u/Effective_Pie_9310

Hi friends.

Just curious if anyone else on here has experienced getting IIH from Oral Chemo?
I feel super lucky I’ve only had a short stint with it as it’s quite scary but just wanting to hear other peoples experiences of when they could discontinue diamox?

I was switched to Nilotinib once this issue was picked up and I’ve been given the all clear from the ophthalmologist, but the neurologist is quite pricey so I don’t want to push for a sooner appointment if she’s only going to tell me to come back in a few months.

Thanks!