eyes and my main issue is eye right pain/strain and migraines with aura(undiagnosed for now due to possible causes of vision and balance issues)

My mother has a history of migraines and a lot of medical history that I'm not familiar with, so me and my GP are trying to figure out which causes these symptoms. Unfortunately I am only able to work part time and since I'm living in a different city free public health care doesn't cover non locals or residents and all my medical fees are paid fully cash without insurance.

Back to the topic, It's been years I've been experiencing discomfort with looking at anything with patterns(I used to be a animation student before dropping out) and this has been interfering my daily life, anything with lines, vertical or horizontal stripes, checker, nailhead and pretty much anything that will make my eye hurt, both eyes or one close eye in either, and I also did the thumb test you see on tiktok where you close one eye and see changes if one eye sight makes your thumb look far which did, my right eye sight makes my sight uneven and far.

My optometrist did the basic tests but didn't find anything and instead got told to came back after 6 months so I decided to take an opthalmologist as a second opinion instead of going back to my optometrist.

And so far these are my symptoms:

-left or right eye migraine -tearing in one eye -migraine with aura -blinking star vision when in bright or outdoor light -balance issue when sight is blocked or disoriented. Like bumping into a door way, dizzy, or sudden blurriness that last seconds. -My right sight makes objects look far or distance when my left eye is closed. -patterns gives me discomfort and eye strain

If you have experience any of this symptoms, any tips or advice is welcome. Thanks in advance!!

I've been diagnosed with astigmatism for several years now and my contact lenses are supposed to correct it . . . but I scored 55 on the BVD screening questionnaire . . . and I just don't know how the astigmatism relates to BVD . . . does one cause the other? Are they basically two versions of the same thing?

Somewhere I read that surgery is the last resort for BVD therapy. Have someone tried it?

after 10 years of incorrect diagnosises and treatment plans and 3 years of vision therapy. i’ve finally started to get stereo vision. it’s not perfect by any means but things feel clearer, more 3D, more spacious, and more stable. even regularly enjoying parallax. i’ve also had moments where egocentric awareness is happening to me as opposed to me trying to induce it manually- life feels more real. i’ve felt muscle tension that i didn’t even notice i was holding release. along with feelings of awe i’ve felt feelings of ease.

there is still work to be done but now i see the end goal. i feel so lucky.

I have something that looks like nystagmus but was told is “spasm of near reflex.” I get double vision and vision going out of focus most of the day. It’s noticably worse at times when I think I feel other migraine symptoms, like painless pressure throbbing in head, dizziness and hot flashes. It started in March, went away for about a month after I got new adjusted glasses, but then came back during what I felt was a migraine and hasn’t disappeared since. We have been trying to treat with migraine meds which isn’t doing much yet. I just want to be able to see clearly again. My doctor doesn’t know what else to do other than refer me to Mayo Clinic.

I have been going to Vivid Visions for a couple of years now but I hate that every time I go the doctor pressures me for a “video review” for his TikTok. This last time I went he said he was going to use my test scores in a video and it bugged me a bit. It feels like he’s trying to be an influencer more than a physician. I get wanting to spread awareness but if your patient says no the first time to a TikTok testimonial, then asking them every time (multiple times throughout the appointment) for a video is annoying and uncomfortable. Are there any other doctors in SoCal I can go to who work with prisms and BVD?

Ive been wearing prism lenses for 4 months now. I can see great in them and I no longer get headaches or eye strain. But the dizziness is still there. Particularly when I go outside or I'm in dizzy places. Does this mean there is a problem with my prisms?

I can’t tell any difference besides being able to see better. Things both up close and far away still are splitting vertically after a few moments of holding focus. I still feel slightly unsteady/swaying and foggy in my head. I’ll give them some time because I don’t have any other options but this is frustrating. I don’t want to get stuck in the loop of going back to the specialist every three weeks, then being without glasses for a while when they send them out to adjust stuff. I was afraid this would happen 😭

I have been experiencing double vision for about six years now and even have an eye miss alignment and doctors really haven’t really done anything for me at all for the past six years until recently because I kept bugging. I finally got referred to a specialist who checked my eye, and it doesn’t turn all the way out the way it should, and he referred me to have strabismus surgery about four hours away. My appointment to be seen as it until October. And I don’t know how long it will be until I have my surgery, but I’m just super happy that something finally happened and I’m really excited for what the future has. I want to tell anybody experiencing similar things with no answers to keep pushing for answers, and to never give up.

Hello, 45 year old male. Prescription eyeglasses and astigmatism since 3rd grade.

Today at work while waiting on a customer, I suddenly felt off balance.

I noticed my eyes felt as if they were crossing with slight double vision.

It instantly caused panic. I walked to the back room to check my blood sugar. (I have hypoglycemia at times.) Glucose was perfect.

Within 10 to 15 seconds the vision issue was over.

I stand at a counter and look up items in a retail store on a computer.

I hadn't been at work more than 30 minutes. I work their part time.

I don't spend alot of time staring at computers.

I had no other symptoms like headache, numbness, confusion etc.

Just the vision issue.

I am due for a new Prescription for my eyeglasses and my appointment is July 8th.

2 years ago I was told I would need bifocals or progressive lenses by my next Prescription.

Mostly because reading up close has gotten worse.

I had this happen one time before maybe 6 to 8 months ago while at home on the phone scrolling.

It was shorter than 10 seconds.

I chalked it up to being on the phone for some time.

I have issues seeing certain patterns.

Tight plaid shirts, black and white small tile floors, black background and white letters. Ive had this for years. I dont process these well.

I apologize if I am in the wrong community. I mean no disrespect. Thanks for reading.

New to BVD and have an appointment next week. Wondering with the original prism glasses you receive how often did you have to get them changed before you were able to stabilize? I don’t have insurance and right now looking at about 1k+ and worried I won’t be able to afford many changes. Looking to get insight on people’s stories with them.