my eohilia got warm in the car. not scalding but warm, and I don’t know if I can take it. I called takeda and they don’t know either. it was 2 hours max
anyone taken it after it went above recommended temp?
what doctor got you better from babesia?
my llmd doesn’t seem to really know what to do. she gave me own 6 week course of tafenoquine and atovaquone and thinks I should be cured and it’s only worse now. I want to not exist.
what telehealth or long distance doctors are experienced enough to help?? I really need help
can anyone give me a read on my situation? it doesn’t make sense to me.
I got sick suddenly with the air hunger and my throat began to get painful. not just like a sore throat from a cold, but deeper down My esophagus like sores in there. a cough came with the air hunger. Heart palpitations and swollen lymph nodes and heaviness in my heart/chest too. I also had difficulty swallowing occasionally. Half of my lower back muscles went out as soon as I got sick and they’re underactive so my back is really painful at night.
i suffered really bad with this for months. And I got some relief after Lyme stop. but I started with lyme literate medical doctor after Lyme stop because I wasn’t all the way better. She saw my labs from igenex that showed Lyme, Bartonella, babesia, and relapsing fever. My llmd put me on tafenoquine and the onboarding dose kicked my butt so hard I quit it. But my air hunger improved a lot. This was at the same time I went for my follow up Lyme stop app. So my llmd talked me into finishing tafenoquine a month after i quit it, so i did but since starting the weekly dose my air hunger has gotten much worse. Im now done with it and still suffering from the horrible feeling. My llmd seems most concerned with my throat and thinks I have developed EoE. Im most concerned with breathing.
I don’t know why I had different reactions to tafenoquine Both times. The other thing I’m considering is mold in my home.
a friend recently said she had trouble swallowing in a moldy home. As my second Lyme stop appointment, Dr Smith said that he found Aspergillis in my lungs which you find in water damaged buildings. he seemed so chill and said i would get better. He didn’t say “go check your house” so i didn’t. Im wondering if the lymestop treatment did help and I went back to living in same environment and got mold toxicity again. He believed that i did not have babesia.
I didn’t have much confidence w/ the muscle testing he did. But my llmd isnt getting me much better. she keeps wanting to refer me to specialists like GI and pulmonologist.
if you read this far, what would you think?
can babesia be that stubborn? or could it have been Lyme and mold causing the throat and breathing issues?
I’m frustrated because my llmd wont get back to me or answer my questions, so I’m here on Reddit. and I have the anxiety so please don’t needlessly scare me.
ive had air hunger 10 months now, and I started to have a lot of improvement with air hunger after taking the onbording dose of tafenoquine. it made me herx like headache and brain fog and palpitations really bad for a whole month and I quit the drug bc it was so bad and my doctor wouldnt get back to me so I didn’t know it was a herx. just thought I was having a reaction.
so she convinced me to start it back up again with all the herbs and atovaquone too, to prevent resistance because I quit things.
so this time the dose is lower and I would feel some herx symptoms like headaches and I could clear them but my air hunger is raging back. I feels so horrible again. i think detox stuff helps a little? like citrus pectin and glutathione and binders, but mostly I feels helpless a lot of times and I’m so worried about regressing with this symptom and I’m worried about something being wrong with me and I wouldn’t know, because my doctor does not keep up, isn‘t doing ongoing labs, I had to call the offices to get her to reply to me after a being ghosted a week. does this different reaction seem ok or normal?
I tried to call around for another llmd, and they’re so much more expensive than the one I‘m seeing. 😭
I‘ve been putting up with this for months after weaning, but Ive been getting so grumpy at night. especially if he has a rough night with a lot of waking. last night was bad, and I kept dreaming about some kind of clip that attaches on the outside of a bra or shirt that has a nipple shape on it so he can grab that and not me. Does this exist? I swear I saw one somewhere on the internet but now I’m coming up with nothing. any tips?
any success? and what was the experience like?