u/Front-Design-9890

I’m a dementia nurse and I’m interested in understanding where family carers feel the biggest gaps in support are.

One thing I’ve noticed is that families are often left trying to navigate behaviours, hospital admissions, future planning, LPAs, communication difficulties and crisis situations largely on their own.

Looking back, what support do you wish you’d had earlier in your dementia journey?

What information would have made the biggest difference?

And if you could have sat down with an experienced dementia nurse for 1–2 hours to discuss anything, what would you have wanted help with?

I’m genuinely interested in learning from carers’ experiences.