
Post-viral/inflammatory dysautonomia — most symptoms improved, but painful afternoon /evening hot flushing + post-meal nausea/queasy off -stomach remain
Hey guys I have posted on here a bit throughout my 14/15 month journey. I developed a severe post-viral autonomic illness after having high gut inflammation (I have microscopic colitis), very high stress, being run down, overworked and relying on stimulants a lot to keep pushing then got a nasty influenza B in June 2025. Importantly, I’ve had POTS for ~15 years and my underlying POTS is basically the same as it was before this illness. This was a completely different set of symptoms almost like layered on top of my longstanding POTS.
At the beginning I had a pretty horrific collection of new symptoms, including:
intense early-morning adrenaline/autonomic surges, often waking me around 3–8am
Adrenaline surges throughout day at any point like a panic attack without the panic or hyperventilation just the body in such a horrific intolerable state of discomfort
Nerve tingling and burning sensations in arms and neck
severe nausea/awful “off” stomach, particularly in the mornings but for 10 months had no appetite and lived off Sustagen apart from like at 1am randomly at night when my appetite would sometimes suddenly switch on
Hysterical crying episodes all day or competely shut down and silent and depressed and irritable but felt physiological not psychological
diarrhoea/GI disturbance cramping pains and flushing adrenaline sensations through stomach every morning waking me in such a tormenting manner
dramatic facial and ear flushing/burning every afternoon and evening
episodes of prickling/electric-shock sensations through my face/eye
sweats/goosebump surges
chest pressure/shortness of breath
migraines with aura, head pressure and severe light sensitivity
tingling/numbness
brain fog with slowed thinking/speech but rarely
hypnic jerks over and over as I’d drift off to sleep and disrupted sleep by like intense dreams
significant heat/shower/exertion intolerance
Agitation unable to sit still rocking back and forth on chair or in bath
So nauseous some days I would just moan and groan and just roll around in bed
Thankfully, a lot of this has either completely disappeared or improved substantially over the past ~14 months. My neurologist believes this is centrally mediated post-viral autonomic dysfunction and expects me to at least return to my previous POTS baseline.
But two symptoms are being incredibly stubborn:
1. Painful facial/ear flushing: Almost every afternoon/evening my cheeks and ears become intensely hot and red. Sometimes patchy like the photos, sometimes much more widespread. It physically burns/hurts from the heat. Showers, baths, activity and heat can aggravate it, although it can happen spontaneously too.
Nothing I’ve tried gives meaningful relief. Even ice can make it worse when I remove it, almost like rebound heat.
2. Post-meal stomach symptoms: Anything more than a small amount of food can suddenly make my stomach feel queasy, heavy, bloated, excessively full and just profoundly “off.” Small amounts of fruit are generally much easier than a proper meal.
Has anyone had a similar recovery pattern where most of the severe post-viral symptoms improved first, but flushing/temperature regulation and GI symptoms lingered and eventually improved too?
And especially for the flushing: has anyone found anything that actually reduces the burning heat/pain? Medication, topical treatments, cooling strategies, anything? At this point I’m not even looking for a cure — I’d really like something that makes the episodes less physically miserable while my nervous system continues recovering.
I am so desperate for any bandaid relief from this hot flushing and so afraid I’m stuck with it …
Here are some links to pics so you can see the flushing … I am so sick of suffering. Need any hope , guidance, belief that this too will heal with time?