Connect with young people with NETs?
Hello! I was first diagnosed at 27, I'm now 30. I created this sub first because the existing sub was closed and dead a few years ago, but also because there are so few of us.
This cancer is so isolating at every step of the way from just being a hard life thing to go through, cancer being story scary, but also not really being like other cancer, and rare enough to not have many around you to relate to. And for me, the experience of being young is very different from those in my regional support group who are much older. They're great, but frankly my concerns and feelings are vastly different.
Anyway, is really really like to connect with more zebras around my age - I know you're out there! I think a great place for this would be a dedicated channel in the Discord, but I'm open to other ideas. Maybe we could have a designated kind of support group/hangout time or just a chat to share it similar experiences. Please reach out if you're interested! I only met my first in-person fellow NETs patient this past weekend and frankly, I need more of that connection.
In addition, I live in Seattle but frequent the Midwest and Florida. I would love to meet some of you in person if anyone is also wanting that.
Age specifics aside, I'd love to just connect with more zebras in general, so regardless of age please reach out! Come chat in the Discord!