u/DamnFineCoffee123

I have no idea if it *actually* helps but when I wake up and I’m feeling “off”, as if I can tell that I’m going to have an episode sometime in the day, I drink a pint of coconut water. About 40mins to an hour, that buzzing/internal vibrations/brain fog just disappears. It absolutely could be placebo but I’ve been feeling like trash for almost a year now so I’m going to do what ever works.

Has anyone else had the same experience?

Yesterday, I had one of the worst adrenaline dumps since July of last year and I am feeling *wrecked* today.

I went to lunch with a couple of friends and we walked up a fairly steep hill to get to the coffee shop. I was fine until 10-15 mins later. I was standing there talking to my friend in the shop and I felt this “elevator-like” drop in my body. My legs turned to jello, I couldn’t talk or process what was going on, and my heart was pounding and fluttering. I started to dissociate really bad but kept my shit together enough to walk back to our office (very short walk). Once we got back in the office, I feel like I was having a full on panic attack but I was feeling only the physical symptoms of one. Mentally, I was talking to myself and saying “you are literally fine. Why is this happening?” But not freaking out. The symptoms continued for an hour and a half

- felt keyed-up and twitchy
- heart palpitations and rapid heartbeat
- hot flash
- cold flash
- shaking and trembling
- dissociating/brain fog/confusion/couldn’t talk
- my face/forehead felt numb
- nausea
- urge to use the bathroom (diarrhea)

I drank a bunch of coconut water and ate potato chips to think that it would help. I have no idea if it did anything but eventually things chilled out a little bit towards the end of the work day. Once I got home, I felt so exhausted and it was hard to even make dinner but I needed food. Then, when I woke up this morning, my body feels WRECKED. It feels as if I did a really intense workout- muscle aches and pains (even my arms and hands), and feeling very fatigued.

This is the 3rd time this has happened to me and it sucks. With the 2nd time, I went to a 5k run and ended up in the ER. All of the lab were “normal”, and I was bed ridden for 4 days because of the fatigue. Luckily, this one doesn’t feel as bad but these body aches are insane.

I’m in the process of testing a bunch of things with my cardiologist and I was able to get a table tilt test scheduled. I asked him today if it could be hormone-related because I had my IUD removed in January of last year and I haven’t felt the same since. He agreed and wants me to check-in with my PC about starting birth control again.

This has been the longest year of my life…

Yesterday, I had one of the worst adrenaline dumps since July of last year and I am feeling *wrecked* today.

I went to lunch with a couple of friends and we walked up a fairly steep hill to get to the coffee shop. I was fine until 10-15 mins later. I was standing there talking to my friend in the shop and I felt this “elevator-like” drop in my body. My legs turned to jello, I couldn’t talk or process what was going on, and my heart was pounding and fluttering. I started to dissociate really bad but kept my shit together enough to walk back to our office (very short walk). Once we got back in the office, I feel like I was having a full on panic attack but I was feeling only the physical symptoms of one. Mentally, I was talking to myself and saying “you are literally fine. Why is this happening?” But not freaking out. The symptoms continued for an hour and a half

- felt keyed-up and twitchy
- heart palpitations and rapid heartbeat
- hot flash
- cold flash
- shaking and trembling
- dissociating/brain fog/confusion/couldn’t talk
- my face/forehead felt numb
- nausea
- urge to use the bathroom (diarrhea)

I drank a bunch of coconut water and ate potato chips to think that it would help. I have no idea if it did anything but eventually things chilled out a little bit towards the end of the work day. Once I got home, I felt so exhausted and it was hard to even make dinner but I needed food. Then, when I woke up this morning, my body feels WRECKED. It feels as if I did a really intense workout- muscle aches and pains (even my arms and hands), and feeling very fatigued.

This is the 3rd time this has happened to me and it sucks. With the 2nd time, I went to a 5k run and ended up in the ER. All of the lab were “normal”, and I was bed ridden for 4 days because of the fatigue. Luckily, this one doesn’t feel as bad but these body aches are insane.

I’m in the process of testing a bunch of things with my cardiologist and I was able to get a table tilt test scheduled because I think it could still be POTS and birth control was helping to manage it. I even asked him today if it could be hormone-related because I had my IUD removed in January of last year and I haven’t felt the same since. He agreed and wants me to check-in with my PC about starting birth control again.

I’m now meeting with my 4th PC doctor in 4 years to talk about birth control. This has been the longest year of my life…

Yesterday, I had one of the worst adrenaline dumps since July of last year and I am feeling *wrecked* today.

I went to lunch with a couple of friends and we walked up a fairly steep hill to get to the coffee shop. I was fine until 10-15 mins later. I was standing there talking to my friend in the shop and I felt this “elevator-like” drop in my body. My legs turned to jello, I couldn’t talk or process what was going on, and my heart was pounding and fluttering. I started to dissociate really bad but kept my shit together enough to walk back to our office (very short walk). Once we got back in the office, I feel like I was having a full on panic attack but I was feeling only the physical symptoms of one. Mentally, I was talking to myself and saying “you are literally fine. Why is this happening?” But not freaking out. The symptoms continued for an hour and a half

- felt keyed-up and twitchy
- heart palpitations and rapid heartbeat
- hot flash
- cold flash
- shaking and trembling
- dissociating/brain fog/confusion/couldn’t talk
- my face/forehead felt numb
- nausea
- urge to use the bathroom (diarrhea)

I drank a bunch of coconut water and ate potato chips to think that it would help. I have no idea if it did anything but eventually things chilled out a little bit towards the end of the work day. Once I got home, I felt so exhausted and it was hard to even make dinner but I needed food. Then, when I woke up this morning, my body feels WRECKED. It feels as if I did a really intense workout- muscle aches and pains (even my arms and hands), and feeling very fatigued.

This is the 3rd time this has happened to me and it sucks. With the 2nd time, I went to a 5k run and ended up in the ER. All of the lab were “normal”, and I was bed ridden for 4 days because of the fatigue. Luckily, this one doesn’t feel as bad but these body aches are insane.

I’m in the process of testing a bunch of things with my cardiologist and I was able to get a table tilt test scheduled. I asked him today if it could be hormone-related because I had my IUD removed in January of last year and I haven’t felt the same since. He agreed and wants me to check-in with my PC about starting birth control again.

This has been the longest year of my life…