Sjogrens Diagnosis?
So, I've had neuropathic symptoms, weird balance stuff, sexual dysfunction, lightheadedness, fluctuating dry eyes, dry mouth, a really high ANA of one to 2,560 twice on lab testing, three mildly elevated SSBs that were positive SSBs, a positive lip biopsy. Two polyclonal gammopathies. I have had my symptoms for two years now. Still no real diagnosis or treatment plan other than take gabapentin if it keeps you up at night. But yeah, waxing and waning balance and like burning symptoms, waxing and waning dry eyes, dry mouth, waxing and waning lightheadedness. Everything else been pretty much normal so far. See, saw two other rheumatologists before, but I moved, couldn't follow up with them, but both of them said they weren't gonna start any immune modulating treatment yet. I recently got the positive lip biopsy. The third one I'm gonna be seeing's probably, I moved now, so that she's gonna be like my home base one. And I have a neuromuscular neurologist now, and her and my PCP are all in that academic medical center. I'm hoping when I see her in September that she'll finally diagnose me and start something, or at least tell me what the fuck's going on, if it all connects. All my other doctors right now are saying they think it's autoimmune. What do y’all think people that have been diagnosed with it, do you think I have Sjogren’s? Schirmers and salivary Flow are normal. They’ve ruled a lot of other stuff out. You know I’ve had MRIs of my entire spine so they don’t think it’s some kind of mechanical spine compression. They’ve done a bunch of metabolic blood work A1c fasting glucose. One rheumatologist did muscle enzymes check for that. They took MRI of my brain and it didn’t show anything. My neurologist thinks I have small fiber neuropathy and likely some mild dysautonomia. I also get little bouts of hives occasionally when I get hot sometimes. I just wanted to get the opinion on this subreddit people who have gone through this too. I seem to be more of a neuro Sjogren’s presentation. I’m a little worried. Hopefully they can diagnose me and treat me in some capacity because I have a very physical job. Luckily for the most part majority of my symptoms have been mild to moderate, and I’ve definitely had days were I feel really bad but usually it’s not awful.