Toddler started with febrile seizure around 1 yr old, had first non-fever / epileptic seizure at 4 yrs of age
My toddler is having a long battle with seizures. It started when he was around a year old, when the first fever induced seizure appeared. It looked so scary when it happened. And from that point on, the toddler has been averaging 3-5 febrile seizures each year. Sometimes the kid gets sick with fever but no seizure thankfully, sometimes the seizure comes, almost always in the first 24 hours of the fever.
Last year, he had a very first seizure episode when his temperature was normal. The neurologist ordered another EEG and the test detected a bit of epileptic flashes in one of the parts of the brain. So need to keep close eyes on the kid at all times. The specific part of the brain the signal appeared in, seems associated with visual stimulations. Might be the reason the kid really loves staring at bright lights, like flashing toys and even the sun directly.
The kid has been taking increasing dosage of Keppra for a few years now. I am reading all these negative side effects about Keppra, but the kid is doing mostly alright. Hoping that in the long term, seizures will start disappearing and the kid can lead a normal life, thats all i am hoping for. Thankfully, while his early seizures as 1-2 yr old were sever fully body ones, his recent seizures looked more focal / quieter version, and also shorter in duration.
We have another MRI scheduled in coming weeks and also ordered gene testing.