u/Fresh_Minimum8030

▲ 6 r/EBV

Not sure what to do about chronic EBV, does anyone have any suggestions?

Hi everyone,

I had a flare up a month and a half ago of reactivated glandular fever, had cold chills, swollen lymph nodes, cold sweats, fatigue, dizziness etc. went and got tested by doctor and she said my blood counts show active EBV despite having it for the first time 4 years ago.

Time passed for a week or so and it eventually calmed down. Unfortunately it caused heart palpitations and tachycardia episodes, and insomnia which led to a lot of stress on my body after I “calmed down”.

So 10 days ago, I woke up with an insane sore throat / swollen tonsils with white pus all over them, just like my first experience of glandular fever. Fatigue, barely swallowing, swollen lymph nodes etc.

Doctor did a whole number of swabs and tests and no strep or tonsillitis shown, but my EBV levels were still active and current. A few days ago my tonsils got so bad that I had to go to hospital and get steroids and codeine, as I could barely breathe or swallow.

It’s now 2 days post steroids and the steroids are starting to wear off and my throat is on fire again. I’m doing all the things, sleeping a lot, taking tons of fluids and soups, lots of probiotics and immune products, on and off time off work (most days work from home but some days I take leave) etc. but it’s just not going away.

I feel like when I had mono 4 years ago it went away faster and there was some improvement every day, now there’s just not any improvement day to day. I really don’t know what to do…. I have major work duties come a week away and I’m trying to get better for them but I just have no idea what else I can do to fight this off.

I used to be on high strength antibiotics for 5 years due to recurrent UTIs and so now I’m worried I’m so immunocompromised that my body can’t fight off infections. Does anyone have any advice?

reddit.com
u/Fresh_Minimum8030 — 4 days ago

Can’t seem to fight off this EBV reactivation

Hi everyone,

I had a flare up a month and a half ago of reactivated glandular fever, had cold chills, swollen lymph nodes, cold sweats, fatigue, dizziness etc. went and got tested by doctor and she said my blood counts show active EBV despite having it for the first time 4 years ago.

Time passed for a week or so and it eventually calmed down. Unfortunately it caused heart palpitations and tachycardia episodes, and insomnia which led to a lot of stress on my body after I “calmed down”.

So 10 days ago, I woke up with an insane sore throat / swollen tonsils with white pus all over them, just like my first experience of glandular fever. Fatigue, barely swallowing, swollen lymph nodes etc.

Doctor did a whole number of swabs and tests and no strep or tonsillitis shown, but my EBV levels were still active and current. A few days ago my tonsils got so bad that I had to go to hospital and get steroids and codeine, as I could barely breathe or swallow.

It’s now 2 days post steroids and the steroids are starting to wear off and my throat is on fire again. I’m doing all the things, sleeping a lot, taking tons of fluids and soups, lots of probiotics and immune products, on and off time off work (most days work from home but some days I take leave) etc. but it’s just not going away.

I feel like when I had mono 4 years ago it went away faster and there was some improvement every day, now there’s just not any improvement day to day. I really don’t know what to do…. I have major work duties come a week away and I’m trying to get better for them but I just have no idea what else I can do to fight this off.

I used to be on high strength antibiotics for 5 years due to recurrent UTIs and so now I’m worried I’m so immunocompromised that my body can’t fight off infections. Does anyone have any advice?

reddit.com
u/Fresh_Minimum8030 — 4 days ago