
G-tube: Teagan and Mickey
Hello everyone my name is Teagan. I am 24 years old and I am 62 inches tall and I weigh 92 pounds. I am diagnosed with level 3 autism and intellectual disability. I am nonverbal and use AAC to communicate and communication aide (currently Jazmine helping me.) My mom lied to me and said I don't have intellectual disability but I learned it's not true. I am living in a new home for assisted living adults with disabilities. Not everyone here has autism, they have other disabilities like intellectual disability, down syndrome, cerebral palsy and other medical conditions. My old group home was only for autism.
I had surgery and I have a permanent tube in my stomach called a G-tube. This is replacement the NG tube that goes through my nose to my stomach, and it is permanent. It is like a button on my stomach and there is a balloon inside my stomach that you can't see from the outside. It actually has a name! Its name is Mickey. Mickey is the name of the type of tube, but it's also like a nickname. So my aide will say, "dinner time for Teagan and Mickey!" and it sounds like we're two people and it's funny because I'm only one person. I get the same bag liquid as the NG tube but there is a special pump machine instead and a nurse has to use it. It's loud and I don't like the noise but I get to watch Rick and Morty during and it doesn't hurt. I am used to it now. It is MUCH better than the NG tube. I can still eat with my mouth if I want to but I don't like to but I can still eat ice cream. I also get medicine through the G-tube. This is because I have ARFID and I am underweight and it's hard for me to eat.
Please ask me questions and I will answer them with help from Jazmine. I used to post here and answer questions, but I wasn't on Reddit for a while, so I posted an update about my surgery and the new assisted living home.
I want to tell you about Mickey because many people don't know about ARFID and that's how I got really sick and malnutrition.