But being anxious does, and I get random night sweats. But, in the UK heatwave, I've felt like I have a permanent fever that only was broken (briefly) by a cold shower. Then learned i need to wet my skin to cool down.....aka sweat. Then realised I don't sweat anymore, not near as much as I used to. Anyone else? Any tips? It's absolutely awful.
Can't contact my GP til monday. They don't help anyways since Scotland has no proper guidance or specialists for PoTs. So, i am dealing with this completely on my own (as usual).
I am on beta blockers (bisoprolol) and on tuesday my hr hit 165bpm, thats higher than before my beta blockers. I had to sit down at the train station and get a lift to work.....which was a 5 min walk away. Then had to go home sick because i was so unwell. Nothing has changed since then, still feel just as bad.
My PoTs right now is just as bad as it was before i got diagnosed and before beta blockers. I can stand up and walk around but im hitting 135-145bpm (50-60bpm above resting) I have a fan blasting 24/7, but as soon as i am away from the fan my body heat raises like a furnace. My partner when he sleeps is ROASTING, like burning hot, and when he cuddles into me HE IS COLD AGAINST MY SKIN NOW. It's like i have a permanent fever.
My energy is completely sapped. I can't sweat at all. My resting HR has been 85-95bpm for a full week now, its usually 75-85bpm. NOTHING hydrates me at all, not water, electrolytes, lucozade, prescribed electrolytes by the doctor, i pee it all out immediately. I am constantly thirsty and dry mouth. (not diabetes, been tested for that). I've been trying to up my salt intake but it gives me headaches.
I can't eat properly because everything is giving me MCAS reactions. My stomach is constantly gurgling and popping. Nothing feels like it's digesting properly. Everything i eat is making me feel awful.
I've been wearing my compression tights, they do nothing. I even took an extra dose of my beta blocker out of sheer desperation and they are like sugar pills, doing nothing whatsoever.
Literally what do i do? How am i supposed to live like this? I just have to suffer til it's over. Its not even that hot in Scotland. How am i going to survive summer?