Could my misdiagnosed endometriosis have been IBD all along?
I have always had heavy and nasty periods but about 7 years ago I started having constant left sided pain that got worse around my period, as well as real bad poops. I went to a GP who did a stool test (don't know what was tested exactly but it wasn't done when I was in a flare) who sent me to gynae who said it was probably endo. It took 6 years to get an MRI which showed adhesions on my bowel and issues there which got blamed on endometriosis. Fast forward and I had a laparoscopy done which was negative for endo and apparently ruled out all gynae issues. So I started looking into misdiagnosis and IBD seems to match my symptoms. They are:
Either constant diarrhea or constipation, no in-between.
Fatigue
Weird rashes
Joint pains
Vitamin D deficiency
Low folate
Horrible left sided pain which can also sometimes show up on the right
"Lightning bum"- feels like being stabbed in the butthole.
No ability to control when I poop- when it's happening it's happening.
Hair loss in flare ups.
Pain that's worse around my period but always there.
Random food intolerances.
Total NSAID intolerance.
So does this sound like something I need to query with my GP? Has anyone been misdiagnosed like this?