r/Tardive_Dyskinesia

Help i am getting sizzures doctor said TD

I was taking ssri , lithium and antipsychotic for 3 years

I taken lithium 700mg per day long time and qutapin aka Seroquel upto 100mg per day

I was taking them for long time doctor never told me sideffects but now its permanent TD is there anything i can do about this you guys ever taken treatment for this? Does it work? Most important can we fix this i mean can we cure TD?

reddit.com
u/leavemealone0001 — 2 days ago

Help: I feel facial sensation of twitching and at 20 MG I had them

Sensation of slight facial twitching, It's close to lips and at right eye. I was tapering off from 5 MG (Abilify)

It's not tardive dyskynesia bc I have not actual twitching but as said had them at 20 MG and now feel them anyway

Can anyone help? Since I was on 5 MG, I wanted to taper it off but am afraid by this side effect. Should i just stop it at 5 MG?

Thank you

reddit.com
u/This-Mood-6398 — 3 days ago

Withdrawal TD is permanent?

I quit 1mg risperidone cold turkey and got TD, AKATHISIA

Now I reinstated 0,5 and I don't have them a anymore

Will I get them again if I drop the meds? It is permanent?

reddit.com
u/Reasonable_Row_9203 — 9 days ago

I feel so miserable about my TD

I started Latuda in 2024 for bipolar disorde, and it changed my life. I was only on 20mg and my depression was gone, my mania was gone, everything was great. then in march 2025, I had a really traumatic greening out experience, so my psychiatrist slowly built me up to 80MG because she thought I was psychotic. I wasn’t, just had ptsd. I stayed on 80mg of Latuda until the end of 2025, when my new psychiatrist immediately started dropping my dose because I had bad facial td. When my original psychiatrist put me on 80mg, she never told me the risks. I’m back down to 20mg because it genuinely helps me, but I NEVER should have been on 80mg and now I will suffer the consequences of someone else’s decisions for the rest of my life. I’m on daily 60mg of ingrezza, which helps, but if I miss even a single day it all comes back. I blink so rapidly and constantly it can be hard to see and I’m scared to drive, I chew the inside of my mouth until it’s raw and bloody, and I stutter and fumble over my words in ways I never used to. I feel like a part of my life has been destroyed.

reddit.com
u/Ok_Complaint_4751 — 9 days ago

Swallowing

Who has swallowing issues??
Sometimes I have episodes where I can’t stop swallowing, and now I can’t swallow. I have to try really, really hard to swallow at times. I had a panic attack due to this today. I realized I actually couldn’t swallow and freaked the fuck out.
If this gets so bad I need a feeding tube, I’m out. I cannot with this anymore my symptoms just keep changing and getting worse. I’ve been off the causative med for 6 months now. I was only on it 2 months.
I’ve tried the TD meds with extreme side effects after only a few days.
What the hell do I do??
I’m only 33.

reddit.com
u/Itchy-Poet5412 — 10 days ago

Is anyone else a poor metabolizer of CYP2D6 enzyme that is required to metabolise treatments for TD?

Hello,

I've learned from a gene test that I am a poor metabolizer of the CYP2D6 enzyme. First-line treatments for tardive dyskinesia (TD) are VMAT2 inhibitors (valbenazine and deutetrabenazine) and CYP2D6 is the metabolising enzyme.

Is anyone else a poor metabolizer of CYP2D6 enzyme that is required to metabolise the treatments for TD?

Has anyone tried treatment even though you are a poor metaboliser of the VMAT2 inhibitors (valbenazine and deutetrabenazine)? What was your experience? Did you get many side effects?

I'm awaiting an official diagnosis of TD from a neurologist but now I am petrified of taking the drug to help my TD and getting terrible side effects.

reddit.com
u/Leelah_Sprite — 14 days ago