r/Mirena

I had my Mirena 16 days ago during a laparoscopy as treatment for stage 4 endometriosis. But now that I just want to start walking around my living room I noticed that the cramps are worse the days I'm more "active" than when I spend most of the day in bed. I already went to the doctor and the IUD is well collocated. I just don't know what to do, painkillers are not helpful enough and I feel like I'm losing my mind cause sometimes I even get nauseous with the pain.

I’ve been with my partner (27 F) for only a few months.

A couple of weeks ago, she had her IUD removed.
This is something she had been talking about doing since the start of our relationship. From my understanding, the device was starting to show signs that it was at the end of its life.

Post removal, she is constantly fatigued, which I understand can be attributed to a multitude of factors including volume of blood loss, poor sleep, and overall change in hormones. She’s had her period twice in the past two weeks.

She is also now at her wits end with her job; she is ready to resign in the coming weeks and change industries all together. Earlier in our relationship, she spoke about her desire to transition into a specific job in a completely different field which would allow her to utilize her bachelor’s degree that she acquired a few years ago. This timeline was initially to make that change in 2027.

Currently, she has zero libido and sexual desire. Prior to removal, she had a remarkably high sex drive and wanted sex 5-7 times/week. Physical intimacy now consists of cuddling, hugs, and hand holding.

It just seems like she’s going through a lot, and I’m trying to not automatically assume our connection has weakened or she’s not as interested anymore. (Yes, I’m in therapy). I’ve asked how I can support her and her response is usually something along the lines of she’s, “Fine.” I’ve simply resolved to try to meet her with as much patience & understanding as possible.

TLDR: I’ve noticed changes in my partner (new relationship) including low energy, absence of sex drive, poor sleep, irregular periods, and possible increased irritability. What changes did you observe in your life after birth control cessation?

I got a myomectomy in 2020 and had 3 huge fibroids removed (9cm,6cm and 3 cm).End of April this year I found out that I had grown 8 fibroids all about 2cm-3cm.Got on primolut on May cos I wanted a break from my periods had bleeding after the dose ended beginning of May..While still bleeding I got mirena cos I was told it would ease my heavy periods,it expelled in 10 days and the bleeding lasted for 20 days.So my next period was due yesterday but I didn't think it would come but it did and it is the worst period I have ever had in my period.I thought I had bad periods but this!!I am talking filling a maxi pad in a minute after sneezing.Huge clots like I have never seen(I have experienced pretty terrible periods cos of my fibroids)I am passing huge huge clots every minutes I am even force to use clothing cos a pad simply isn't helping.Is this normal for the period after mirena?

I have severe adenomyosis with a significantly enlarged uterus. My doctor recommended that I have a Mirena IUD inserted.Since having it inserted, I’ve had constant breast tenderness and swelling, and I’ve been bleeding continuously for a month.
Has anyone else had a similar experience?
I’ve read many posts online from people who developed breast lumps after getting the Mirena .However, my doctor says the IUD is not the cause. Has anyone experienced this or been told something similar?

Hi!

I put in my Mirena 20mg/day about a week ago to help with painful periods and heavy bleeding. The process was not very painful and I have been getting on just fine the first days managing it with over the counter painkillers. I have also stopped my bleeding (i put it in during my period). However, I have noticed extreme anxiety. I am prone to anxiety and depression, and the last three days my anxiety has been skyhigh and manifesting with physical symptoms, such as heart palpations, globus sensations, and shakiness throughout the body. I also have some nausea.

Did anyone else react with this strong anxiety right after putting it in? Did it pass or should I get it removed instantly? In how many weeks did it settle down if you also noticed extreme anxiety?

Please help me ease my mind, I would love to keep it in since copper iud does not seem to be a great idea since I already get period cramps making me faint.

Has anyone else had such a bad time with the Mirena? I got it 10 months ago and I have had nearly daily horrible stabbing cramps. I started on progestagen and had a hysteroscopy to check it - it’s literally textbook perfect and it’s been torturing me all this time.

I keep waiting to adjust to it since everyone touts it as the best help for endo but I can’t take it anymore and I feel hopeless - is there any other birth control that would help? Why is my body taking it SO badly?

I'm trying to do some detective work, because my doctor is being pretty dismissive.

For those of you who have experienced a crash after removal, how long did it last?

I'm 6.5 weeks post removal after having it for 4 months, and while I felt amazing in the first 1-2 weeks, everything hit the proverbial fan at that point and I've had varying degrees of fatigue, nausea and vomiting since that I just can't shake.

Doctors solution was to shrug her shoulders and prescribe zofran.

I started my second period since removal yesterday, and while in my 30-odd years of having periods, I've never once vomited. Now I seem to be vomiting every period.

Almost 2 months post removal feels like it's beyond just hormonal. Is this my life now? Or, is it possible Im still in the adjustment period, and it will settle soon?

I need some hope and reassurance that im not dying

*Side note: I'm celebate, so not pregnant.*

Had my IUD inserted beginning of June and the bleeding just hasn’t stopped! It’s been almost a month.
For anyone who had a similar experience, how long did that phase last before you no longer had your periods?
I know they say it can take 3-6 months and it varies for everyone, but just curious what others experiences have been like.

I had the coil inserted mid March this year. On May 16th I had the absolute worst panic attack and genuinely thought I was dying. I went to A&E three days in a row had ecgs, blood tests and a chest x ray and was told I was medically fine.

Since the first panic attack I have been in a constant state of anxiety with physical symptoms such as heart palpitations, tight chest, shortness of breath and adrenaline dumps/panic attacks.

I have always been an anxious person but never to this extent. I’m getting the coil taken out next week as I wondered if it could be from that as nothing else in my life changed but I was told by a nurse there is absolutely no way it could cause that?

Has anybody else experienced anything similar?

I had a Mirena IUD inserted at my endo specialist's clinic the last week of May and have been experiencing negative symptoms ever since. I had a brief period of relief on June 23rd, and chose to have intercourse for the first time since insertion, but the next day I started bleeding again and experiencing intense cramping that still won't go down no matter how many pain management strategies I try. Along with the cramping, I've felt an intense urge/feeling of needing to pull a tampon out, but I have not been able to use tampons due to pain and discomfort since getting the IUD. I hadn't been able to feel the strings until last week, when I could feel them about 2cm into my vaginal canal. I went to my family doctor with these concerns and got an ultrasound done to check the position of my IUD, and they found that the IUD is very low in my uterus (and I have a large cyst on my ovary... which they said the IUD would prevent).

My endo specialist's PA said that it wasn't necessary to remove but recommended that I get it replaced. I have never had success taking oral BC because I'm way too forgetful and can't remember to take them consistently, leading to an unplanned pregnancy a couple years ago that had to be terminated, and this clinic doesn't believe in any other BC as an endo management strategy (no nuvaring, implant, etc.)

Should I get a new IUD or keep the old one? Mine got rid of my hormonal acne that I always get on my chin, and I didn't have as many of the negative symptoms I was expecting (no weight gain or water retention, mood stayed stable unlike when I was on the pill, and my brain fog wasn't as bad). Has anyone had success with a replacement staying in place?

I don't want to have to go back to getting a period, and I was so hopeful that the IUD would work for me because the bleeding stopped for a week before the day I think the IUD moved.

Side note: My family doctor was surprised that I was given a Mirena considering how petite I am... could this be a factor in why the IUD moved?

Hi,

I'm curious to know if anyone else experiences/has experienced permanent changes in their body after getting the hormonal IUD, even years after having it removed?

After getting the mirena IUD (almost 11 years ago) I got lots of hormonal acne, a lot of sleep problems and I've basically woken up fatigued everyday since then. Feels like there's a lot of chronic stress in my system. I did get it removed almost 9 years ago, but all the symptoms are still there (although sleep has improved, but it's still tricky). I know cortisol levels are higher in women with mirena IUD (as per a study they did), but I would've hoped that my symptoms would disappear after having it removed.

I'm wondering if anyone has experienced this as well and if anything helped to get the body back to baseline?

Hey all , anyone else have theirs inserted the first week of June? I'm coming up on a month. The first 2 weeks I didn't bleed at all. I actually started my period on schedule but have not stopped bleeding. It's down to a very light flow. I can use a panty liner and I only see blood if I wipe.

I'm very over it already but know we have to give it time. I haven't been able to touch my partner in the last 2 weeks and it's driving me insane. When I feel like the bleeding will stop , I get a good 24 hours and then it's back. Hopefully it stops soon. If it doesn't I will get it removed during my BiSalp surgery in August. I truly can't do this daily.

Wanted to start a thread so we could keep up with each other and if it gets better in the next 3-6 months

Hi all! I had a Mirena placed in February after my excision for endometriosis. They said it would help slow new endometriosis growth.

Now that my body has fully settled into the IUD (6 months), I’m more miserable than before.

I have PCOS, endometriosis and adenomyosis. I have symptoms from those I already struggle with and I feel the IUD is exacerbating them!

I’m so fatigued and exhausted 24/7, mood swings like crazy, worse depression, constant spotting, cramping worse than before, nausea, acne etc.

But the WORST of it is that I’ve gained 10lbs. I’ve been trying to lose weight for the last 2 months. I’ve been eating healthy, working out for at least 1 hour a day. I’m pretty active in general because I have farm animals and 3 kiddos. And yet I’ve GAINED 10lbs! There’s no way?!

I feel like a lot of it is water weight, certain parts of my body feel bloated/swollen.

Has anyone had this experience? I have it scheduled to be taken out this month to see if it improves my symptoms.

I need to know if this has happened to anyone else.

Exactly 3 years into my Mirena- I find out I’m 5 weeks pregnant with the Mirena intact and in-place. I ran to the obgyn and they removed it. I have had some spotting and cramping but I’m not sure what to expect here. My ob basically said she’s never seen this happen??

This will be my 2nd… not my first rodeo but I am a little nervous this time.

i got Mirena inserted at the end of june, and today i started feeling very weird. I did not sleep well, i am tired all the time, brain fog and i don't feel like doing anything. I take escitalopram to ocd/anxiety, just so you know. Could all that be from the mirena or is all of these just post period symptoms? I've tried different types of birth control pills before, they have had me like a monster, now i'm afraid that this iud will do the same to me. I just need some support from some people who have the same situation.

I just got an iud (Kyleena) 3 weeks ago and i have this weird tension in my pelvis, like there is a tampon in the wrong spot or like air bubbles in my vagina.. (sorry tmi)

Does anyone else have this experience in the first few weeks? And how long did it take before it went away? (My iud is in the right place!)..

I’ve had mine for 5 years, I can kinda feel where I am in my cycle by paying attention to when I cramp and my discharge
I don’t have periods except maybe once a year and it’s light spotting for 3 days.
Here lately I’ve been really digging on the side affects
And I’m 24… I rarely ever have a drive like that and now I’m wondering if any other women have noticed a decrease in desire with their iud..

I got mine when I was in absent from sex and in an abusive relationship so here lately I’ve really been paying more attention to the side effects I may be experiencing

Hi! So I went yesterday 6/30 to my first ever annual pap-smear (F21). My doctor did my pelvic exam and explained that she couldn’t locate my IUD strings. She did my pap-smear, had me move around, pushed on my belly and rechecked for them but couldn’t feel them anywhere. She reassured me that they’re probably just curled up into my cervix, and to use another form of birth control until she can confirm it’s in place. However they didn’t schedule an ultrasound to locate my IUD until the end of next month 7/30. Should I be more concerned about the location of my IUD? I had it inserted at my six week checkup after having my son this past September, he’s my first child. I’ve heard that it’s unlikely but IUD’s can migrate and that just seems like something they would want to schedule with more urgency. I also explained to my doctor that I’ve been having random heavy bleeding and cramps but previously when I had my first IUD before my pregnancy, I never bled. She assured me that every IUD can be different, which makes sense. I’m just worried that it might be related to me not being able to find my strings. I guess my question is should I be trying to find another appointment or is it completely reasonable to wait that long? I understand that the office can be very busy.