I have had b12 bloods and they’ve been fine. But I’m wondering if anyone else has had this and benefitted from a b12 supplement nonetheless. I can’t get shots for this reason as they don’t see the need.
I have a lot of symptoms that could be b12 deficiency and wondered if it’s worth just using vitamins. Feels difficult to find some thing that is good / will be absorbed
I’ve been having some new and strange symptoms for about 4 months now and I’m just unsure what I really have / why and what to believe due to all the diff opinions. It’s been quite life changing and significantly impacts my day to day life and I’m constantly in pain and can’t really live how I used to. I am just curious about other people’s experiences and things they did/ tried etc.
It started with a feeling I initially described as a buzzing / dizzy feeling at the back of my head. This appeared one day, when I had been extremely physically anxious for a while, and was from then constant 24/7 no break all day/ night to this day.
I think this symptom either changed or worsened, and it’s now something I’ve described for a while as a very heavy head and constant pressure, again 24/7. I’ve forgotten what my head feels like normally. The pressure is never not there, but it varies in intensity. Sometimes it’s more pronounced at the top, sometimes at the back of head, and sometimes feels more like it’s behind my face / pushing outwards. It aches, and almost feels like I’m on charge non stop/ being held upside down.
It can be extremely intense and unbearable and I have noticed when I’m stressed or very anxious, I get what feels like more intensity / pain through my neck and like a knot / screw that’s being tightened and I’m totally unable to get relief.
I get a whole host of other symptoms, and for the first month of this I experienced typical headache feelings and pain behind my eyes / and on jaw, but this has mostly stopped. the main symptom is this unrelenting pressure. Also;
Painful neck / coat hanger pain
Dizziness
Sensitive to some noise and light / heightens the pressure or makes it “buzz”.
Ear tinnitus
Floaters and vision lines but minimal
Head zaps (at night)
Some dysautonimia stuff which i had prior but has gotten much worse since this pressure:
Head rush most times i stand up
Giddiness
Tachycardia
Heart palps
Heavy feeling through head to neck and chest feels like someone’s pushing down on me and my airways/ lungs etc are compressed.
Everything is so much effort / over whelming and I feel exhausted so easily more than before.
Prior to this starting, I had a few things happen. Bad case of the flu for almost a month and an ear injury around the same time. These things happened 1.5m before the pressure began.
Seen a few different specialists.
Waiting for cardiology referral. 24 hr monitor was fine but palpitations and tachycardia
Waiting for a scan from ENT
eye tests showed no optic nerve swelling / healthy eyes.
Mri of brain and neck showed nothing major (waiting for second opinion)
Physiotherapist diagnosed me with vestibular disorder and dysautonomia
Neurologist diagnosed me with NDPH
Main concern is that I have IIH / cfs leak and not only NDPH and that it’s being missed. But neurology hasn’t suggested this and says because my eyes, scans etc are fine it’s not the case. Also when I lay down it’s still there.
I’ve seen some pysio and was given some neck and vestibular excersize which I did religiously for abit but nothing changed so I stopped. Trying acupuncture and massage.
Meds - no basic meds touch the sides, allergic to triptans which also didn’t work, and now been told to start amitriptalyn which I’m really worried about in terms of side effects. I tried things like antihistamines but only once or twice. Also tired propranolol and it didn’t do anything for head
Also concerned about flying if this is the wrong diagnosis/ if it’s not even and pressure is worsened. Anyone had experience of this?
Anyone with any similar experiences would love to hear. Thank you
I’ve been having some new and strange symptoms for about 4 months now and I’m just unsure what I really have / why and what to believe due to all the diff opinions. It’s been quite life changing and significantly impacts my day to day life and I’m constantly in pain and can’t really live how I used to. I am just curious about other people’s experiences and things they did/ tried etc.
It started with a feeling I initially described as a buzzing / dizzy feeling at the back of my head. This appeared one day, when I had been extremely physically anxious for a while, and was from then constant 24/7 no break all day/ night to this day.
I think this symptom either changed or worsened, and it’s now something I’ve described for a while as a very heavy head and constant pressure, again 24/7. I’ve forgotten what my head feels like normally. The pressure is never not there, but it varies in intensity. Sometimes it’s more pronounced at the top, sometimes at the back of head, and sometimes feels more like it’s behind my face / pushing outwards. It aches, and almost feels like I’m on charge non stop/ being held upside down.
It can be extremely intense and unbearable and I have noticed when I’m stressed or very anxious, I get what feels like more intensity / pain through my neck and like a knot / screw that’s being tightened and I’m totally unable to get relief.
I get a whole host of other symptoms, and for the first month of this I experienced typical headache feelings and pain behind my eyes / and on jaw, but this has mostly stopped. the main symptom is this unrelenting pressure. Also;
Painful neck / coat hanger pain
Dizziness
Sensitive to some noise and light / heightens the pressure or makes it “buzz”.
Ear tinnitus
Floaters and vision lines but minimal
Head zaps (at night)
Some dysautonimia stuff which i had prior but has gotten much worse since this pressure:
Head rush most times i stand up
Giddiness
Tachycardia
Heart palps
Heavy feeling through head to neck and chest feels like someone’s pushing down on me and my airways/ lungs etc are compressed.
Everything is so much effort / over whelming and I feel exhausted so easily more than before.
Prior to this starting, I had a few things happen. Bad case of the flu for almost a month and an ear injury around the same time. These things happened 1.5m before the pressure began.
Seen a few different specialists.
Waiting for cardiology referral. 24 hr monitor was fine but palpitations and tachycardia
Waiting for a scan from ENT
eye tests showed no optic nerve swelling / healthy eyes.
Mri of brain and neck showed nothing major (waiting for second opinion)
Physiotherapist diagnosed me with vestibular disorder and dysautonomia
Neurologist diagnosed me with NDPH
Main concern is that I have IIH / cfs leak and not only NDPH and that it’s being missed. But neurology hasn’t suggested this and says because my eyes, scans etc are fine it’s not the case. Also when I lay down it’s still there.
I’ve seen some pysio and was given some neck and vestibular excersize which I did religiously for abit but nothing changed so I stopped. Trying acupuncture and massage.
Meds - no basic meds touch the sides, allergic to triptans which also didn’t work, and now been told to start amitriptalyn which I’m really worried about in terms of side effects. I tried things like antihistamines but only once or twice. Also tired propranolol and it didn’t do anything for head
Also concerned about flying if this is the wrong diagnosis/ if it’s not even and pressure is worsened. Anyone had experience of this?
Anyone with any similar experiences would love to hear. Thank you
I’ve been having some new and strange symptoms for about 4 months now and I’m just unsure what I really have / why and what to believe due to all the diff opinions. It’s been quite life changing and significantly impacts my day to day life and I’m constantly in pain and can’t really live how I used to. I am just curious about other people’s experiences and things they did/ tried etc.
It started with a feeling I initially described as a buzzing / dizzy feeling at the back of my head. This appeared one day, when I had been extremely physically anxious for a while, and was from then constant 24/7 no break all day/ night to this day.
I think this symptom either changed or worsened, and it’s now something I’ve described for a while as a very heavy head and constant pressure, again 24/7. I’ve forgotten what my head feels like normally. The pressure is never not there, but it varies in intensity. Sometimes it’s more pronounced at the top, sometimes at the back of head, and sometimes feels more like it’s behind my face / pushing outwards. It aches, and almost feels like I’m on charge non stop/ being held upside down.
It can be extremely intense and unbearable and I have noticed when I’m stressed or very anxious, I get what feels like more intensity / pain through my neck and like a knot / screw that’s being tightened and I’m totally unable to get relief.
I get a whole host of other symptoms, and for the first month of this I experienced typical headache feelings and pain behind my eyes / and on jaw, but this has mostly stopped. the main symptom is this unrelenting pressure. Also;
Painful neck / coat hanger pain
Dizziness
Sensitive to some noise and light / heightens the pressure or makes it “buzz”.
Ear tinnitus
Floaters and vision lines but minimal
Head zaps (at night)
Some dysautonimia stuff which i had prior but has gotten much worse since this pressure:
Head rush most times i stand up
Giddiness
Tachycardia
Heart palps
Heavy feeling through head to neck and chest feels like someone’s pushing down on me and my airways/ lungs etc are compressed.
Everything is so much effort / over whelming and I feel exhausted so easily more than before.
Prior to this starting, I had a few things happen. Bad case of the flu for almost a month and an ear injury around the same time. These things happened 1.5m before the pressure began.
Seen a few different specialists.
Waiting for cardiology referral. 24 hr monitor was fine but palpitations and tachycardia
Waiting for a scan from ENT
eye tests showed no optic nerve swelling / healthy eyes.
Mri of brain and neck showed nothing major (waiting for second opinion)
Physiotherapist diagnosed me with vestibular disorder and dysautonomia
Neurologist diagnosed me with NDPH
Main concern is that I have IIH / cfs leak and not only NDPH and that it’s being missed. But neurology hasn’t suggested this and says because my eyes, scans etc are fine it’s not the case. Also when I lay down it’s still there.
I’ve seen some pysio and was given some neck and vestibular excersize which I did religiously for abit but nothing changed so I stopped. Trying acupuncture and massage.
Meds - no basic meds touch the sides, allergic to triptans which also didn’t work, and now been told to start amitriptalyn which I’m really worried about in terms of side effects. I tried things like antihistamines but only once or twice. Also tired propranolol and it didn’t do anything for head
Anyone with any similar experiences would love to hear. Thank you