i think i have RCE
I have been experiencing eye pain attacks since I was 9. I have been to many eye doctors and they told me that I had a very small corneal scratch in my eye. Now I'm 18 and I've been to an eye doctor last year and he told me that my eye was healthy. Also I've been to neurologists to find out if it was cluster headaches.
So the attacks start almost 6-8 hours after sleeping, doesn't matter if it's night or morning. The pain feels like there is something in the outer upper corner of my eye and it stings a lot. It's always during the sleep, or it happens the moment I wake up. The moment I wake up, I don't really understand anything I just say "oh my eye is hurting but let me sleep" and try back sleeping but 5 seconds later the pain becomes extremely uncomfortable and I start to realize that I'm having an attack. About 1 minute later the pain level becomes 10/10. It's like someone is sticking a needle in my eye. My eye and nose gets watery and my eye becomes red and swollen. After the attack I start to see blurry, permamently. Every attack makes my myopia worse. The attacks are 90% in my left eye. Sometimes in my right eye. And the pain gets worse if i move my eye or open it, so I keep it closed.
Symptoms:
Stinging pain in one eye
Blurry sight
Pain gets worse when I open my eye, or look around
Watery eye and nose
Red and swollen eye
My attack chart:
🔴6 October 2025: Right eye
🔴6 December 2025: Left eye
🔴11 December 2025: Right eye, started at 04:40, slept at 21:30, last about an hour
🔴10 April 2026: Left eye, started at 01:00, slept at 19:00, last about 2 hours (parasetamol)
🔴17 May 2026: Left eye, started at 8:40, slept at 01:30, last for 40 minutes (apranax)
Doctors couldn't find anything so if someone has the same symptoms please tell me.
I'm 18 and female so cluster headache was a really low probability as the doctor said.