r/lungcancer

No buildup to this diagnosis- no pneumonia no emphysema no COPD, not even bronchitis or cough!

Lymph node positive
Pleural fluid positive
Mass in lung

But still no origin identified despite all of the tests that have come back

Waiting on PET scan and the NGS they should come within a few days

The doctor said he’s being proactive and went ahead and ordered chemo and immunotherapy to start October 13. Which to be honest this process has been incredibly slow and frustrating, and I find that because we have the manpower we have been able to provide advocacy.

Without proof, they are treating it as if it started in the lung. There is a drain to help with the pleural fluid however, the last three times the nurse has been unable to drain fluid as there is none. 🤷🏻‍♀️ prior to the drain and it’s first use I believe there has been roughly 9 L give or take drained in the last four weeks.

Anyone on here with a similar experience?

My father with stage 4 NSCLC is declining. Brain mets returned heavily after gamma knife in May. He had a pretty bad seizure wed pm and is still in hospital on fluids and steroids. He cannot fully speak or walk. We’re transporting him home on Monday and beginning hospice care. How long do we think he has with no fluids and food? They will make him comfortable but he’s not passing the swallow test and not seemingly reviving from wed nights episode. He’s awake in no pain just unable to use his motor skills fully bc of position of tumors near brain stem. This all is so terrible. He’s only 67 😭

Hello. I just don’t know what to do.
I purchased online therapy. It was ok. But the guy said everything he had to say by visit number 5. Then, it was just getting weird.
I purchased online hypnotherapy. I noticed I was feeling worse after my sessions. No offense to the hypnotherapist. She was great. It just did not help.
I’ve bought many different gummies. I absolutely hate the feeling of THC.
I have supplement that is only ground hemp, no THC. No CBD. Just hemp. That helps a little.
I bought chocolate with mushrooms in it. It has a little effect. Not sure what.
I take magnesium. Sometimes it helps a little.
I am just a mess. My anxiety is through the roof.
I take Lexapro. The oncologist gave me a prescription for Xanax. I’m scared of them, but they do help. He gave me 30 around 3 months ago. I still have over 1/2 of the prescription left.
How does everyone deal with this? All of the visits and scans and results and waiting? I have faith in God. But I am really not doing well. No thoughts of self harm.