Trust me, I hate that I’m asking this. He acts like nothing ever happened. I can barely even look at him. Fun all around 🫠 oh. I have little kids too.
So far I’m pink but now I have a cluster of like brown freckles in the area. Did anyone have similar? Nothing hurts or is itchy. How was rads for you?
Trying to not air out my dirty laundry on Reddit but shits rough. My house is miserable. None of my family talks to me even though they know I have cancer. I like my job but I’m out in leave. I wanted to finish chemo and surgery and get my pcr and say fu to so many people and things and sail off into the (metaphorical) sunset. Guess who didn’t get pcr. Guess who has months of more chemo ahead. Guess who feels completely stuck and unable to make any changes in life anymore. I’m literally only doing this for my kids.
Surgery removed the cancer. Then I just go live? I’m told scans are ordered based on symptoms and Signatera causes unnecessary anxiety. I’ll probably push back on this more down the road but just what do you do to cope with never getting a congrats this part of your life is now over and you’re good to move on? I feel good, but I also felt good when I was diagnosed. I just am so whatever the opposite is of at peace with my body and this is on my mind all day every day basically. Yes I’m in therapy and on medication but I’m genuinely spooked that this ever existed inside of me.
Why did or did you not choose to participate in this trial?
I was diagnosed freshly postpartum last fall and now I’m planning my daughter’s first birthday and I’m ✨ emotional ✨. I think I spent the past year in fight or flight mode just checking the boxes of my treatment plan. Scan ✅ infusion ✅ exam ✅ surgery ✅. I worked through my entire treatment and finally took disability leave for surgery and rads. Now I’m planning to send her to daycare with her big brother and go back to work. I still have adjuvant chemo ahead. I’m navigating the fear that comes with survivorship. I’m traumatized. I’m trying to get the right dose of anxiety meds. I’m getting used to my foobs. I’m sad about seeing my port so visable in summer clothes and swimsuits. I’m really truly pissed about not getting pcr when I had my hopes up for it and so many positive signs throughout treatment. I’m nervous for this next phase then having to just hope it works. Im sad I might lose my hair again when I’m finally feeling comfortable with the pixie cut I’ve grown out. I have such limited support through this and have had to do most of this on my own. I’m just sitting here like what the actual f was this year and trying to accept everything ahead.
I’m having a bad anxiety day with fear of recurrence today. I have nightmares about it coming back. Maybe it’s because I’ve been trying to stop taking the weed gummies at night. Today has just been hard and not getting pcr has been eating away at me. I’m in the middle of rads now after my dmx. If anyone has some positive non pcr stories for Tnbc I’d really appreciate hearing them ♥️
I’m having a bad anxiety day with fear of recurrence today. I have nightmares about it coming back. Maybe it’s because I’ve been trying to stop taking the weed gummies at night. Today has just been hard and not getting pcr has been eating away at me. I’m in the middle of rads now after my dmx. If anyone has some positive non pcr stories for Tnbc I’d really appreciate hearing them ♥️
My marriage barely survived this cancer diagnosis. I have two young kids and going through chemo freshly after the 1-2 transition was rough on my marriage for a lot of reasons and now that I did not get pcr (Tnbc) I’m finishing rads and second guessing my consent to the ascent 05 trial. I have no idea if my marriage or family can survive another 5-6 months of infusions. Of me feeling crappy. Of the logistics of me being away at treatment. Of handling life just being more challenging for longer. I’m considering walking away from this trial and taking xeloda and calling it a day. I’m having such a hard time with wrestling the potential benefit of the trial over the massive stress it’s going to put me through at home. I’m trying to focus on what might lead to the best long term outcome and I don’t want to regret not doing the trial but I find myself hoping I get assigned the control arm so I can have a better home life through it. What do I do… every day is just a day closer to randomization. I need to go back to work. I need to not have my home life stress me out more than treatment does. I’m at a loss and can’t believe I’m weighing things like this.
I’m in the middle of radiation now and soon I’m going to be randomized for the Ascent 05 trial and I’m getting nervous. I’ve been off chemo for like 2.5 months for surgery, recovery, and radiation and I finally feel good. I’m enjoying myself more. My hair is growing. I’m nervous to go back to potentially feeling like crap for the rest of the year. My immune system tanking again. Going back to work through it. Just ugh. I’m eager to start so I can get closer to finishing it but it’s so hard to let go of feeling good finally after this hell of a year.
I’m tired of this. I’ve been through diagnosis, who knows how many scans and appointments, months of chemo, surgery, I’m doing radiation now and what do I have to look forward to next? More chemo 😭 I want to make plans. I want to go on vacation. To concerts. I am so over it. I can’t believe I just woke up one day to have my entire life hijacked by this. I can’t wait to be done.
I was diagnosed freshly post partum this past fall and today we’re selling the bassinet. Listing other baby things. I’m sad. I’m sad this is another thing cancer has taken from me. I’m sad I spent her baby year doing chemo and surgery. I didn’t do IVF before chemo and I wasn’t absolutely set on having another kid but I’m sad this is how the choice was made for me.
Of course I’ll mention it to my doctor, but I’m still getting used to my new normal about a month post surgery. Does anyone have firmness right under their armpit scar where lymph nodes were removed? Wondering if it’s just some scar tissue but of course I’m paranoid 🙃 all my lymph nodes that were removed were negative but was wondering how everyone else healed in this area.
I have an appointment next week to talk about enrolling in the Ascent 05 trial to have a 50/50 shot on being on trodelvy vs xeloda for residual TNBC. If you did not get pcr for Tnbc, did you join the trial? Why or why not? What has your experience been with the trial or just in general on xeloda or trodelvy? Weighing my options for this next phase of treatment and would love to hear any experiences.
Anyone have anything they like that helps with scars? Just tried on some swimsuits and summer dresses and I’m a little depressed about how visible my port scars etc are 🙁
I did neoadjuvant chemo, had a dmx, and did not get pcr. I’m waiting to start radiation and then chemo again but kind of feel like a sitting duck here doing nothing since a month before surgery and now a month after. What was your timeline post surgery if you had continued treatment?
Would you do it? They said it’s up to me. TNBC. No PCR but no lymph nodes involved since diagnosis. DMX. Tumor was right on the boarder size wise of them saying definitely yes. He said he’d focus on radiating my chest wall. Would you do it?
I was diagnosed with TNBC in October. I finished chemo. I had a DMX. And I did not get pcr. I rode the high after surgery for a while knowing the cancer was removed and I felt decent for the first time in months due to the chemo break before surgery but now it’s crashing back down. 6 more months of chemo. Clinical trial or no. Radiation. Being scared of recurrence forever. Realizing this seriously is my real life. Watching everyone else I know just live without cancer in their lives. Just venting. I really wanted to be done. I feel like everyone thinks you just sail off into the sunset after surgery.
Anyone have a half decent time on xeloda? I’ve been off chemo for almost two months waiting for surgery + recovering and I’ve really enjoyed feeling normal. I’m seeing my oncologist tomorrow and assuming I’m getting right back on the horse with Xeloda (no pcr). Anyone have a decent time? Tips or tricks?
Just got my report and no pcr for me :( 0/5 nodes had cancer and I was node negative at diagnosis, margins were clear, and no DCIS or LVI so that’s good but not the complete response I was hoping for especially since my tumor shrunk so much so fast. Onto radiation and more chemo I go. Anyone else not get pcr? Years out from this?