r/achalasia

Just a small update and some gratitude for this group (as today is Canadian Thanksgiving) -

So, it's been almost a year since I had my HM with dor fundo and the things I noticed that bothered me the most was what I thought were Tylenol, and medications like anti-biotics. Some people suggested if I need it next time try liquid form.

Well 2 weeks ago woke up sick to a cold - bought the liquid Dayquil/Nyquil and it certainly helped.

Then I developed a secondary bacterial infection- got put on Amoxi - my doctor knowing my history prescribed me the liquid antibiotics as per my request (I got to get bubblegum flavour it's yummy).

I'm on day 6 today - so 5 days and I only had one gastro attack where it felt like the gas was building up and getting stuck. Took my Famatoudine, popped a Zofran on the tongue and I've been good to go. Just in case other people have the same problem.

(Took me and my remote nurse a good 2 to 3 weeks post op to figure out my continous heart burn issues was caused by the Tylenol)

Also grateful there will be a roasted chicken, stuffing, mashed potatoes and carrots in my near future that will stay down with the help of Coke 0!!

(Also a tip from my Achalasia group)

Hi, I have been lurking here after an Endo Flip & manometry led to this diagnosis. I haven’t been told anything about it. My gastroenterologist called with the results and just said I would be going to see a thoracic surgeon, tomorrow.

A lot of symptoms that I’ve read about on here I don’t really have. When you all mention that you have to throw up, is that like when you have a stomach bug, and you know you better run to the restroom? I do not throw up, unless food has been stuck in my esophagus, and isn’t going down or up on its own, and I make myself throw up to get it out. I’ve had my esophagus dilated multiple times over the last 20 years, and I have severe GERD, and regurgitation. But I do not have any of the spasms that I’ve been reading about here. Just terrible pain in my chest and my back if my food gets stuck. I have actually gained 20 pounds in the last few months because my diet has been mainly ice cream, jello, pudding and soup.

So before I see this surgeon, is it possible that I was misdiagnosed, or is that Endo Flip and manometry pretty accurate? Are there any questions that I should ask that I’m not thinking about?

I appreciate any advice. Thank you so much!

Lately I've been kind of anxious about being able to recognize wether the pain I feel is a spasm or a heart attack. I worry that at some point when I'm older I'll shrug off a heart attack as a spasm, while needing medical attention.

People who have experienced both, is there a very clear difference, and when it happens will you know it's one or the other? Not every spasm feels the same either, there's light ones and last night I had one so bad it left me dizzy/nauseous and feeling like I'd faint.

I’m looking for someone who has all 3 like me. I’m having a hard time with terrible spasms in my esophagus and stomach. They’re like events. I get shaky and then down for the count for 3 days. I am not supposed to take these meds and should have never been prescribed them as it makes my retention worse. I’m trying to find a solution to get ahead of these attacks but no doctors seem to know how to help me. Thanks for taking the time to read. You’re all warriors 🧡🧡

For those who experienced acid reflux and chest pain after POEM surgery, was it temporary or Or did it remain the same intensity over time?