u/Educational-Hope-806

I have that movement very bad it’s almost constantly where it’s just my index finger and thumb rubbing together like u would do if u were rolling a pill around I guess heh 😅 but I read that’s kinda specific to Parkinson’s and I asked my neurologist about it and he said oh no u don’t have that u have t.d but drs have been wrong with me before so I don’t fully trust his judgement. Just wondering if any one else also has that same movement?

Taking my first dose of ingrezza I’m
Nervous but I cannot deal with any more of these facial movements my teeth hurt from grinding my teeth I’m always rocking and rocking and swaying and I do this pill rolling movement with my fingers normally when I’m sitting or walking it’s annoying and very tiresome and..it’s also fn kinda embarrassing. I tried austedo but it made me super angry. I don’t trust meds anymore because of this even happening I’m sorry I sound negative I’m just angry no body ever warned me this could happen. My psychiatrist first told me not to worry about my symptoms when I brought them up. I told my primary anyway and she said yes I should absolutely worry and went to a neurologist and found I do have tardive diskinesia. I pray this ingrezza works I am finally mentally stable and ready to move forward and now I have this. Anyway sorry thanks for letting me vent guys.

I’m bipolar type one and I have tardive diskinesia from all the psyche meds and it causes me to have involuntary movements. So I’ll move my face weird sway back and forth do a pill rolling movement with my fingers constantly it looks..crazy I’m sure to those who don’t know what it is. And it is embarrassing to explain.. I know I don’t have to explain but imagine I’m at a park or school with my daughter and my movements start acting up I don’t want anyone to think I’m on drugs or something or that I’m unstable. But what can u say ?? oh yes sorry about my crackhead like movements it’s from years of psychiatric medication for my bipolar disorder don’t worry 😅 it’s just embarrassing and I don’t really know how to excuse it politely without saying too much.