u/CriticalSorcery

G-tube: Teagan and Mickey

G-tube: Teagan and Mickey

Hello everyone my name is Teagan. I am 24 years old and I am 62 inches tall and I weigh 92 pounds. I am diagnosed with level 3 autism and intellectual disability. I am nonverbal and use AAC to communicate and communication aide (currently Jazmine helping me.) My mom lied to me and said I don't have intellectual disability but I learned it's not true. I am living in a new home for assisted living adults with disabilities. Not everyone here has autism, they have other disabilities like intellectual disability, down syndrome, cerebral palsy and other medical conditions. My old group home was only for autism.

I had surgery and I have a permanent tube in my stomach called a G-tube. This is replacement the NG tube that goes through my nose to my stomach, and it is permanent. It is like a button on my stomach and there is a balloon inside my stomach that you can't see from the outside. It actually has a name! Its name is Mickey. Mickey is the name of the type of tube, but it's also like a nickname. So my aide will say, "dinner time for Teagan and Mickey!" and it sounds like we're two people and it's funny because I'm only one person. I get the same bag liquid as the NG tube but there is a special pump machine instead and a nurse has to use it. It's loud and I don't like the noise but I get to watch Rick and Morty during and it doesn't hurt. I am used to it now. It is MUCH better than the NG tube. I can still eat with my mouth if I want to but I don't like to but I can still eat ice cream. I also get medicine through the G-tube. This is because I have ARFID and I am underweight and it's hard for me to eat.

Please ask me questions and I will answer them with help from Jazmine. I used to post here and answer questions, but I wasn't on Reddit for a while, so I posted an update about my surgery and the new assisted living home.

I want to tell you about Mickey because many people don't know about ARFID and that's how I got really sick and malnutrition.

u/CriticalSorcery — 1 day ago

Update

Hello everyone my name is Teagan. I made the SpicyAutism subreddit in 2022. I feel sorry that I have not helped with the subreddit lately and I am very grateful to everyone for working hard and helping with the subreddit moderation. I am making a post to update on my life because I am not active on Reddit.

I am 24 years old and I am 62 inches tall and I weigh 92 pounds. I am living in a new home for assisted living adults with disabilities. Not everyone here has autism, they have other disabilities like intellectual disability, down syndrome, cerebral palsy and other medical conditions.

I had surgery and I have a permanent tube in my stomach called a G-tube. This is replacement the NG tube that goes through my nose to my stomach, and it is permanent. It is like a button on my stomach and there is a balloon inside my stomach that you can't see from the outside. It actually has a name! Its name is Mickey. I get the same bag liquid as the NG tube but there is a special pump machine instead and a nurse has to use it. It's loud and I don't like the noise but I get to watch Rick and Morty during and it doesn't hurt. I am used to it now. I can still eat with my mouth if I want to but I don't like to but I can still eat ice cream. I also get medicine through the G-tube.

I am diagnosed with intellectual disability. My mom lied to me when she told me that I'm smart and not intellectually disabled.

At my old group home, there is drama because some of my aides got in trouble for speaking on my behalf online. That's the reason I made the post with my speech therapist. A different aide named Jazmine is helping me write this post now. Jazmine says: "I'm asking you prompting questions and lots of follow-up questions and helping to translate your answers into a written format on Reddit based on what I know about you as a person so that everyone can know and understand your wonderful self in spite of your sometimes limited communication skills. It's my job to help you communicate what you mean, not necessarily what you can say, because those are two different and important things." Sometimes she deletes or changes things. Jazmine talks a lot and is nice to me and her hair is black and red but it changes color sometimes.

Sasha does not work there anymore but she still comes to hang out with me every Sunday because we're best friends. She has a Masters now which is like a special award for doing so much school and being really smart (this is a joke, but also true). I'm sad that I don't see her as often anymore.

Season 9 of Rick and Morty came out which made me very very happy! Please talk to me about it in the comment section. I've also been watching Adventure Time.

Note from Jazmine: Teagan got distracted and wandered off. I asked if she was finished writing the post and she made an affirmative noise. We'll circle back if she has any updates later!

reddit.com
u/CriticalSorcery — 2 days ago