PLEASE help! After 1 year of Specialists, Tests and Meds, Nothing Works and I can't take it anymore

I am 22M and Need some help because I've been dealing with this for over a year now and despite seeing multiple doctors, nobody has really been able to explain what's going on

It started with a sudden vertigo attack where it felt like the entire world was spinning and I completely lost my balance. Went to an ENT, got some medication, and everything went back to normal for around 6 months

Then the exact same thing happened again.

This time the dizziness never really went away

The weird thing is that it doesn't feel like the room is spinning anymore. It feels like my head is spinning internally 24/7. I can still walk, work, drive, and function normally, but I constantly feel off-balance, nauseous, and unwell

Some of my symptoms:

  • Constant dizziness/head-spinning sensation
  • Constant low-level nausea
  • Neck pain (especially upper neck/base of skull)
  • Headaches/pressure at the back of my head
  • Random ringing/ting sounds in both ears)
  • Brain fog and concentration issues
  • Fatigue no matter how much I sleep
  • Occasional blurry vision
  • Chronic blocked nose and allergies

One thing I've noticed is that my neck seems heavily connected to the symptoms.

Looking up, down, side to side, or rotating my neck often makes the nausea worse almost immediately and Even neck massages can trigger nausea

If I wake up with a strained neck, the dizziness is usually worse that day

I spend 12+ hours a day on a laptop, have bad posture and slouch a lot

I've seen multiple ENTs and a neurologist
One ENT thought it was ear/throat inflammation while The neurologist basically blamed anxiety and stress

Neither explanation really convinced me because the symptoms never improved.

I've had:

  • Audiogram → completely normal hearing
  • Brain MRI → normal according to doctor
  • Cervical MRI → doctor said normal, but on review it showed loss of normal neck curvature and some early C4-C6 disc degeneration/postural changes
  • MRI also showed chronic sinus inflammation and enlarged turbinates which no doctor even mentioned

At this point I got frustrated and dumped literally everything into Claude, including symptoms, history, MRI findings, medications, what makes things worse, what makes things better, etc.

The interesting thing is that it didn't really focus on a single diagnosis. Instead it suggested that multiple things might be feeding into each other:

  • Cervicogenic dizziness
  • Vestibular migraine
  • Chronic sinus/allergy issues
  • Poor sleep quality
  • A sensitised vestibular system after dealing with this for so long

Instead of suggesting more medications, it mostly suggested things like:

  • Fixing my workstation and posture
  • Cervical and vestibular rehab exercises
  • Nasal saline rinses
  • Better pillow/sleep setup
  • Consistent sleep schedule
  • General lifestyle changes

Honestly, a lot of it makes logical sense to me because almost every symptom seems connected to either my neck, sleep quality, or head movement.

My question is:

Has anyone here actually had something similar and improved?

Or am I about to waste months chasing the wrong thing?

I am interested in getting some advice from experienced medical professionals or even people that have gone through something similar

reddit.com
u/Few-Opening6935 — 5 hours ago

PLEASE help! After 1 year of Specialists, Tests and Meds, Nothing Works and I can't take it anymore

I am 22M and need some help because I've been dealing with this for over a year now and despite seeing multiple doctors, nobody has really been able to explain what's going on

It started with a sudden vertigo attack where it felt like the entire world was spinning and I completely lost my balance. Went to an ENT, got some medication, and everything went back to normal for around 6 months

Then the exact same thing happened again.

This time the dizziness never really went away

The weird thing is that it doesn't feel like the room is spinning anymore. It feels like my head is spinning internally 24/7. I can still walk, work, drive, and function normally, but I constantly feel off-balance, nauseous, and unwell

Some of my symptoms:

  • Constant dizziness/head-spinning sensation
  • Constant low-level nausea
  • Neck pain (especially upper neck/base of skull)
  • Headaches/pressure at the back of my head
  • Random ringing/ting sounds in both ears)
  • Brain fog and concentration issues
  • Fatigue no matter how much I sleep
  • Occasional blurry vision
  • Chronic blocked nose and allergies

One thing I've noticed is that my neck seems heavily connected to the symptoms.

Looking up, down, side to side, or rotating my neck often makes the nausea worse almost immediately and Even neck massages can trigger nausea

If I wake up with a strained neck, the dizziness is usually worse that day

I spend 12+ hours a day on a laptop, have bad posture and slouch a lot

I've seen multiple ENTs and a neurologist
One ENT thought it was ear/throat inflammation while The neurologist basically blamed anxiety and stress

Neither explanation really convinced me because the symptoms never improved.

I've had:

  • Audiogram → completely normal hearing
  • Brain MRI → normal according to doctor
  • Cervical MRI → doctor said normal, but on review it showed loss of normal neck curvature and some early C4-C6 disc degeneration/postural changes
  • MRI also showed chronic sinus inflammation and enlarged turbinates which no doctor even mentioned

At this point I got frustrated and dumped literally everything into Claude, including symptoms, history, MRI findings, medications, what makes things worse, what makes things better, etc.

The interesting thing is that it didn't really focus on a single diagnosis. Instead it suggested that multiple things might be feeding into each other:

  • Cervicogenic dizziness
  • Vestibular migraine
  • Chronic sinus/allergy issues
  • Poor sleep quality
  • A sensitised vestibular system after dealing with this for so long

Instead of suggesting more medications, it mostly suggested things like:

  • Fixing my workstation and posture
  • Cervical and vestibular rehab exercises
  • Nasal saline rinses
  • Better pillow/sleep setup
  • Consistent sleep schedule
  • General lifestyle changes

Honestly, a lot of it makes logical sense to me because almost every symptom seems connected to either my neck, sleep quality, or head movement.

My question is:

Has anyone here actually had something similar and improved?

Or am I about to waste months chasing the wrong thing?

I am interested in getting some advice from experienced medical professionals or even people that have gone through something similar

reddit.com
u/Few-Opening6935 — 5 hours ago

PLEASE help! After 1 year of Specialists, Tests and Meds, Nothing Works and I can't take it anymore

Hi I am 22M from Mumbai

Need some help because I've been dealing with this for over a year now and despite seeing multiple doctors, nobody has really been able to explain what's going on

It started with a sudden vertigo attack where it felt like the entire world was spinning and I completely lost my balance. Went to an ENT, got some medication, and everything went back to normal for around 6 months

Then the exact same thing happened again.

This time the dizziness never really went away

The weird thing is that it doesn't feel like the room is spinning anymore. It feels like my head is spinning internally 24/7. I can still walk, work, drive, and function normally, but I constantly feel off-balance, nauseous, and unwell

Some of my symptoms:

  • Constant dizziness/head-spinning sensation
  • Constant low-level nausea
  • Neck pain (especially upper neck/base of skull)
  • Headaches/pressure at the back of my head
  • Random ringing/ting sounds in both ears)
  • Brain fog and concentration issues
  • Fatigue no matter how much I sleep
  • Occasional blurry vision
  • Chronic blocked nose and allergies

One thing I've noticed is that my neck seems heavily connected to the symptoms.

Looking up, down, side to side, or rotating my neck often makes the nausea worse almost immediately and Even neck massages can trigger nausea

If I wake up with a strained neck, the dizziness is usually worse that day

I spend 12+ hours a day on a laptop, have bad posture and slouch a lot

I've seen multiple ENTs and a neurologist
One ENT thought it was ear/throat inflammation while The neurologist basically blamed anxiety and stress

Neither explanation really convinced me because the symptoms never improved.

I've had:

  • Audiogram → completely normal hearing
  • Brain MRI → normal according to doctor
  • Cervical MRI → doctor said normal, but on review it showed loss of normal neck curvature and some early C4-C6 disc degeneration/postural changes
  • MRI also showed chronic sinus inflammation and enlarged turbinates which no doctor even mentioned

At this point I got frustrated and dumped literally everything into Claude, including symptoms, history, MRI findings, medications, what makes things worse, what makes things better, etc.

The interesting thing is that it didn't really focus on a single diagnosis. Instead it suggested that multiple things might be feeding into each other:

  • Cervicogenic dizziness
  • Vestibular migraine
  • Chronic sinus/allergy issues
  • Poor sleep quality
  • A sensitised vestibular system after dealing with this for so long

Instead of suggesting more medications, it mostly suggested things like:

  • Fixing my workstation and posture
  • Cervical and vestibular rehab exercises
  • Nasal saline rinses
  • Better pillow/sleep setup
  • Consistent sleep schedule
  • General lifestyle changes

Honestly, a lot of it makes logical sense to me because almost every symptom seems connected to either my neck, sleep quality, or head movement.

My question is:

Has anyone here actually had something similar and improved?

Or am I about to waste months chasing the wrong thing?

I am interested in getting some advice from experienced medical professionals or even people that have gone through something similar

reddit.com
u/Few-Opening6935 — 6 hours ago

Small NDIS provider trying to understand what is actually “reasonable” for data/security compliance

I am working within a small NDIS based organization and am building an internal system for automating operational workflows within the organization

we’re not building or selling a SaaS product, this is purely for internal organisational use.

we obviously handle alot of sensitive participant information and are trying to understand what level of infrastructure/compliance is realistically expected under Australian privacy and NDIS obligations for organisations at our scale

A lot of online discussions jump straight to enterprise HIPAA style infrastructure, expensive compliance platforms, or fully custom AWS setups, which honestly seem operationally excessive for a smaller provider like us

We already operate under the Privacy Act, APPs, NDIS Practice Standards, have internal access controls, retention policies, breach procedures etc, and our privacy policy explicitly discloses the use of operational systems and AI assisted tools under controlled conditions.

The question is more around:

  • what is considered “reasonable steps” in practice for infrastructure/security?
  • whether managed platforms like Render/Railway are realistically acceptable for internal systems
  • and where the actual legal/compliance boundary tends to sit for smaller NDIS organisations

Would appreciate hearing from anyone familiar with privacy, health tech, NDIS compliance, or Australian operational/legal expectations in practice

reddit.com
u/Few-Opening6935 — 1 month ago
▲ 1 r/regulatoryaffairs+1 crossposts

How are small healthcare/NDIS orgs handling compliance without paying for massive enterprise infrastructure?

I'm working within an NDIS based Organisation in Australia

I have been using render for quite a while now and it works great And I tried to actually build, deploy and test a system to manage our operations on render And it works great

But the thing is that my scale is not that much (100 users) and I would Probably be satisfied with the pro tier

But to get the HIPAA Compliant workspace I would have to spend approximately $500 And that is way too much because I only need like $20 worth of compute

And even if I try to process data based on the other compliance and security certifications (because HIPAA doesn't apply to us APPs do) Render still has that clause within it's policies That we are not allowed to process any PHI without a signed BAA And we would be breaching the policy if we do actually do that

Before you guys come at me with a pitchfork, I am looking for guidance right now And would really appreciate some support from experienced peeps around how and where I can actually deploy my systems without breaking the bank (and hopefully not blow my brains out managing infrastructure)

reddit.com
u/Few-Opening6935 — 1 month ago