u/ForeignerKay_

I keep writing long things to say: after coming out of that, I’m always scared it’ll happen again, or that I was just always insane. I am putting off going to neurology because I’m so anxious they won’t find what it really is. I was diagnosed with Neurological Lyme Disease age 10, Bladder Pain Syndrome age 20, and at age 26 had what they think is encephalopathy mainly due to dehydration or urine retention induced and inflammation, but I have not followed up with neurology.

I’m scared they’ll find nothing. I’ve been okay for 3 months since figuring out electrolytes at home got me out of delirium (my family cared for me while waiting on specialists, and I’ve seen a few… just not neurology). But life is hard. I know I should go. Idk if the EEG would even show something this long after. I don’t know if I ever had Lyme or maybe it was a misdiagnosis and I crossed positive. I don’t know if I want to know. But I cannot go through the encephalopathy again.

I used to take Azo every day for a year. I haven’t had to take it much for the past 1.5 years, but past two days I’ve taken 1/2 a dose a day for my signature IC urethra pain. It’s worked good like normal but today I drank a coffee and I probably shouldn’t have.

I usually get 10 mins of kidney pain every time I take Azo. It’s like I can feel when my kidneys are passing it through or whatever. Tonight, I took it 10 hours ago and I’m feeling that pain only now. The pain is in both side and feels pretty bad.

I’m not used to it happening this late and usually it passes. Should I be worried it may be kidney infection instead? I’ll monitor but man I feel crap. The pain has always been weird with kidney, feels almost like toothache pain. Weird soreness that sucks badly and is almost buzzing.