I'm scared that this is just my life now
I've been sick for a while now. Years, actually. And for most of that time, I told myself it was temporary. I told myself I just needed to find the right doctor, the right treatment, the right answer. That once I figured it out, I'd get my life back. That this was just a chapter, not the whole book.
But lately, I've started to realize something that terrifies me: what if this isn't temporary? What if this is just… my life now?
What if the pain never fully goes away? What if the fatigue never lifts? What if all the things I thought I'd do "when I get better" are just things I'll never do? What if I'm never the person I used to be again?
I've been carrying this hope for so long. It's what kept me going. It's what got me through the hard days. But now I'm scared to let go of it. Because if I let go of the hope of getting better, then what's left? Just acceptance? Just learning to live with less? Just a smaller, quieter life than I ever imagined for myself?
I don't know how to grieve a life I haven't fully lived yet. But I think I need to start figuring that out. Because the hope is starting to feel heavier than the acceptance would.