Just got my report and no pcr for me :( 0/5 nodes had cancer and I was node negative at diagnosis, margins were clear, and no DCIS or LVI so that’s good but not the complete response I was hoping for especially since my tumor shrunk so much so fast. Onto radiation and more chemo I go. Anyone else not get pcr? Years out from this?
It’s so hard for me to listen to everyone talk about babies, new jobs, promotions, vacations, houses, and all the things they plan on for the future. I can barely think a couple months ahead at this point. Does it ever get easier to imagine life a year or more out?
What do you feel has been the best lifestyle change you’ve made since being diagnosed / after finishing active treatment? This is tricky because I feel like I was making good choices before this all happened with food and exercise so for a lot of treatment I’ve said screw it but as things are winding down I feel like it’s time to get back on the horse. Anything you’ve changed or done on top of treatment that you feel has been good for your mental or physical health? Trying to feel in control of something.
I’m waiting for pathology after surgery and world love to hear some positive no pcr Tnbc stories and experiences
I was cut off after 14 of 16 rounds because my ANC kept dropping too low. Wondering if anyone else has been cut off early too?
Mentally. Physically I’m doing well but I feel like the momentum is all just kind of crashing and I’m left to sit here and think. Google. Sometimes I feel normal and am going about something then I get smacked with wow I’m a cancer patient. With chemo I just felt I had a goal, I was crossing off infusions, had a routine, was doing something, and now I’m here to hope for the best. Anyone feel this way? Does it get better? I should be happy I finished chemo and the cancer has been cut out of me but I feel like I’ll jinx something if I celebrate. It’s just a weird mix of a crash and holding my breath at the same time.
Long story short, my tumor basically vanished very early in chemo, then at the very end of chemo a small lump popped up suddenly, then it did nothing during my month off of chemo waiting for surgery except of course scare the crap out of me. All I know is it’s on the biopsy clip. I’m waiting for pathology but wondering if anyone has had a similar experience and what it turned out to be?
I even have dreams about cancer. Everything I see during the day is a trigger. When does it get better? I know I’m fresh in it just finishing chemo and surgery but when will I not wake up in the middle of the night from a nightmare about recurrence? When will I be able to start thinking about the future again?
I’m going into surgery today and not anticipating pcr and would love to hear some success stories from those that also did not have a complete response
I’m scheduled for my dmx Friday and I’m honestly just depressed. I see a therapist and have an appointment to get on some sort of medication, but how do you find joy again after cancer when you don’t trust or recognize your body, are scared of recurrence, and can’t relate to anyone you know anymore?
Anyone feel worse before or just after surgery than they did at diagnosis and through chemo? I feel like a ticking time bomb for recurrence and feel like that clock starts at surgery and am struggling. Chemo almost felt like a safety blanket even though I felt like crap. I’m not anticipating pcr due to a palpable lump still and just mentally struggling before surgery in a few days.
Anyone have a palpable tumor going into surgery after chemo? Looking for hopeful stories.