▲ 11 r/achalasia+1 crossposts

Looking for anyone with MS, Achalasia, and urinary retention from neurogenic bladder 🧡

I’m looking for someone who has all 3 like me. I’m having a hard time with terrible spasms in my esophagus and stomach. They’re like events. I get shaky and then down for the count for 3 days. I am not supposed to take these meds and should have never been prescribed them as it makes my retention worse. I’m trying to find a solution to get ahead of these attacks but no doctors seem to know how to help me. Thanks for taking the time to read. You’re all warriors 🧡🧡

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u/Dontfkwthcatz — 14 days ago

These spasms have me in a chokehold.

I have had achalasia for 20 years. Had a HM with fundoplication about 10-12 years ago. In the last month I have been getting horrendous spasms, they’re so bad I would say I’m in distress. My dr prescribed Levsin but it is just not working. I don’t understand how we have to deal with this pain and can’t get the help we need. I’ve tried everything; mints, Ginger, ice cold water, hot shower, drinking warm water…nothing helps!! Has anyone gone to the emergency room. What would they do there? Is there another mix of meds they can use to get this to stop? Thank you, you’re all warriors and I for sure see you 🧡🧡🧡🧡

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u/Dontfkwthcatz — 2 months ago

Happy 17th Birthday to my distinguished Little Guy 🎉🎉🎉

He would def not tolerate a birthday hat!

u/Dontfkwthcatz — 3 months ago

Right before she turns into full blown psycho mode lol

Y’all know this look well I’m sure 😻😻

u/Dontfkwthcatz — 3 months ago