u/Flipped-Rainbow

Newly diagnosed. Caught it early - my thyroid tests have only been hyper for a couple months. My liver values have doubled (worsened) over the past 2 weeks. My PCP/endo is saying skip the anti thyroid drugs because it’s too much risk on the liver and go straight to radioactive iodine.

This is not my first autoimmune disease. But you never get used to it.

I feel like all the options here are awful and permanent? And I hate feeling trapped and like I don’t have a choice. But it seems like I don’t have a choice???

Anyone else have EDS or Celiac or major GI issues before radioactive iodine?? Like??? The doc is wayyy too casual about telling me we’re gonna nuke my cells???

How did y’all make these choices? And maybe is radioactive iodine not that bad???? And do the symptoms go away once you’re hypo? And do the drugs actually help w hypo??

Sincerely,
Trying not to be too devastated

So Boston area / MA people… who are we seeing that doesn’t look at you sideways and knows how PMDD works? I’m gonna crash out if one more person brushes me off (maybe that’s the luteal talking… but still).

Maybe not both… just PMDD literate??

Context:
Maybe this is silly, I don’t even know what
specialist or doc to see at this point, but my pcp ignores me when I say how bad the luteal phase is for everything, and my obgyn just wants to throw birth control at the situation. My psychiatrist is good at working with me on side effects (shoutout having a body that *I swear* reads that side effect list like a complimentary menu) and titrating slowly but I don’t think he ~gets it~ re: hormones wreaking full and complete havoc.

Thanks for reading 💙💙💙