u/Early_Escape_3626

Liebe Community,

mein Vater hat Krebs und war leider 1 Monat im Krankenhaus und jetzt in palliativ Behandlung Zuhause. Da er keine Chemo mehr machen möchte ist vorauszusehen, dass er nicht mehr arbeiten können wird. Wenn seine Situation schlimmer wird, dann würde er auch ins Hospiz kommen. Er ist momentan krankgeschrieben.

Er wird in November 66 Jahre alt und würde nächstes Jahr in die normale Rente gehen. Ich finde leider keine eindeutige Infos ob er bis dahin Krankgeld beziehen kann oder ob er in die Erwerbsminderungsrente gehen sollte. er macht sich große Sorgen, da er sowieso keine große Rente bekommen wird und meine Mutter Hausfrau ist.

Ich weiss ihr könnt ohne genauere Daten nicht ausführlich antworten aber ich wäre dankbar für jede Hilfe und Tipps. zum Beispiel was wären die richtigen Anlaufstellen, Krankenkasse oder Rentenversicherung vielleicht? Müssen wir besonders auf Fristen achten? Wäre es in Ordnung Krankgeld zu beziehen bis sich die Krankenkasse meldet?

Vielen Dank, dass ihr mein Text gelesen habt und ich hoffe ihr könnt mir in die richtige Richtung lenken!

PS: Entschuldigt bitte meine schreckliche Grammatik!

Hi everyone! I'm looking for some advice/experience about not continuing with treatment. 

My dad (65) was diagnosed 2 years ago with NSCLC, tumor on the lung had metalized to the pleura. 

some medical history, you can skip this but maybe it contains importat context:

After starting tagrisso/carbo he immediately started feeling better and the tumor shrunk. He had minimal side effects. Sadly, this didn't lasted long, as last year the scans showed progression and they found that he also had two other mutations which are very aggressive and can even change to SCLC.

He started on amivantamab/carbo. Again there were many problems. He developed an allergy to carboplatin. His side effects with amivantamab where very bad and he had to stay one week in the hospital to treat the skin on his scalp. So they also had to go down with the dose for next chemo.

His last scan showed metastasis in the liver, same mutations. But he started feeling very bad and had to stay a whole month in the hospital. He had thrombosis, serious problems with heart rythm which had to be restarted 3 different times (main reason why he was in the hospital), very high inflammation. He also had high fatigue and he didn't even listen to any music in the Hospital (he couldn't do anything!) and he barely ate. There was also depression involved.

They gave him medicine to control thrombosis and heart problems and when they realized the inflammation wasn't going down they gave him Docetaxel + Ramucirumab. 

His inflammation was still high and he felt weak. Last week the doctors said we should start palliative care and gave him the option to try one more chemo or just stop. 

dad's decision:

My dad decided to stop. We all agreed with his decison because he was just suffering. 

Since this week he has been home and feels much much better. He watches TV, listens to music, he walks and eats a lot.

I want to respect his decision, and it did feel like the right decision, but now that he has more energy, are we sure we explored everything? I also feel like the oncologist let him down a bit, especially since the head doctor didn’t even speak to him at the end. I'm not sure if we were correctly informed about all options.

Is it normal to feel this much better after stopping treatment like this? Has anyone experienced something similar?

Thanks for reading! I'm happy to hear any similar stories or opinions about the situation and advice. Don't be afraid about "overstepping", in the end it will be his decision to make.