u/Dismal-Hamster9004

I have my first truxima infusion Tuesday. I finally got approved after having to appeal a denial from insurance. I was super excited but the whole fatality warning is really scaring me. I know it's rare but there's like no data on it and I am a type A data-driven logical person lol. To make it worse we're going to Vegas 2 weeks after my 2nd infusion, so that's cutting it really close. I can still move it if I need to, but trying to be brave and get it done to hopefully get some symptom relief.

I don't consider myself quite as bad off as some people on this reddit, but it's the whole collection of symptoms that is really getting me. It's like I have a symptom buffet. For reference I have fibromyalgia, sjogrens and inflammatory arthritis. Not sure what I'm really looking for in a response, just anything anyone has to say really lol.

Last night at home I was walking to the bathroom and all of a sudden I got a really bad pinpoint pain on my scalp like something bit me or like I got fiberglass on my skin or something. I was hoping it would go away but even today through traveling from ohio to California. Showering etc the pain hasn't gone away and when my hair moves in that spot it hurts a lot. I had my boyfriend look and there is nothing there like redness or rash or anything. Anyone else experienced this, just out of curiosity? (Google did suggest small fiber neuropathy caused by sjogrens, wasnt sure if anyone has experienced that or something similar.) Not asking for advice just curious about similar experiences. Thanks in advance!