u/Charlottethevet

Hello everyone.

I am currently awaiting my ENT referral and my GPs highly suspect meniers disease. I am on betahistine 16mg three times daily.

However, I have noticed that occasionally my hearing drops out on the right side?

I can be in the middle of a conversation with someone, or tilting my head to the side when at work to see something better, or even just doing my vestibular rehab exercises and it's like someone has found the volume knob and twisted it down,so my hearing just sort of vanishes for a few seconds....I usually get ear fullness at the same time,but sometimes not?

I am generally very good at taking my meds, but occasionally I can be late due to my job (vet surgeon) and I've noticed the incidence increases with this.

Does this happen to anyone else?

Thanks guys ☺️

had it placed because of erratic and heavy bleeding since I weaned my daughter 2 years ago. Which, to be fair it has helped...BUT i have suddenly piled on the weight?! I am super hungry on it but I have been careful not to over eat and stick to my usual diet.

bas this happened to anyone else ? is this temporary water retention possibly?

Help!

Does this happen to anyone else?!

Its like I'm stressing the nerves so suddenly, just after or during my Vestibular exercises (Focusing on the an x on the wsll and nodding or shaking head), I suddenly get tinnitus. Can be high pitched or pulsatile, as well as ear pressure, particularly on the side which is deemed to be causing the problem (drs and physio have said they think its vestibular neuritis.

I find it very unsettling!

However....im towards the end of week 2 of 4x daily exercises....and i am starting to notice I am having better days a lot of the time! Hooray!

Does this happen to anyone else?!

Its like I'm stressing the nerves so suddenly, just after or during my Vestibular exercises (Focusing on the an x on the wsll and nodding or shaking head), I suddenly get tinnitus. Can be high pitched or pulsatile, as well as ear pressure, particularly on the side which is deemed to be causing the problem (drs and physio have said they think its vestibular neuritis.

I find it very unsettling!

However....im towards the end of week 2 of 4x daily exercises....and i am starting to notice I am having better days a lot of the time! Hooray!

I have started my rehabilitation today. Think I may havr pushed too hard and feel very very dizzy and nauseous post 3 sessions - trying hard to convince myself to go for the 4th...might scale it back a little!

I have mostly eye movements to do, focusing on a letter on paper on a plain wall, shaking head up and down and side to side, then bringing it close to my nose nad back out again... might have to start with a few seconds and build up to a minute. I managed about 5 consecutive seconds with each, then a short breather to let the symptoms settle then start again until my 60 second timer runs out.... but I think that was too much initially!

Im guessing it is supposed to feel worse before better tho? x

Has anyone recovered from long term vestibular neuritis and been able to get on with normal life as if nothing ever happened, since?

I have had vestibular neuritis/neuronitis for the last 6 months post viral disease.

I was given prochloroperazine which I think was sedating my vestibular system instead of allowing it to readjust. on Betahistines now to try and speed recovery. I am starting Vestibular physiotherapy tomorrow.

i haven't been able to drive for months and am missing out on so much with my 2 young kids. Pretty depressed im afraid.

Please give me some hope. X

hi all.

Had a vertigo attack during a viral battering from a chest infection and both my kids having chicken pox and viral tonsilitis 😅 This was in January.

I was given prochloroperazine for the first 3-5 days, but was still struggling to function at work. So my drs prescribed me more to take when needed. I was struggling to drive so they said to use it before journeys, and at work when im operating surgically...so I was still taking it several times a week just once a day or so....but I think this had prevented my vestibular system from correcting itself and adapting to the damage.

I saw a different dr last week, who has taken me off the prochloroperazine and placed me betahistine to aid blood flow to my inner ear which, from what i read, should aid in my recovery as I do vestibular exercises and get on with my day doing usual activities.

has anyone else had experience with this? Can I still recover and adapt 6 months on after having my vestibular system suppressed for so long?

x

Hello,

As the title says- has anyone else experienced this? I seem to feel great first few hours post the tablet and then start getting the spinning again by about hour 3.5-6, so have taken the dose an hour early to try and combat this?

I was placed on it earlier this week as a trial to see if it would significantly help my vertigo I have been struggling with for 6 months. I am waiting for referral to ENT, but drs at my practice (uk) suspect it is menieres x

Thanks in advance x

Hi all.

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I have had vertigo since January. It seems to settle for a week or so....I will be able to drive and have a normal life....then it just hits again and disables me.

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I have 2 young children and a job thay requires me to be moving and on my feet all day. It has been a nightmare.

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my GP has been giving me prochloroperazine and ive been sent to check my hearing- which was fine. 2 courses of antibiotics also trialed..but here we are.

my referal to Vestibular clinic may take 5 months and Im so stressed.

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Could this be vestibular migranes one on top of the other? I should also mention i ahve been having super irregular menstrual bleeding and for the first time around oct- dec last year , just befire this all cracked off, I started getting migranes on the tiht side of my face a week before bleeding. these have all stopped...and now im DIZZY and fatigued.

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on 25mg amitryptaline for IBS and have been for 10 years, alongside lansoprazole and cerazette (progesterone only pill)

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have any of you successfully got your drs to trial migrane drugs to see if this makes a difference? like triptans?

Hi all.

34 year old female.

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I have been treated for what we thpught was vestibular neuritis for the last 6 months, however...in those last 6 months I have been having supwr irregular periods. Since I have had a break from bleeding for the last 43 days my symptoms improved significantly...started bleeding again a few days ago and its coming back. So now my Dr and I are considering this might be vestibular mugranes associated with my erratic hormones (on cerazette at the moment since the birth of my daughter 3 years ago....bleeding has been crazy ever since! despite having been on cerazette befire having kids with much success!)

Before the vestibular migranes in was starting to have more typical migrane symptoms right before ky period, which was new to me.

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In summary, im having a Mirena IUD fitted on Monday....has anyone seen a decrease in symptoms since having one placed?

Had anyone else experienced this?

I also have fullness and occassional tinnitus in my affected side, but my main issue is constsnt dizziness fir 5 months and an inability ro drove without being horribly sick!

My dr had put me on antibiotics incase its been caused by a chronic otitis media and is sending me for hearing tests next week.

I have 2 young children and we have been stuck in my village for months. I can't take them anywhere, or do anything out of the 3 mile radius.

I feel like im trapped and letting them down. I can't go and see my sister and how new baby...my parents.

everything starts to spin and I get horribly nauseous aftwr just a few minutes driving.

Has anyone got any tips, tricks or medications they have used that have helped them overcome this. Im losing my ever loving mind x

As the title says. I was on cerazette for about 8 years and never had a period with it, felt great. I had my last baby 3 years ago, and stopped breast feeding her at 14 months. Since then, whilst on cerazette, I have been bleeding heavily with only a few days break between periods. It had been a nightmare. I work as a vet and on 2 occasions now have bled through my scrubs during consults with my clients.

Constsnt PMS. Constant cramps, period diarrhoea and unpredictable bleeding. It is becoming unmanageable.

I had a Mirena for 5 years, and found it suited me really well, no periods after irregular bleeding for a month or so after getting it.

Has anyone had one after having children? Does insertion hurt less?

Did you find, although your hormonal landscape had changed, it suited you well?

Thank you in advance x