u/Epic_Fail11

I just got back from the ER and I honestly don’t even know what to say anymore.

I went in because I’m in severe pain. Like, not “a bit uncomfortable”, actually unbearable pain and nausea. I have a Duodenum feeding tube, they did an X-ray and it turns out it’s coiled up in my stomach instead of being in the right place.

So there’s a clear visible problem.

And yet… nothing.

I waited for hours, got put on a bed, then had to leave because they needed the room. Ended up sitting on a chair in agony. The nurse didn’t know what to do, the doctor basically said: “We can’t do anything for you right now. You’ll be called tomorrow.”

No real pain relief. No solution. Just “good luck getting through the night.”

How do you look at someone in that much pain, with actual proof something is wrong, and just send them home with nothing?

I feel completely dismissed. Like I’m expected to just endure this and somehow survive the night.

I’m so tired of not being taken seriously and sick of the pain 😭

Because of gastroparesis, I’ll be getting a nasojejunal feeding tube (NJ tube) this Monday. It’s been a long and difficult road with my health, so this feels like a big step. I’m sad about the fact that my body can’t manage this on its own and a little nervous, but also hopeful that it might help me get the nutrition my body needs again.

One of my biggest struggles is severe constipation and slow digestion, so I’m especially curious how that interacts with an NJ tube. I’d really appreciate hearing if anyone has experience with this.

Thank you 🤍

If all goes well, I’ll be getting a nasojejunal feeding tube (NJ tube) this Monday. It’s been a long and difficult road with my health, so this feels like a big step. I’m sad about the fact that my body can’t manage this on its own and a little nervous, but also hopeful that it might help me get the nutrition my body needs again.

I would really appreciate hearing other people’s experiences with it. How it went for you, how you coped, and any side effects or things you wish you had known beforehand. Tips for managing day to day with an NJ tube are also very welcome.

Thank you 🤍

If all goes well, I’ll be getting a nasojejunal feeding tube (NJ tube) this Monday. It’s been a long and difficult road with my health, so this feels like a big step. I’m sad about the fact that my body can’t manage this on its own and a little nervous, but also hopeful that it might help me get the nutrition my body needs again.

I would really appreciate hearing other people’s experiences with it. How it went for you, how you coped, and any side effects or things you wish you had known beforehand.

Thank you 🤍